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Topic: Re: Hubby hasn't made f/u dr's appt (Read 258 times) |
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firebrix
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I must never weaken.
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Re: Hubby hasn't made f/u dr's appt
« on: Jun 29th, 2004, 5:43am » |
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Welcome Clarkie!
Good to meet you and don't worry about "venting"; its acceptable here. We understand. You'll find lots of support here.
Try to get that neuro appointment as fast as you can. This is where supporters can really help - they can do all the phoning, arranging, the listening to the muzac while on "wait" rather than leaving it to the sufferer who's having trouble functioning with no sleep, intense, regular mind-boggling pain, and everything else that goes with CH. Get on the phone and "make it happen".
Meanwhile check out ALL the buttons to the left of the homepage screen. There's some valuable info there and you can print what he needs to take with him to the neuro. If you can, ask him to do the cluster quiz:
http://www.clusterheadaches.com/quiz.html
and encourage him to check out the whole CH.com site while he's at it.
Getting educated is some defence against mis-diagnosis and will also help you both to understand a bit about the condition and what may be done to prevent/ abort headaches and live with it. Read about the Oxygen!
Keeping a log is a great idea! Take this to the neuro too.
One of the best things we can do is ask what our sufferers need when they're having attacks and do exactly what they ask. Many wish to be left entirely alone, and we must not see this in a negative way - they are coping with unbelieveable pain and if they want to be alone, we should accept that while assuring them that we're there if needed. Others like a little company, an ice pack, neck rub, help with the O2 but whatever it is they ask for just make it happen!
I really don't know how to make someone do something they don't want to do. All we can do is gentle encouragement, reminder and maybe incentive? What he's dealing with is bad enough, and changing things is always hard.
You sound like a great supporter and I understand that feeling of total helplessness! Thing is tho', we're not that pathetic and will continue to seek ways to make the impact of CH on our lives as small as possible in any way we can. We must never weaken!
You cannot do more than the best you can!
Hang in there and stay in touch. The grey days do pass.
Wishing you all the best
firebrix
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"All that it takes for the triumph of evil is for good men to do nothing."
Edmund Burke
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Grandma_Sweet_Boy
CH.com Alumnus
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What Goes Around Comes Around!
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Re: Hubby hasn't made f/u dr's appt
« Reply #1 on: Jun 29th, 2004, 7:31pm » |
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Hugs to you girl. There's nothing more stubborn than a man in pain and it's hard to convince them isn't it? Gotta love them though - it must be tough for him and although I don't know what it's like from the supporter side of things, I do know that my supporter feels just like you do. Hang tough and just keep on doing what you're doing.. The best to you and your mate. Carol.
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miapet
New Board Hall of Famer
what doesn't kill me makes me stronger
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Re: Hubby hasn't made f/u dr's appt
« Reply #2 on: Jun 29th, 2004, 10:59pm » |
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*hugs* hang in there hon . . .we have to be strong for these guys *smiles*
I have to second what firebrix said (about having a plan) talk to your husband, when he's NOT having a h/a, ask him what he would like you to do while he IS having one . . .and then that's what you do. It was soooooooo hard for me to learn to not ask D questions while the beast was whacking him . . .
I also agree with you making the call and getting that neuro appt moved up closer! You have to push for what you want (with the docs/nurses/secretaries) and not take 'no' for an answer.
Be as educated as you can (meds etc) so when you get to the doc, you know what he/she is talking about. And keep up with the journal . .it is a good idea . . .our's is a spreadsheet *L*
Anyway . . .I'm sending you lots of positive light and energy . . .take care of him and you . . .you're both worth it *smiles*
*positive light and energy*
miapet
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Clusterbusters Rock
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