Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2002 Posts >> Have your cycles gotten bettter, worse, same?
        
(Message started by: iukid on Aug 25^th, 2002, 2:15pm)

Title: Have your cycles gotten bettter, worse, same?
Post by iukid on Aug 25^th, 2002, 2:15pm

Have your cycles gotten bettter, worse, or the same since they started or a little of everything?

Title: Re: Have your cycles gotten bettter, worse, same?
Post by 2late on Aug 25^th, 2002, 2:46pm

my last cycle was the worst in 5 yrs. hope they don't get any worse,missed alot of work. ................2late

Title: Re: Have your cycles gotten bettter, worse, same?
Post by mustang on Aug 25^th, 2002, 2:58pm

My ch seem to have gotten worse
This last cycle lasting 10 years.
Have had maybe 100 pfdn in this period.
I quess you call this a cycle or am I to accept the fact this is how I live the rest of my life. No sleep and walking in a daze, with this numb feeling all the time.
Did I mention my ch's hit during the days too.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by Ted on Aug 25^th, 2002, 5:20pm

It's a cycle, Mustang. Never accept this is how it'll be for the rest of your life. If you do that then the terrorists have won. Or something like that.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by don on Aug 25^th, 2002, 5:24pm

26 years of CH and my last cycle was the worst I have ever had.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by mustang on Aug 25^th, 2002, 5:25pm

Oh I'll never let it win, it's just one hell of a long one.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by Drk^Angel on Aug 25^th, 2002, 6:12pm

Worse.... Definately.

PFDAN...................... Drk^Angel

Title: Re: Have your cycles gotten bettter, worse, same?
Post by Melissa on Aug 25^th, 2002, 6:46pm

worse, and last longer day wise.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by oringkid on Aug 26^th, 2002, 9:33am

My last one was not too bad. Shorter and less intense than previous ones. I think the worst cycle I went through is the one where I tried the imitrex nasal.

I do no meds now, went without meds for longer than I used them. My opinion and body only, but I think the meds make it worse.

Sherry

Title: Re: Have your cycles gotten bettter, worse, same?
Post by nancyc on Aug 26^th, 2002, 9:44am

was episodic then cycles kept getting longer and worse..i am now chronic... :Dnancyc

Title: Re: Have your cycles gotten bettter, worse, same?
Post by kelly_dawn on Aug 26^th, 2002, 5:05pm

i am episodic but i am mgetting more and more these days, they are starting during the day especially when i am over tired (usually due to the beast) when they hit and i am at work i want to cry so bad its unreal, i have had them for 8 years and i have so many years with the beast to look forward to.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by Jim R on Aug 26^th, 2002, 5:24pm

This is definitely the worst - pure agony - ever in 24 years and I have long, e.g. 6 month cycles. Jim R

Title: Re: Have your cycles gotten bettter, worse, same?
Post by pjbgravely on Aug 26^th, 2002, 5:33pm

Worse, had cycles for 3 to 4 months with a peak at 7, This cycle 9's and 10's for two months. Must be something in the air.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by Linda T on Aug 26^th, 2002, 6:16pm

This being my fourth cycle is definately, by far, worse.

Used to only get 1 maybe 2 hits a day. This cycle as many as 8.

Linda T

Title: Re: Have your cycles gotten bettter, worse, same?
Post by 4290 on Aug 28^th, 2002, 6:51pm

They get worse, last longer in duration, and happen in daylight hours now. They just suck.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by mustang on Aug 29^th, 2002, 3:56pm

I'm with everyone else here they are getting worse, longer, and into my daylight hours, I am getting more of them too.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by Slammy on Aug 29^th, 2002, 4:02pm

I usually forget about the cycles when they end, so I can't remember whether they are better or worse from the last cycle. I can say this cycle affected my sleep more than the past. I had at least one kip 8 or better everynight between midnight and 3 am! hard to abort one when it goes full throttle before it awakes you! :-[

Slammy 8)

Title: Re: Have your cycles gotten bettter, worse, same?
Post by echo on Aug 29^th, 2002, 4:04pm

Had a breather for a while. Weather is changing - now preparing for the usual run. I toggle from chronic to episodic. Is that possible?

(I figure if I go two weeks without one I move to the episodic side, longer than 3 months without a 14 day or longer break I become chronic). ???

Feel free to correct me if I have my head up my ass. :o Hey it happens.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by mustang on Aug 29^th, 2002, 4:08pm

Your right Slammy about getting hit with the hard ones at night. Now that mine are taking over my daylight hours too, everyone one thinks I am really crazy when they see me run like a bat out of hell for my 02.
Well better crazy than in pain,right?

Title: Re: Have your cycles gotten bettter, worse, same?
Post by Slammy on Aug 29^th, 2002, 4:23pm

Mustang,

you got that right, but I am fortunate that when I feel a CH coming on during the daytime, the cafergot I take works well to abort it before I would need to turn to O2.

I usually only have to use O2 when I get the lil fuckers that awake me in the middle of the night. The o2 aborts a full bore cluster faster than the cafergot, while the cafergot aborts the cluster more effectively when I get the tightness feeling prior to it starting.... kinda like a warning sign: Warning! Cluster Headache ahead!

Slammy 8)

Title: Re: Have your cycles gotten bettter, worse, same?
Post by Bob P on Aug 29^th, 2002, 4:35pm

Better.

First 20 years they were pretty much the same. 6 week cluster every 8-9 months, 2-3 ha/day.

Last 12 years the remission gets longer each time, the attacks more predictable and also more treatable.

Last cluster was bad probably because I was trying so many new things and fighting with insurance and a new neurologist. Tried all the triptans, topomax, shrooms. Felt compelled to try it all for the sake of experimentation. Wound up back with cafergot and O2. Cluster lasted 15 weeks as comapred to 5 weeks the previous one.

Next time I'm going straight to the O2 cafergot combo and not worry about the rest.

May try Elavil as a preventative since verap doesn't work for me.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by mustang on Aug 29^th, 2002, 4:47pm

My doctor gave me cafergot once they really helped.
Like you when I felt them coming I would take it and it would not come, then he decided topamax was the drug for me to take. I could not take them they made my ch's feel like 15 on the kip scale[ I know it doesm't go that high, but it felt that much worse]. He decided that he would not treat me any more, referred me to someone else[ that was in May] my appt. with new doc is Sept3. I have been in real trouble for the last two months or more, have lost track of some time cause of lack of sleep,and pain in head, tried to call old doc for help and have heard nothing. [have called him about 6 or 7 times]. For the first time in my life I am looking forword to seeing a doctor, kinda like waiting for
Christmas when we were kids. Just hope I am not dissappointed.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by Elaine on Aug 29^th, 2002, 9:01pm

Mine are better much better. The last two years are the first time in over 20 years I went more than a week pain fre. I had months off as many as three. The pain is less and the attcts come less.
I did not find any relieve till I came to this web site. A lot of studying and listening to what people who had clusters said.
Mine are 75% better!!!!

Title: Re: Have your cycles gotten bettter, worse, same?
Post by Charlie on Aug 29^th, 2002, 10:40pm

Mine were always the same. They only changed when they became scarce about 13 years ago. Two years later they were gone.

That's the kind of change I want everyone to experience

Charlie

Title: Re: Have your cycles gotten bettter, worse, same?
Post by paul_b on Aug 29^th, 2002, 11:12pm

Current cycle started in May/June and appears to be winding down. Was difinitely manageable at pain level having 1-4 nightly wake up calls but always woke before Beast roared to a 10. This cycle started after being in remission for 4yrs. There were 20+ previous yrs of no goodness. Ugh. Hope the addage that "older is better" applies to CH as well. Never had the advantage of this site until current cycle and I know it has been a positive in my life.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by robb__30 on Aug 30^th, 2002, 12:06am

I am having a very strange episode this time. Started this last Sunday 8am to 9:30am. Monday 8am to 9am. Tuesday had the shadows on and off all day. Now it has stopped. This has never happened to me befor. There is no way I want to get the hope that my tour in hell is over already. I'm afraid if I do the beast will come back with a vengence and drag me back to hell.

Title: Re: Have your cycles gotten bettter, worse, same?
Post by kkaye on Aug 30^th, 2002, 12:37am

Just joined , reviewed your messages:

Imitrix is expensive but covered by most insurance. However you may need to have your doctor intervene/write one larger than normally allowed (insurance companies think in terms of migranes and not cluster headaches).

I have gone through all avaiable drugs/treatments over the last 25 years and Imitrix injections are the only bright spot ... at least gives the option of sanity; stopping/delaying a bout, which is more than anything else has provided.

Of course is not final answer when dealing with 5+ headaches a night, but the best available.

O2 actually stopped working for me. Helped minimally (but better than anything else) for a number of years though, so good luck.