Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2002 Posts >> If I have confussed anyone!
        
(Message started by: Elaine on Aug 17th, 2002, 10:29am)
Title: If I have confussed anyone!
Post by Elaine on Aug 17th, 2002, 10:29am
I know a lot of you wonder what’s going on with my post these days. I have always been involved in some kind of organization. I have always been a giving person. I have tried always to help others who did not have it as well as me. I have always felt pain in my heart for anyone or anything that suffered in any way. I have felt many types of pain in my life and fought many demons. I have spent a lot of the last couple of years around hospitals, and have seen and met people who were in so much pain that it made me feel guilty for even thinking my clusters were the worst thing in the world. I started Thanking God for every second of pain free time I have and making the best of it. When I made up my mind to do that I became much happier.  Even though some people have taken some of my post as being heartless and uncaring. That is not true. I found by applying a better attitude, and making the most out of my pain free time that when a cluster does hit me. I fight it much better and I am much happier.  I stopped dwelling on clusters and even my other health problems. I don’t neglect them I am prepared for the pain. I just live in between.  It does not work every time, sometime I just can not smile sometimes I am extra tired after a cluster and do have to rest instead of going on with my life that day. After I rest I do give myself a pep talk and if that don’t work I ask a friend to kick start me. If it helps me then I am passing it on. If it helps one person GREAT if it pissed 20 off so be it. I believe we have to fight to get clusters out there for people to understand. I don’t feel by telling people we are going to kill ourselves and it’s the worst pain in the world is going to do it. I am not putting anyone down. But when we say clusters ARE the worst pain in the world we are not telling the truth . Clusters are the worst pain WE know maybe but until we suffer what someone else has we can not say ARE. .  
I have never been one to follow in a crowd, and do things just because everyone else did. I always went by what my heart told me to do. Some times I am just plain talking. Maybe some things I say or maybe it is the way I say them that gives people the feeling I am heartless! Maybe its also kind of like sitting in church and the preacher sermon seems like he is talking just to you. You even think he can see right through you. How did he know you had those bad feelings and thoughts LOL !  It just happens to fit that’s all. I may disagree with some of you on different things but that does not mean I don’t like any of you. I might not believe in the same things as you. It makes me different than you but it doesn’t mean I dislike you.
Now a lot of you know I disagree with something’s in OUCH. It does not mean I don’t back OUCH cause I do. I think it is a great organization. I disagree with some of the officers. I even get mad because I can’t write good enough to get what I am saying across. but that does not mean they are bad people in my book. It means I disagree..  I say what I think just as they do.You got to look at it like two lawyers in a court room. Both friends but fighting for different things but yet the same thing. When it’s over they are still friends, some are even husband and wife LOL! I do agree on this auction thing so why aren’t ya’ll bidding LOL. I have high respects for the OUCH officers and all the volunteers that have worked to make OUCH what it is. I think we all want to see it bigger and better; we have different ideas how to do that.  If any of you dislike me for saying what I think then I cannot do anything about that. I can only say its not personal its just what I feel and what I believe. I am glade to see people posting and talking even if everyone doesn’t agree. Hugs and PF times to all of you!
Title: Re: If I have confussed anyone!
Post by jonny on Aug 17th, 2002, 1:42pm
You always seem to kick start my heart, E-Baby.

Next time could you keep it to one paragraph ;D

Love ya, E

.....................jonny
Title: Re: If I have confussed anyone!
Post by markdavid on Aug 17th, 2002, 4:23pm
I respect the fact that you are passionate and do not follow the crowd, frankly you cannot confuse the confused (speaking for my self) although your posts (which I always enjoy reading) are long and I find my self quickly skimming over then reading bla bla yah yah... ;)
PFDAN's ELAIN      still enjoying the lil flutist
markdavid
Title: Re: If I have confussed anyone!
Post by kim on Aug 17th, 2002, 8:12pm
Here's the short version:  Pidgeons flock together.  Only the Eagle soars alone............. Anyone don't get it, piss off. ;D

Avoid Pidgeon Shit. ;)
Title: Re: If I have confussed anyone!
Post by markdavid on Aug 17th, 2002, 8:39pm
wise a man a say far batter to a piss a off ratha than a be a piss   on ;D
Title: Re: If I have confussed anyone!
Post by Drk^Angel on Aug 18th, 2002, 12:28am
Don't ya worry none Elaine... I don't think you confuse anyone anymore than they're already confused.  LOL

PFDAN........................ Drk^Angel
Title: Re: If I have confussed anyone!
Post by Deveny on Aug 18th, 2002, 10:08am
I am confused big time.....I don't understand a few things.
Why do you refer to the people here as Friends?

Why would you spend your money on any thing for them?

Why would you give them a chat room ?

Why do you ship gifts to people here?

Why would you bother ever calling one person to check on them, when they were down?

Why have you shed any tears for this group?

Why did you work so hard for a O.U.C.H. just to have them come at you like a pack of wild dogs when you disagreed with them?

Here is questions for everyone else here!

How can you come to HSG chat room when you hate her guts?

Why would you post to any post you have not read word for word MarkDave?

Why would you cease to be a friend because a person does not believe as you and thinks different from you?

How in the world can any of you call this a support group, a family and even say you are friends?

I only see a lot of hate, jealousy, and a lot of, my way or the higway. I see very little understanding and caring and love.

Mom will not leave here, she will stay till the end. I guess even with all the bad she stills cares.
Title: Re: If I have confussed anyone!
Post by jonny on Aug 18th, 2002, 10:17am
I got your Mom's back, Dev....you and she knows this.

.....................jonny
Title: Re: If I have confussed anyone!
Post by Donna on Aug 18th, 2002, 10:23am
I have no clue as to what is going on here, but I can't imagine a good reason for people not to love Elaine.

What's up?
Title: Re: If I have confussed anyone!
Post by catlind on Aug 18th, 2002, 11:35am
Okay now I'm confused LOL

Elaine, nothing you have posted or said in response to posts or to me in chat has ever confused me (or at least beyond what normal confused state is LOL)

You are from what I've seen in the short time here one of the most loved people here.  I personally think the world of you.  I don't think there's anyone here who I don't 'like'.  Well maybe just one, but that's irrelevant.

Elaine, you give and you give and you give.  Deveny, your mom is one of the strongest people I have encountered, and I've encountered many.  I can't imagine anyone hurting her intentionally.  Perhaps I'm too naive and haven't seen something along the way that was intended to hurt.  

These words I'll post again, I believe them and give them to you freely without hesitation and in honesty and sincere caring:

"I give you my support for those times when you're a little unsure about continuing on the path you've chosen - even though it seemed to be the right one when you began.  I give you my belief in you and in your
ability to accomplish anything you set out to do.  I give you my respect for the things you believe in, even if I don't agree with them.  I give you my time for however long it takes to do the little things that make your
life more comfortable.  I give you my comfort for those occasions when circumstances put some unwanted factors in your life.  I give you my trust in you to always do the right thing for yourself.  I give you my forgiveness
that allows you to be human, rather than expecting you to be perfect."

Cat
Title: Re: If I have confussed anyone!
Post by markdavid on Aug 18th, 2002, 1:08pm
I guss my post could have been confused and taken as an insult,guss I should not have mentioned my short attention span.....I really have no problem with anybody on this site , well i dont think i do, but thats life ya can't make every body like you. :(
pfda's
markdavid
Title: Re: If I have confussed anyone!
Post by jonny on Aug 18th, 2002, 1:11pm
How true!!!!

....................jonny
Title: Re: If I have confussed anyone!
Post by Melissa on Aug 18th, 2002, 1:23pm
I am sure it was just a form of miscommunication.  

Elaine dear, you are invaluable to us, and we love you very much!!  You're contributions do not go un-noticed, and even though we might forget to say "thank you", we treasure you're input and friendship. :D

Markdavid- I did not read your post as insulting, then again, I have a quirky sense of humor anyhow.  I'm sure you're intentions were not to upset or hurt Elaine on purpose. :)

~~~Mel
Title: Re: If I have confussed anyone!
Post by Edna on Aug 18th, 2002, 1:33pm
HUMPH.....little confused here, but what's new with me.

I SAY...(a lot usually, but, hey).......there are those that are here for the reasons intended AND THEN there are those here.........well.......I don't really know why they're here??......That kind doesn't bother me at all.

Guess I said too much again but I ain't worried. Those that like me will like me and those that don't.......their loss.

This site is GREAT.......and a great BIG....

THANK  YOU!


to all those deserving of it for making this place exist for me!   :)

EDNA
Title: Re: If I have confussed anyone!
Post by markdavid on Aug 18th, 2002, 1:50pm
Well Melissa gets it? i guss it's kinka hard to joke through a key board, which is what I do most of the time unless I am simpathizing (sp) w/someone or trieing to. Whats the deal w/ the stars by the names , I see that I shows how many posts were made by that person, but what's the the deal with it exactlly, rank? just a question.
Title: Re: If I have confussed anyone!
Post by Melissa on Aug 18th, 2002, 2:03pm

Quote:
Whats the deal w/ the stars by the names , I see that I shows how many posts were made by that person, but what's the the deal with it exactlly, rank?


Because of the format of this message board, the stars under the posters names are automatically added when he/she attains a certain number of posts.  Frankly I don't give a rats ass whether it says newbie, or hall of famer.  As far as I'm concerned, we are all equal in my eyes.  To me, it's not the frequency of the posts, but the quality and sincerity that counts.

I'm sure I just told you a lot more than the answer you were looking for, LOL

Mel
Title: Re: If I have confussed anyone!
Post by jonny on Aug 18th, 2002, 2:04pm
The stars show you get along with others, the more stars the more you get along and play well. (Kidding)

Actually, its a way to judge how long ones been here.....bring back the old board and youll have to add six more stars to my ass......LOL
Title: Re: If I have confussed anyone!
Post by Melissa on Aug 18th, 2002, 2:27pm
Jonny, buy some of those little gold shiny star stickers, and stick them to your puter screen ;D  Just don't get upset when you are scrolling, and everyone else seems to have more stars for some reason ::)


;D
Title: Re: If I have confussed anyone!
Post by markdavid on Aug 18th, 2002, 2:42pm
Melissa Your answer was EXACTLY what I was looking for thank you  ;)
mark david
Title: Re: If I have confussed anyone!
Post by jonny on Aug 18th, 2002, 3:13pm
Mel,

I got enough stars to crush most here for what ive done.

Mark,

Grow a set will ya!

...............jonny
Title: Re: OMG!!!!!!!Now I am confussed ROTFLMAO!!
Post by Elaine on Aug 18th, 2002, 3:32pm
I am sorry I am ROTFLMAO because this is funny in a way!
I been so tired watching the baby everyday and I look so forward to weekends to sleep. I took a valum last night and slelt all night long got up feeling good, so I went window shopping ALONE no kids LOL!
I come home get a coke no one is here, computer time YES!!!! I go to my computer open my email
as I always dofirst and the bell just keeps going off and its from relpys to this post. I open ch.com and it says welcome Deveny!
I log her out wonderning why she was loged on...of course she is gone so I can not ask her.
I start reading the post and when I got to Devenys I didn't know what to do LOL!

I will answer all her questions, with one answer !
I love the shit out of this site and the people who made it!!!

They come to chat to get to know each other better , have a little fun and some times cry....sometimes even a barroom fight LOL!

Poor Dev, she loves me through and through, she is my baby.

Dev, I sometimes wonder the same thing about your friends ROTFLMAO!

ITS CALLED A GENERATION GAP! When you get home I am going to beat with a feather then send you to bed with no dinner!!!!

I would say more but MarkDavid would not be able to follow me.!!!!LOL

Hon you would just have to have clusters to understand us I guess!

I know you guys are ok with me, I am going now and wait for Deveny with my feather :-)!!!!
Title: Re: If I have confussed anyone!
Post by jonny on Aug 18th, 2002, 3:41pm
Yup,

Only a clusterhead would understand a clusterhead, E.......LOL

.......................jonny
Title: Re: If I have confussed anyone!
Post by Melissa on Aug 18th, 2002, 4:43pm
barroom brawls, yeehaaaaaaaw!! ;D  Hey E, let's say we cause a commotion in Vancouver so I can take pictures? ;D  I'm in the mood to let loose! LMFAO!

Jonny, you completely missed my point about the star stickers... but that's OK, because I still love ya bro! ;)

Markdavid, you're quite welcome :)

i love this place! ;D ;D ;D
Title: Re: If I have confussed anyone!
Post by jonny on Aug 18th, 2002, 5:08pm
I think Mark ought  to grow a set.

Women are not for hiding behind!

LMMFAO..........................jonny
Title: Re: If I have confussed anyone!
Post by Melissa on Aug 18th, 2002, 5:20pm
if anyone tries to hide behind me, you'll either get lost, or I'll accidently sit on ya ;D
Title: Re: If I have confussed anyone!
Post by jonny on Aug 18th, 2002, 5:48pm
TY, Mel....once again you proved a point.........LOL

Girlie bitch........LOL

.........................jonny
Title: Re: If I have confussed anyone!
Post by markdavid on Aug 18th, 2002, 6:13pm
I guess Elain doesn't think I do have clusterhead aches , and Jonny you don't have a clue go back to your, what your yam bag???lol damn thats dumb, thanks Melissa you have sense and a good sense of humor , something alot of people on this site lack, Elain you would be suprised what I can keep up with. ;)
Title: Re: If I have confussed anyone!
Post by Ted on Aug 18th, 2002, 6:24pm
OK. Round four is just about to start. When you hear the bell I want you both to come out swinging.

GONG
Title: Re: If I have confussed anyone!
Post by Charlie on Aug 18th, 2002, 6:25pm
Okay:

No one here doesn't like Elaine. That's hundreds of people and that's a hell of an accomplishment.

Charlie
Title: Re: If I have confussed anyone!
Post by Melissa on Aug 18th, 2002, 6:32pm
http://www.camelotdesign.com/funnyflash.gif


Gotta love me! ;D


Edited to add:  Markdavid, Jonny was just horsing around with me... and Charlie, delete 3 of your posts before I get dizzy! LOL  ;D
Title: Re: If I have confussed anyone!
Post by Ted on Aug 18th, 2002, 6:51pm
I said

GONG
Title: Re: If I have confussed anyone!
Post by Melissa on Aug 18th, 2002, 7:01pm
Ted, you're bored arn't you :P

;D
Title: Re: If I have confussed anyone!
Post by paul_b on Aug 18th, 2002, 7:03pm
Why don't you all go and read a good book. Better yet, mark your posts so we all can know that what follows is personal banter and not waste our time hoping something of value is to be read.
Title: Paul, this is banter. Don't waste your time
Post by Ted on Aug 18th, 2002, 7:06pm
Mel, it kind of shows, doesn't it?
Title: Re: If I have confussed anyone!
Post by markdavid on Aug 18th, 2002, 7:51pm
I like Ted's idea, quit Mel, where is Jonny jam bag when ya need him?
mark david
Title: Re: If I have confussed anyone!
Post by Ueli on Aug 18th, 2002, 8:17pm
paul_b, why don't you go and read a good book instead of filling the message board with petty-minded criticisms?
Title: Re: If I have confussed anyone!
Post by markdavid on Aug 18th, 2002, 8:33pm
Yeah paul read a freakin book... Mel ,while those may be fairly accurate cartoons of both of us the context is way off.. Ted when have you ever seen me kiss any body's ass on this board?? really there a few people who make posts that almost always make me laught one of them is you ted, but I laught most at your BBQ pit,man watta peice o shit. ;D
Title: Re: If I have confussed anyone!
Post by Ted on Aug 18th, 2002, 10:24pm
I found a good book tonight. It's called Paul's Big Book of Posts That Aren't Personal Banter and Are of Value For People Looking For Something of Value To Read. Here are some excerpts, all written by him:

*  Message Board Topics / General Posts / Re: Why couldnt this be a cure??       on: Aug 14th, 2002, 11:06pm       

"Every thing would be out of control---Same as voting Republican"       


*        Message Board Topics / Medications, Treatments, Therapies / Re: Capsicum        on: Aug 13th, 2002, 11:12pm       

"Hey Tom, the idea of a burning "tush" is not a cool idea for me. It could however, be a great distraction to the pain in head."


*  Message Board Topics / General Posts / Re: I can not stand it any more!!!       on: Aug 3rd, 2002, 11:50pm       

"This thread has turned into the Great Clusterhead "Yarn" Will someone tell me why I am in such a great mood? NO there is no hidden drug in my system, only IM. As the epic continues.........(next)"    
     
Title: Re: If I have confussed anyone!
Post by Charlie on Aug 19th, 2002, 2:01am
All it takes is a little blood Ted. Idiots like Paul tend to get us going and we thrive on this stuff.

Every now and then some idiot wastes his time telling us we are wasting his time and offering time-wasting ideas confident we'll waste our time by worrying about his time wasting. Time was and still is that this is a waste of time.

Time wasting old Charlie
Title: Re: If I have confussed anyone!
Post by catlind on Aug 19th, 2002, 7:36am
ROFLMMFAO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

You guys are all too funny!!

Charlie, the scary thing is:  I FOLLOWED THAT POST! LOL
Understood it comletely!!

Cat
Title: Re: If I have confussed anyone!
Post by Ree on Aug 19th, 2002, 8:49am
Elaine... I have never thought of you as anything else but BRAVE... keep up the fight girl... We love you... Ree
Title: Re: If I have confussed anyone!
Post by oringkid on Aug 19th, 2002, 9:57am
Elaine is my hero.
Title: Re: If I have confussed anyone!
Post by Elaine on Aug 19th, 2002, 10:43am
Thank you Ree but I am not brave! I am scared to death. Clusters are not the worst pain I ever had, but they hurt so bad they scare the hell out of me. I get down on the floor and Rock and cry just like the rest of you with that pain. All I can do is pray and fight with what I have to fight with. When it’s over I am still scared they will return, but I have to push that fear as far back in my mind as I can and go on and be happy in between and go on with life. Maybe I have painted a picture where everyone thinks I am always a happy person always wearing a smile. I am far from that. Maybe you think I am brave because of cancer. I can hug this baby and tears just roll some times. Between the clusters, cancer and life there are times I would like to just tear things up, sometimes I want to just tear the whole house apart from anger of it all. I know it would not help, so in between everything, any time I have time to sit and relax instead of letting all my fears and pains resurface I post and get everyone in a uproar LOL Just kidding! There was a time in my life I spent on the floor worring about tomorrow and what bad would come. I still believe in tomorrows but I live for today. I try to think of good times not the bad.
Happiness is a choose I chose to be happy. It took me a long time to find that out, and many wasted days. I am not brave. I am not a leader, I am not anything important just A woman, a Mom and twice a wife. I am just me. You’re  sweet Ree and real cool friend!
Title: Re: If I have confussed anyone!
Post by catlind on Aug 19th, 2002, 1:13pm
Elaine, there's not much one can say after that post, it was touching.  It reminded me of one of my motto's in life, if you need a label for me, then by all means, chose any label you like, but the only label I accept is this: Me.
My label is my name, that is who I am.

You are a strong person, even though at times I'm sure you are frightened and feel weak, you are still fighting and that is a sign of bravery and strength.  I will forever admire the strength of my girlfriend who died from cancer, for the last 4 months, her choice was to live, and live she did until the day she died.

*hugs*
Cat
Title: Re: If I have confussed anyone!
Post by Ree on Aug 19th, 2002, 1:30pm
Elaine... facing all that and standing up here to talk about it with all of your heart and soul... No you arent brave you are valiant... you are so tough...  We should all look at life these days as you do, thankful for every minute... I love you... Ree
Title: Re: If I have confussed anyone!
Post by Jackie on Aug 19th, 2002, 1:50pm
DITTO!!!!!!!!!!!!! ;D

Elaine,  
Love to you my friend.

Jacks 8)
Title: Re: If I have confussed anyone!
Post by dannyboy on Aug 20th, 2002, 10:47am
I've got a rule Elaine

It says ... I will not participate in any more OUCH auctions till I've recieved My mug

I realise that the rule sounds a bit specific perhaps ... still ... it stands

Any one seen that crook Andrew Santos?

Danny
Title: Re: If I have confussed anyone!
Post by Bob P on Aug 20th, 2002, 11:04am
Danny.  Who the heck auctioned the thing?  I'll help ya bug him to get it to you.

I once again attest to the fact that Danny paid up for his mug via the OUCH Donation page.
Title: Re: If I have confussed anyone!
Post by dannyboy on Aug 20th, 2002, 11:32am
Aw ...  I'm sure he'll show up soon, thanks

Maybe he went on holday or something and ain't getting his e-mails

Lets give him another month before informing jean philipe and the rest of the special forces

Where the heck is OUCH supposed to get its funds from you tight fisted sharks?

Bid On!!
Title: Re: If I have confussed anyone!
Post by hub on Aug 20th, 2002, 11:34am
love love love yeah yeah yeah  etc.  etc.
What the crap does confussed mean?  ;D
Title: Re: If I have confussed anyone!
Post by hub on Aug 20th, 2002, 11:36am
ps dannyboy are you still raising sheep?
s.h.e.e.p. ;D
Title: Re: If I have confussed anyone!
Post by dannyboy on Aug 20th, 2002, 11:47am
How did you know I had $heep hub?

I Had a Ram called Ba-a-a-a-azil, I used to ride on his back till I was about 10. He had a flock of about 20 Gals!!

Had to sell him and them though ... long story

So Na-a-a-a-a

No $heep

We did take some bantams with us when we moved to town though

Shut up

Mind your own Business

Where've you been?

Who's Jack?


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.