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Topic: Hi New Here (Read 466 times) |
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gizmo
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Hi New Here
« on: Aug 25th, 2002, 10:48am » |
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Have been checking out the site daily lately. My husband is a cluster sufferer and has been since he was in his 20s, now in his 40s. We have tried just about all the meds. He is in a pretty severe cycle now, ended up at an urgent care clinic in Fairbanks. This is the first time I have gone in with him. I have never been so disgusted with the way people treat the sufferer. They dont have a clue what you are talking about, but act like they know what to do. I was so upset I had to leavebefore I said some very nasty things. We are so glad we found this site, It's so nice to hear we are not alone . Thanks
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Ree
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2008's my year to shine~SUN IS OUT!!!YAY
  
 
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Re: Hi New Here
« Reply #1 on: Aug 25th, 2002, 10:56am » |
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Welcome to the CH family....Ya, some people can be ignorant as far as CH is concerned... you just have to realize those ignorant people usually know nothing about CH. We have also had people treat my husband badly in the ER and also the secretaryat the Neuro's office before I enlightened her... Don't be afraid to tell these people off... they are working for you... If you dont like your doctor FIRE HIM/HER!!!! Glad you found us though. You will find alot of understanding here. Tell us more about your hubby, his med program etc... good luck... ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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Little Deb
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Please SPAY and NEUTER all dogs, cats and idiots!
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Re: Hi New Here
« Reply #2 on: Aug 25th, 2002, 11:32am » |
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Welcome!!
I vote for letting the "NASTY THINGS" out!!!!!!!!
Tell them like it is.
And refer to Georgia's incredibly AWESOME post a few days ago...her plan for the ignorant health care people.
Fairbanks??? There goes the light theory. It's light all day there right now isn't it??
Deb
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ChristineL
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Welcome,
Let us know how we can help.
Chris L
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Becca
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I love YaBB 1G - SP1!
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Re: Hi New Here
« Reply #4 on: Aug 25th, 2002, 10:27pm » |
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Welcome! So sorry to hear that you husband is hurting now. The ER is a bad set up for anyone with CH. We and many other sufferers have had this experience, too. I am a nurse, and believe me, that didn't help one bit to speed up the process or get my husband the appropriate care in a timely fashion on either occasion when we broke down and went there! (Before we came here.)
If there is an Urgent Care Clinic or an ER that you could plan ahead to use when driven to the wall, here's an idea (from this site). First, of course, you need a doctor, neuro specialist or not, to work with your husband on a treatment plan tailored to him.
Next, have your husband's doctor write out the plan for emergent CH abortive measures to be taken for his patient if he goes to the UCC or the ER for treatment. Also, have a copy of this treatment plan to bring with you, which has your doctor's telephone numbers on it. Find out if the facility you will probably use has any policy about keeping MDs individual patient treatment plans on file and readily accessible.
From all I've read on this board, it seems like the best plan is to get as self sufficient as you can be to deal with attacks where they happen. That means have your abortive on hand at all times, once you learn what works for him. We are still working on this, and so far, for shadows anyway, oxygen seems to work, caffeine sometimes helps, and some pain meds like darvocet that Bill's GP prescribes are a little better than, say, a kick in the ass. Strenuous exercise has helped on occasion, too, like chopping up mesquite wood with an axe in the middle of the night. (Our neighbor thinks we are nuts). So, again, welcome to this nutty neighborhood!
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Darleen
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Re: Hi New Here
« Reply #5 on: Aug 26th, 2002, 11:03am » |
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Hi gizmo,
Welcome home! I normally start off with that because this is like a home for many of us. Other people that don't from these headaches can't understand what it is like to either suffer or support a sufferer. So pull up a chair and take it all in.
We're all here for you.
Lots of love,
Darleen
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The mad viking
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Always Look on The Bright Side of Life
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Re: Hi New Here
« Reply #6 on: Aug 26th, 2002, 12:46pm » |
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Hi There
Welcome to Clusterville.
Here you will find almost everything you want to know.A lot of friends that really are dedicated to help a fellow clusterhead.Hope you will find what you are looking for.
I just wont to add my medications for breaking out of cycle.But remember that i`m not a doc,just another clusterhead from Norway
Verapamil Retard 120mgX5-7/daily during cycle
Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few secons after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 60-40-30-20-10-5mg /daily
This is the miraclecure for me,but i`m not a doc.just another clusterhead from Norway
Svenn
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Always Look on The Bright Side of Life
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