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        New Message Board Archives >> 2002 Posts >> The life and times of a blonde CH 
        
(Message started by: Samiam on Aug 8^th, 2002, 9:58am)

Title: The life and times of a blonde CH
Post by Samiam on Aug 8^th, 2002, 9:58am

Ok I've always been the type of person that tried to look at life, that if you stumble, you just pick uped all your belongings and got back up again....well here lies the problem.....I'm really getting tired of stumbling....This dam things, not only make you stumble but really kick the Sh** out of you....well I won't give up yet.....so far this cycle I've been stuck with needles in my head....7 x's I may add with nevre blocks....hey they didn't work and hurt like hell....then I've been put on a brand new drug that I just knew was made for me....well guess what, that drug company won't be getting rich from me....I've had more things shoved up my nose....and as for trips well....we won't even count Disney world I don't have to leave my house for any of those....(stadol).... and yesterday I got the botox shots, and found out I had one hell of a sinus infection so let's just add more drugs to the system....so I guess last night when my husband found me sleeping in the middle of the yard with an ice pack that is when you know you hit rock bottom....LOL...good thing I had my scrubs on.....Hubby said babe, please come in....I can't stand here in my underwear if you come in I will sleep on the couch with you until it passes.....ok besides....we didn't have a lounge chair and the grass was not all that great.....so off we went....but the hell with that....I took the stadol after the DHE didn't work....oh did I tell you I broke the first one....and called the drug company every name in the book.....but then again try putting it together with 2 Klonopin in your system.....I guess today I just had to laugh....without humor.....I would be dead.....besides today is a new day and maybe they will stop......Now remember you have to picture me sleeping in the middle of my yard in the city.....you gotta laugh.....Sami

Title: Re: The life and times of a blonde CH
Post by don on Aug 8^th, 2002, 10:01am

Just so you'll know. I was once standing in my back yard at 3 AM in my skivvies, clutching my squash, in the middle of February.

I live in New England.

Title: Re: The life and times of a blonde CH
Post by Slammy on Aug 8^th, 2002, 10:39am

yeah, and Don wasn't even sufferin' from a cluster attack! ;D

He had a dream, something about a tatoo of a ruler somewhere on jonny's bod... I dunno... :D

Slammy 8)

Title: Re: The life and times of a blonde CH
Post by Drk^Angel on Aug 8^th, 2002, 11:47am

Hopefully the botox will start working soon, and give you the relief you so desparately need and desearve. You are in my thoughts and wishes! Good luck!

PFDAN............................ Drk^Angel

Title: Re: The life and times of a blonde CH
Post by jonny on Aug 8^th, 2002, 4:51pm

I say we ship Don back to OLD England that way theres no risk of seeing what he described.

............jonny

Title: Re: The life and times of a blonde CH
Post by 2late on Aug 8^th, 2002, 5:15pm

Ive been in my backyard nude & not even in a ch cycle,hell i was celebrating ;D seriously,i hope u get some re lief soon.sounds like your way overdue,good luck!!!! ......................2late

Title: Re: The life and times of a blonde CH
Post by kim on Aug 9^th, 2002, 11:20am

:DHey Sami! Hang in. Did I ever tell you about my disasterous camping trip to Montaulk? Ole CH was crankin and poor Kimmy was poppin pills right and left trying to fight the evil headaches (I was gettin my ARSE kicked ;D)

One afternoon my dismayed comrades found me at the beach flat on my face with snorkle gear and flippers donned but obviously not in use........... :o

Ya win some and ya lose some ;) Just keep fightin!

Smiles, Kim

Title: Re: The life and times of a blonde CH
Post by Drk^Angel on Aug 9^th, 2002, 11:46am

2late... Remind me never to live near you. Last thing I need is to look out my window, and see a naked, celebrating clusterhead. :P

PFDAN.................... Drk^Angel

Title: Re: The life and times of a blonde CH
Post by Samiam on Aug 9^th, 2002, 11:47am

Ok Kim, I feel so much better....I just spit my coffee all over the screen...I guess we understand each other but can you see the ones that don't have a clue as to what is going on.....Did I ever tell you white coats are just not my fad....LOL>.....I guess we will do anything at the time if we think it will get us through.....Luv Sami

Title: Re: The life and times of a blonde CH
Post by echo on Aug 9^th, 2002, 2:31pm

Nothing like a Stadol stone to get me in the back yard wandering around behind the little a n i m a l s. Then I get to talk like I have gravel in my throat for the next day or two. Been there, done that tooo many times to remember. My favorite is to wake up from a Stadol stone while sitting down and finding that I have been using my lap for a pillow. Hey -- wait a minute, If I work on this and get my head a little lower -- I'll never need to leave the house again.

Hope you find help and PFDN soon.

Title: Re: The life and times of a blonde CH
Post by Drk^Angel on Aug 9^th, 2002, 3:10pm

Echo... You're startin' to remind me of slammy a little too much... Ask yourself... Do you really want to start down that road... lol

PFDAN..................... Drk^Angel

Title: Re: The life and times of a blonde CH
Post by Slammy on Aug 9^th, 2002, 4:10pm

Hey! There is only one Slammy!

Accept no substitutes ! :o

Slammy 8)

Title: Re: The life and times of a blonde CH
Post by Samiam on Aug 9^th, 2002, 4:20pm

Oh this is just great are you telling me that if your here long enough Slammy rubs off on ya....LOL.....and to think I'm not to far away from him on my picture page....wait maybe I should hold my little ones ears for this reply.....ROFLMAO.....out of all of the patients my neuro see I'm the only one that he will write a script for Stadol......now I know why.....that's almost as bad as Ambiem.......Sami

Title: Re: The life and times of a blonde CH
Post by Drk^Angel on Aug 9^th, 2002, 4:46pm

I don't know about rubbin' off on ya... But he'd prolly try to rub against ya. Run! Before it's too late!

PFDAN........................ Drk^Angel

Title: Re: The life and times of a blonde CH
Post by Samiam on Aug 9^th, 2002, 4:50pm

Hey Drk I'm glad your doing better....and thanks for the heads up.....I figure before he see this I could be far enough away that he won't catch me.....LOL.....I'm keeping my fingers and toes crossed that I have 1 week to go or at worst 2 weeks then look out Beach I'm there with the sunset and a nice chilled glass of wine......Sami

Title: Re: The life and times of a blonde CH
Post by kim on Aug 9^th, 2002, 9:53pm

Now your talkin! ;)

It gets better. And, remember, keep smiling! Pretty soon you'll be laughing the belly laugh you were meant to laugh! :)
It's all relative.
:)Kim

Title: Re: The life and times of a blonde CH
Post by kim on Aug 9^th, 2002, 10:40pm

Oh, and Sam? I'm a redhead. Am I in the wrong post? :D

Title: Re: The life and times of a blonde CH
Post by Samiam on Aug 10^th, 2002, 7:53am

No way Kim your right where you belong.....if we have no humor we have no life right.....Sami

Title: Re: The life and times of a blonde CH
Post by sailpappy on Aug 10^th, 2002, 9:09am

;D ;D Robin,
I lived in Memphis for 4 years, I have been caught totally covered in sleet, hair frozen, eye brows, mustache looking like I just go back from a rush trip from the arctic from hosing myself down with a mist from the hose wearing a bathing suit, It did help though, about 45 minutes into it I finally abated the headache but I was so solid with the ice I almost couldn't move,
I used cold water and Ice alone for many many years as it was the only thing that abated the attacks and then I went on with life.
I've been pain free now for about 10 months, it was a choice I'm still questioning, I've been on Oxy Contin for this whole time, it works Great for me but I still suffer from a guilt complex from taking it!
I'm down to 20 mg every 12 hrs and getting ready to stop and see if they return, I made it down to 10mg the last time I tried this the WAM! It not a drug of choice or for those with no self control, they keep calling you ,saying take more,take more, but If you can hold to your resolve then it has worked great for me.
I screwed up my neuro transmitters by going to heroin as my first drug to beat them. Not I'm paying for that, it only took 32 years to get here! Hang in there and keep trying, you will find the treatment that works best for you. Pappy

Title: Re: The life and times of a blonde CH
Post by Sam Stone on Aug 11^th, 2002, 11:11am

Sami,
Klonopin ANS Stadol NS damn you aint sitting on the porch with the puppys, eh?
Lived on Stadol awhile you are STRONG! (I guess thats it?) Listened to Rolling Stones "Rip up your mind" every time I did a squirt, UGHK!
A question if I may (and please email or PM me if you want) why the Klonopin? ? ? ?
Klonopin is my "rescue med" for sezuries, Phenobarbital being my "maintnance med" (230mg at "bedtime", not that I EVER sleep) I just can not imagnine what Stadol AND Klonopin must do, but I DO understand.
I have been on Morphine for eight years now for these "headaches", like Sailpappy said, IF you can manage pain meds you may be okay, I take only what is NEEDED.
Good thing you (and I) have someone to find you out in the yard!
Gosh I had some funny thing to say and now that I have been typing this for so long (I am SLOW) I cant remember it, could it be the meds? Na, it's more likely the brain damage from the last time I got pissed off and flushed ALL my meds (can you say "tapper" off ANY pain med if you have been on it a long time!)
Peace,
Sam Stone

Title: Re: The life and times of a blonde CH
Post by TomM on Aug 13^th, 2002, 12:21pm

Sami--What's your street address? ;) Hang in there, Friday's coming. --TomM--

Title: Re: The life and times of a blonde CH
Post by Samiam on Aug 13^th, 2002, 2:02pm

Ok here's the deal....My blood pressure is too low for alot of the beta blockers....and we have done all the other med's including the new one Frova (it didn't work) so believe it or not Klonopin is use in some cases for Cluster's for me it's working since I've been taking this at night 2- .5mg at bedtime I have not had one break through and I get a good night sleep....the only reason the other did that night was I was at the Dr's and when he pokes around he seems to stir one up everytime. Now as for the stadol....I really don't like what it does to me and with 2 children to worry about I don't like not to be in my right frame of mind so I don't really use it unless my husband is here and I know the kids are safe. The rest of the time I will either use the Imitrex nasal spray or the DHE spray and just grin and bear it.....Stadol to me is when I think I'm going to lose my mind and it's the last straw and already by then I've gone 2 or 3 hrs without it breaking.....I remember a very long time ago I had an adnormal eeg so maybe what ever that was the klonopin has a way of evening it out.....I think I'm coming down from my cycle (keeping my fingers crossed so far today I've not had to use anything just an Ice pack to the back of my head and I do think the Botox has had a hand in this also.....I will be going for the temple shoot maybe next week up until now I just have had the neck, behind the ear, and the base of the skull (oxput).....My cycles seem to run around 6 weeks a couple a day mostly at night.....or very early in the morning....Sami.....