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        New Message Board Archives >> 2002 Posts >> just for support
        
(Message started by: jasonc on Aug 21^st, 2002, 10:01am)

Title: just for support
Post by jasonc on Aug 21^st, 2002, 10:01am

I am sitting work right now with the most severe ch right now I at the peak of my cycle and am going crazy I have imitrex but a aloud to use it only three times a week so I am screwed , I have been put on indomethethin but it does't seem to help ,the beast wakes me up three time s night and am going crazy any suggestion for me, is short term dissability an option right, anything I can do to numb this pain right now, it has been going for 30 minutes, now
thanks

please rely so i can have some support while i sit here alone in my office, in tears,

Title: Re: just for support
Post by debbie4278 on Aug 21^st, 2002, 10:09am

I can only suggest to try Procardia. It takes a few days to kick in, but it works for me. And, Zomig 5 mg. that dissolves in your mouth. The regular pills don't work.
Also, when I'm having a bad one-there is no way in the world I could type at the same time.
Breathe, go stand right in front of an air conditioner and suck it up. Put on an ice pack. HAve someone rub your head, neck and shoulders, and BREATHE.
Best I got.
Be thinkin' bout cha!
Deb :'(

Title: Re: just for support
Post by jasonc on Aug 21^st, 2002, 10:14am

trust me this isn't easy trying to type it took a while to type first post and am trying my hardest to to reply, I guess this website is all I got right now and it took every ounce of strength to pull myself up and type something. but anyways thanks in advance it is almost over

Title: Re: just for support
Post by Not4Hire on Aug 21^st, 2002, 10:35am

hey Jason....wish I could jam my o2 mask through the screen for ya.... this is one of the most effective abortives there is... hang in bro... and if it gets too hard to take.... ya might get some oxygen from a fireman..... it's worked for others when the ER is too far away...... good luck.....Steve

Title: Re: just for support
Post by kim on Aug 21^st, 2002, 10:49am

Jason, thinking about you. Been there. It sucks. But, it's gonna go away. Hang tight. Go get that o2! ICE. Got ac? stick face in it and BREATH. Good luck Jason.

Title: Re: just for support
Post by Karla on Aug 21^st, 2002, 11:00am

Try other abortives (amerge, axert, zomig, imitrix ns, imitrix shots, imitrix pills, etc.) and alternate the meds. I take imitrix ns for a couple days, percacet for a day, then I take axert for a couple days, and repeat. There can be ways around the system. For some people painkillers help and others it doesn't. It may be worth it to see if your dr will let you try some (percacet, vicodin, etc.) and see if it helps or not. For me it just makes the ha manageable/tollerable but is better than nothing. I am on disability for ch and depression that goes with it. There are options as far as work goes. Some take the FMLA absence for a few months. Some take short term disability and some work right through it and make due.
Good luck I will be praying for you.

Title: Re: just for support
Post by Svenn on Aug 21^st, 2002, 12:19pm

I just wont to add my medications for breaking out of cycle.But remember that i`m not a doc,just another clusterhead from Norway

Verapamil Retard 120mgX5-7/daily during cycle
Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few seconds after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 60-40-30-20-10-5mg /daily

This is the miraclecure for me,but i`m not a doc.just another clusterhead from Norway

Svenn

Title: Re: just for support
Post by jasonc on Aug 21^st, 2002, 2:06pm

thankyou all for your support and suggestion I will show this stuff to my doctor on wednesday the 27th, hopefully he will help me otherwise I will find a new doctor and try to see a neurologist.

Title: Re: just for support
Post by Georgia on Aug 21^st, 2002, 2:22pm

Jason - between now and when you see the dr...click on the Imitrex Tip link on the left of the screen...you will find info there on how to turn one dose of Imitrex into 3...leaving you able to treat 3 times as many ch and still stay under your weekly limit....check out the other links there too...they will help prepare you for your appt.....good luck and sorry for your pain

Title: Re: just for support
Post by Not4Hire on Aug 21^st, 2002, 2:26pm

Hey Jason.....some oxygen links of value:

http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action= display;num=1025929622;start=6

http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action= display;num=1014270746;start=2

Read up and give the info to your doc...... hope you find your *key*....

Title: Re: just for support
Post by Charlie on Aug 21^st, 2002, 3:13pm

We all know this horror and you'll find some advice here. Here's my technique which I found helpful:

Dr. Wright's Circulatory Feedback

This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been very helpful to many.

When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.

This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time for this to take hold but when this works, the relief is almost immediate.

I learned this from the doctor in a few minutes. He simply told me to concentrate on keeping blood away from the head. He thought the easiest is the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. I like to keep at it a few minutes longer than seems necessary to insure success.

This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.

When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.

I wish you the best of luck - Charlie Strand

Title: Re: just for support
Post by 2late on Aug 21^st, 2002, 6:02pm

02,trex, neurontin & melatonin before bed.ask your doc about my secret recipe for breaking out of a nasty cycle,good luck i wish i visited this board before seeing my doc,hang in there it'll break for ya!! ...................2late