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        New Message Board Archives >> 2002 Posts >> Cluster Headache Clinical Trial!
        
(Message started by: DJ on Aug 7^th, 2002, 8:44am)

Title: Cluster Headache Clinical Trial!
Post by DJ on Aug 7^th, 2002, 8:44am

Hi folks,

There is FINALLY a clinical study specifically for cluster headaches!

Stop by the new page at:

http://www.clusterheadaches.com/clinicaltrial.html

and check out the info!

Title: Re: Cluster Headache Clinical Trial!
Post by Ree on Aug 8^th, 2002, 7:38am

Hey DJ thats great the closest location for Dave is right up the street here in Wellesley MA... Hey I thought you were taking a vacation.... go and have some fun... Ree

Title: Re: Cluster Headache Clinical Trial!
Post by TomM on Aug 8^th, 2002, 11:25am

This is very good news. I will contact the clinic in Alexandria, VA.--TomM--

Title: Re: Cluster Headache Clinical Trial!
Post by Cry-or-die on Aug 12^th, 2002, 8:05pm

I wonder if we can get one of those going up here in canada too...I fit into that category perfectly! I wanna be in the parade!!!
I wonder what it trial conditions are? I wonder if ya hafta be a yankee?
The drug info? eg. What part of my head are they messin' wit?
Receptors&blockers&ergots Oh my! hehehe
Gawd I feel old sometimes... ::)

more links please ;D

Thanks DJ...I'm going to try to make the meeting in Van. I'll just be finishing my cycle sometime between now and then.

Later

Title: Re: Cluster Headache Clinical Trial!
Post by GREGNJ27 on Aug 19^th, 2002, 3:23am

Thanks for the info, I look forward to seeing what is dicovered ,,I have been free now for months after the nightmare came back after being in remission for 4 years, hope for another 4 years of freedom,,i used accupunture,,it works a miracle for me,,

Title: Re: Cluster Headache Clinical Trial!
Post by Linda_Howell on Aug 20^th, 2002, 3:04am

Why the "fuck" aren't they doing a study on chronics for Gods sake?

Can I lie DJ ?

Linda

Title: Re: Cluster Headache Clinical Trial!
Post by Slammy on Aug 21^st, 2002, 5:29pm

I'll "study" ya, Linda! :D

Slammy 8)

Title: Re: Cluster Headache Clinical Trial!
Post by RichardN on Aug 23^rd, 2002, 7:56pm

Linda,

They've been secretly monitoring the posts and are probably concerned about the extra expense of hiring sufficient security personel to restrain us. Puleeeez Mr, Studyman........I'll be nice........really I will :-/

Title: Re: Cluster Headache Clinical Trial!
Post by nancyc on Aug 26^th, 2002, 11:30am

Lying in this case seems like a good idea ;D...what about us chronics? We could make their day.. ;Dnancyc

Title: Re: Cluster Headache Clinical Trial!
Post by Dan H on Aug 27^th, 2002, 5:41pm

Just be my luck that If I were in the study. I would be in a full kip10.. and I would be the one who gets the placebo. Would have to go through the CH. After4 hours of intense pain... then they ask you to fill out a form as to how well the med worked... ::)

.....Dan H

Title: Re: Cluster Headache Clinical Trial!
Post by gtar_man on Aug 29^th, 2002, 12:34pm

Either that, or I'd get the real thing and it would turn out to generate the side effect of having yer reproductive organ shrivel and fall off... :o
Shoot, since I became a Clusterhead, eating and sex (not necessarily at the same time) are the only things I still enjoy doing... ;D

Title: Re: Cluster Headache Clinical Trial!
Post by daven on Aug 29^th, 2002, 1:45pm

test

Title: Re: Cluster Headache Clinical Trial!
Post by Tony_W on Sep 3^rd, 2002, 4:37pm

Its a pity that the trial is only being run in the USA what about the rest of the world?

Title: Re: Cluster Headache Clinical Trial!
Post by Massattack on Sep 4^th, 2002, 2:02am

I live in Holland.
3 years ago I was approached for the same trial.
It is sumatriptan nasal spray vs placebo trial.
I did not sign up for this trial.
Only Glaxo Smith Kline and the participating doctors and clinics get better from this trial, NOT YOU!!!! (Glaxo pays a lot to participating doctors and clinics!)
They only need test results for insurance companies, NHS etc to prove (what they already know!!) that nasal sumatriptan also is effective in fighting Cluster Headache pain and so they can have official indication to prescribe nasal sumatriptan with CH and only with indication insurance companies will pay for the medicine.
It is only about selling more sumatriptan and not in the interest of wellbeing Clusterheadache suffererers.
Migraine and Clusterheadache are big money for the industrie!

Title: Re: Cluster Headache Clinical Trial!
Post by Qazpur on Sep 4^th, 2002, 5:11am

Unfortunately Massattack is probably right in this regard. Clinical trials organized on a large scale basis need to be funded by large scale money, usually with a commercial bias.

On the positive side, every trial (and the bigger, the better) concerning CH has the benefit of bringing attention to our plight.

At present I believe some of the best medical information available in the world can be gleaned from this MB and website - medical professionals studying the illness could learn a lot simply by analyzing the personal experiences related here.

Title: Re: Cluster Headache Clinical Trial!
Post by Drk^Angel on Sep 4^th, 2002, 4:25pm

Ummmmmm... I believe you are wrong Massattack... I believe this clinical trial is for zicapsacin, and in the US, a drug needs to have sufficient trials to be approved by the FDA, and be able to market the drug. Zicapsacin is the first drug to be directly developed for cluster headaches, and these trials may help further understanding about cluster headaches, and meds geared specifically for clusterheads. If we turn our backs on the clinical trials, we are not going to find any support from the drug companies, because they'll decide that they're wasting their money on us. Yes, GlaxoSmithKline makes alot of money off their migraine meds, but if not for these trials geared towards clusterheads, we'll never get anywhere with proper treatment of our condition.

PFDAN.............................. Drk^Angel

Title: Re: Cluster Headache Clinical Trial!
Post by SFChris on Sep 4^th, 2002, 6:28pm

FYI - the sponser is Winston Labs, not Glaxo Smith Kline. The drug is a pepper based spray (I'm embarrassed that I don't recall the name - it's something like Civiamide).

Title: Re: Cluster Headache Clinical Trial!
Post by kari on Sep 4^th, 2002, 6:44pm

I signed up for the clinical trial, if I get another cycle in the next 12 months. It may not work for me, but I feel it is a pro-active step to take, at least I am trying to aid in the research, as Dk Angel said.

Title: Re: Cluster Headache Clinical Trial!
Post by nutty2chat on Sep 5^th, 2002, 8:29pm

The doctor at the clinic in Cincinatti used to be my nuero. He is really good. He is very interested in helping to find a cure. He wasn't accepting new patients when I called him, but he wanted a female cluster patient in on some studies that he was doing. He is really great. I don't know about this study, but if Dr. Nicholas is involved it can't be all bad.

Title: Re: Cluster Headache Clinical Trial!
Post by vaughn on Sep 6^th, 2002, 3:45am

IMPORTANT! U.K clusterheads.
there is a medical trial coming up.i do not have all the details but please call the very good people at the CITY OF LONDON MIGRAINE CLINIC,22 CHARTERHOUSE SQUARE,LONDON,EC1M 6DX.tel.020 7251 3322 fax.020 74902183.these guys are life savers. ;D