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Topic: Re: Another kind of pain (Read 264 times) |
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FZfan
New Board Old Timer
Not Insane
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Posts: 459
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Re: Another kind of pain
« on: Sep 16th, 2004, 8:30am » |
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What an awesome post! I just had to respond somewhere since margi locked the thread.
Thanks Jackie, so much, for helping us sufferers see things through a supporters eyes more clearly.
I've often thought that being a supporter was, in many ways, worse than having the disease.
Keep hanging tough Jackie!
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There is no such thing as a dirty word. Nor is there a word so powerful, that it's going to send the listener to the lake of fire upon hearing it. - FZ
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E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
  
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Posts: 6458
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Re: Another kind of pain
« Reply #1 on: Sep 16th, 2004, 10:26am » |
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I truly agree my friend!
As bad as this affliction is, there is nothing worse to me than seeing my bride to be helpless over me. That is excruciating and what you guys feel is beyond the physical pain that we do.
Tremendous strength!!!!
She is stronger than I could imagine and like all supporters a true angel!
Thank you to all of angels out there who stand by our side.
Respect, love and admiration!!!
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Jackie
CH.com Alumnus
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Go For It!!!
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Re: Another kind of pain
« Reply #2 on: Sep 24th, 2004, 10:23am » |
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Thanks for the kind words.
I just wish this could end for all of us. We need a cure!!
Love to ya...
Jacks 
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yikes-another-one
New Board Old Timer
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Re: Another kind of pain
« Reply #3 on: Oct 16th, 2004, 10:25am » |
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Just knowing there is someone close by,
in case our brain melts and starts dripping out
of our ears is enough of an aid for me.
I can't really watch TV through the pain,
as noise and lights hurt too....
but I also cannot have it quiet or dark.
So I flip channels, and moan and pace,
and my husband surfs the internet to stay out
of my way....
but knowing he is just a call away....
makes me feel strong enough to hang in there,
and not give up.
He didn't get it, the first time i begged to die.
He didn't understand.... and I think he felt a panic,
because I always say I want to stick around
forever to enjoy his company....lol
And once out of the pain, I denied ever begging to
leave....because that would make me very selfish,
wouldn't it? 
but it's a panic, and it's a knee jerk reaction.
ESCAPE - any way we can....
I am so greatful for every day, now,
every day painfree or not.
But it has taken me 6 years to get my mind
around the fact that I am not dying, that there is no
brain damage, that there is no tumor..... 
After a while you just get worn down to acceptance.
There is no pattern, no precursor, no notice of
how long it will last.... so you just buckle up
and go for the ride.
I've found you can go kicking and screaming, or
just grinning and biting your tongue.... but you are
gonna ride it accordingthe beast's rules, not yours.
So hang in there and take as much pain free time
as you can get.
Like so many others have said,
Thank God the headaches come and go....
that they don't hang around for 72 hours at a time...
otherwise I really doubt it would be a disease for long.
(Like men having children....it just wouldn't happen)
ha, ha, ha j/k
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Psalm 23 - Goodness and mercy shall follow US all the days of our lives and WE will dwell in the house of LOVE forever.
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