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Topic: Hello (Read 1154 times) |
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RachelGreiff
New Board Newbie
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Posts: 7
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Hi everyone,
I hope you don't mind my starting a new topic. I wasn't sure where to introduce myself on this board. I'm Rachel, I live in the U.K. and my husband Jamie suffers from episodic cluster headaches. He had his first attack almost two years ago but we finally got a diagnosis on Friday!
Since we finally knew for sure what was wrong we decided to spend sometime researching the condition on Saturday night and came across this website. We both decided to join so that Jamie could talk to people who understand what he goes through and I could talk to people who know how hard it is to watch on helplessly as a loved one experiences such pain. I'm beginniing to get a grip on the layout and the lingo and hope that I can get to know you all very soon.
Rachel x
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In sickness and in health...
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Paul98
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Hi Jamie and Rachel!
Welcome to the madhouse 
Pull up a chair and read, read, read! Ask questions. Pleanty of info here and about a bazillion years collective experience with CH  Sorry you had the need to search out a place like this but glad you found us.
-P.
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sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
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Posts: 10429
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Re: Hello
« Reply #2 on: Jan 28th, 2008, 12:50pm » |
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Warm welcome, Rachel and Jamie!
This is the place to be to clusterheads and supporters.
Rachel, it's wonderful that you're active supporter and joined as well. Your "job" is not an easy one and all suffers like myself are very grateful for what you all do for us.
Wishing lots of PF (pain free) days for Jamie!
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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RachelGreiff
New Board Newbie
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Posts: 7
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Re: Hello
« Reply #3 on: Jan 28th, 2008, 1:07pm » |
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Thank you both so much.
I'm having a good look round and this seems like a really supportive place to give and receive advice.
How wonderful, after two years of feeling isolated to suddenly find ourselves in the middle of such a welcoming community!
Rachel x
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In sickness and in health...
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Jackie
CH.com Alumnus
New Board Hall of Famer
Go For It!!!
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Posts: 2963
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Re: Hello
« Reply #4 on: Jan 28th, 2008, 2:55pm » |
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Hi Rachel.
I'm the wife of a sufferer too.
I'm glad you all have joined us. This is the greatest place and a true salvation for sufferers and their supporters.
I'm sure you're reading all you can. Don't forget to check out the OUCH website (yellow button on the left)
Learn all you can...knowledge is power.
Please ask questions if you need. There is always someone will to help.
Again.....welcome
Jackie
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RichardN
New Board Hall of Famer
  
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Re: Hello
« Reply #5 on: Jan 28th, 2008, 4:58pm » |
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Welcome to you both.
My wife found this site for me 2/02, after a year of mis-diagnoses, "normal" tests, and non-working meds. By the time I got here, was having 6-8 attacks per day, sometimes 3-5 per night . . . I was a basket-case . . . this place gave me my life back.
As said above . . . read, read, read . . and ask any questions you might have. The answers you get here come from folks who truly know his pain (and your concern/ frustration)
Be Safe, PFDANs
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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Guiseppi
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2703
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Re: Hello
« Reply #6 on: Jan 28th, 2008, 5:48pm » |
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Bless your heart for being a supporter, we cannot say enough good stuff about you guys. My wife has put up with my CH for 28 years, like Richard, it was my wife who found the board for me. I can't begin to tell you the difference the board has made in my life! (Careful, starting to sound like a TV testimonial!  )
Great to have both of you on board, look forward to meeting both of you!
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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Mosaicwench
CH.com Alumnus
New Board Hall of Famer
Find joy in your day
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Posts: 1657
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Re: Hello
« Reply #7 on: Jan 28th, 2008, 9:36pm » |
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Welcome Rachel!
I'm also the wife of a sufferer and I know what it's like to stand there and not be able to do anything to take the pain away.
To watch and feel useless and helpless is an entirely different pain than what they suffer, but pain nonetheless.
At the risk of being redundant, this place has changed our lives. The friendliness, love, and attention we've found here have made most of these people our family. If you can find one, go to a meet and greet in your area (I'm sure Helen (LeLimey) will find you and get you to one of hers). Meeting fellow clusterheads and their supporters is not to be missed!
I'm sorry for the reason you're here but glad you are here.
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The difficulties of life are intended to make us better, not bitter. ~Author Unknown
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QnHeartMM
New Board Newbie
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Posts: 37
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Re: Hello
« Reply #8 on: Jan 30th, 2008, 9:37pm » |
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Hi Rachel! I'm wife of a suffering (Guisepi) and learn as much as I can too. Sounds like you have found a doctor that at least understands what he's dealing with. Don't be shy about sharing with the doctor what you learn here. My husband keeps a file on things he learns here and when he gets hit, takes any new info back in to the doc (while renewing prescriptions, etc). Remember, in med school, they spend very little time learning about headaches, so well documented research is helpful to them.
For me, I just poke around and read. Haven't been too social yet, but have made a few acquaintences. Everyone is very supportive which is great.
Welcome aboard!
Christy
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