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        New Message Board Archives >> 2002 Posts >> New post - old illness
        
(Message started by: victorj on Feb 21^st, 2002, 2:51am)

Title: New post - old illness
Post by victorj on Feb 21^st, 2002, 2:51am

Hi: My name is Victor and I have been suffering from Cluster Headaches for about 4 years :-[. I am seeing a neurologist who has put me on verapaxmil and lithium. I recently weened myself of the lithium since it zapped my energy level. I am still on the verapaxmil and have a cluster headache once every day or two. Once in a while I get several in one day. Over the years the headaches have become much more severe......requiring an imitrix injection followed by amerge after 3 hours. My doc says I am a chronic difficult case since I have not had more than 5 days relief without a cluster. I started accupuncture treatment about two months ago but have not noticed any change. Does anyone have any experience with Accupuncture therapy? Any advise is greatly appreciated.

Title: Re: New post - old illness
Post by sithlord on Feb 21^st, 2002, 2:56am

hey there,
Wow, yours sound a lot worse then mine. Never tried accupuncture before, but I truly believe in alternative medicines. My doc just started me on Verapamil yesterday. I'm not chronic, just episodic. I'm a little scared that I may have to go on lithium some day.
sithlord

Title: Re: New post - old illness
Post by Melissa on Feb 21^st, 2002, 6:51am

hi Victor! ;D Welcome to our cluster family, I'm very sorry you are suffering :(, but this is the best place for you to be! I'm sorry, I don't have any info to give you on acupuncture, but just wanted to tell you hi, and to hang in there!

take care,
melissa

Title: Re: New post - old illness
Post by David_M on Feb 21^st, 2002, 8:58am

Hi Victor,
I've tried both accupuncture and massage therapy. Both were consistently effective for getting rid of a headache. But for breaking a cluster, I'm sorry to say its inconclusive for me.

Best wishes to you.

Dave

Title: Re: New post - old illness
Post by murphysmom on Feb 21^st, 2002, 9:23am

I am also sorry to hear of your pain brother :(. like melissa I have no experience with acupuncture, I have tried chiropractic treatment with some success for individual headaches but not breaking cycles...alas topamax, midrin, and amerge are my only hope in an emergency...Good luck though I hope it works for you..mmom

Title: Re: New post - old illness
Post by nancyc on Feb 21^st, 2002, 4:35pm

I agree with david m and murphysmom...accupuncture did not help me...massage therapy helped with the tension in my neck and shoulders when under attack really hard but did not stop the chs....sorry i could not help more....rite now, imitrex is my salvation....smiles,nancyc

Title: Re: New post - old illness
Post by Jayne on Feb 21^st, 2002, 4:44pm

My question to you is ....what dosage of verapamil are you /have you been on....???????

Title: Re: New post - old illness
Post by Charlie on Feb 21^st, 2002, 8:46pm

Hi Victor:

From what I have seen and read, acupuncture hasn't been effective for Ch. Most alternative medicine isn't effective, and is usually expensive.

Believe me, I wish otherwise.

Charlie