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Topic: New board specifically for supporters! (Read 6974 times) |
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DJ
CH.com Administrator
Got Sleep?
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Posts: more than Jonny will EVER have!
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New board specifically for supporters!
« on: Feb 14th, 2002, 10:50pm » |
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So many people have asked previously about adding a special section specifically for those who have to put up with us clusterheads, our supporters.
If you support a husband, wife, son, daughter, loved one, friend, co-worker who had clusters, this section is for you!
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I NEVER could have imagined! (April 11th, 1998 - present)
Adversity does not build character... it reveals it.
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Margi
CH.com Moderator
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
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Posts: 3757
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[i][/i][Re: New board specifically for supporters!
« Reply #1 on: Feb 14th, 2002, 10:54pm » |
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oh - VERY COOL, DJ!!! Thank you SO much for doing this for us!! K, no peeking - us supporters might say nasty things about youse guys in here. Again, DJ - this is awesome that you did this. This totally rocks. And, one good thing about the new board is that it's REALLY nice to see the webmaster posting again. You better be careful, dude or folks are gonna start calling you a ClusterGod again.  
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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KarenT
Guest
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Look,Margi! We've got our own room!
« Reply #2 on: Feb 15th, 2002, 8:48am » |
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;D
I'm still trying to figure all this out. Imagine my surprise when I saw the change...too much work and not enough 'puter gets me waaaaaaaaay behind. I like it anyway. 
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minnie
New Board Hall of Famer
my greatest joys are my daughters April & Beth
 
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Posts: 1059
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Re: New board specifically for supporters!
« Reply #3 on: Feb 15th, 2002, 9:05am » |
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Hi guys i'm happy to see this board.I'm sure it will be busy soon. seems funny to see you listed as a newbie margie lol.well got to go explore the sight but I'll be checking in. keep up the good job supporters!!!!!
Minnie
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Friends are Angels who lift us to our feet when our wings have trouble remembering how to fly
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You may only be one person to the world
but you may also be the world to one person.
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Margi
CH.com Moderator
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
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[b][/b]Re: New board specifically for supporters!
« Reply #4 on: Feb 15th, 2002, 9:29am » |
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Isn't it AWESOME that DJ has done this for us? I think we're making history here, gang.
I think it's also important to remind the supporters out there about the Family Services Team at the OUCH website too. Here's a link to our pages there:
http://www.clusterheadaches.org/family/index.htm
Hmmm....this is so cool to have our own little area now. I just feel like nesting, now! We'll have to get some nice plants and do some feng shui to make it all comfy in here. We'll get some comfy couches, some punching bags and tons of kleenex. I think we'll get a dart board too. We can hang pictures of Hub and Jackie Boyd up there for practice.
Yep, this works. Thanks, DJ.
 I'm smiling BIG here this morning.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Monique
New Board Junior
Farm Fresh!
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Re: New board specifically for supporters!
« Reply #5 on: Feb 15th, 2002, 9:49am » |
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Margi... honey.... what are your two gorilla's doing???
Your a naughty lady Margi Storey!!
LMAO
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Deep Breath And Go On.......
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Margi
CH.com Moderator
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New Board Hall of Famer
Nuthin like a good neck rub!
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Re: New board specifically for supporters!
« Reply #6 on: Feb 15th, 2002, 10:35am » |
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Well, I'm glad SOMEBODY finally asked! She's a supporter gorilla, he's a gorilla clusterhead. She's giving him a neck massage and trying to keep him calm through the attack. She's a good little supporter.
What did YOU think they were doing? I think you've lived in the Canadian boonies too long honey. We gotta get you out here to the big city. You've a dirty little mind, Mrs. Roadknight.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Margi
CH.com Moderator
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
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Re: New board specifically for supporters!
« Reply #7 on: Feb 15th, 2002, 10:36am » |
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either that, or she's picking nits out of his fur. But I prefer the massage story, personally.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Margi
CH.com Moderator
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
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Re: New board specifically for supporters!
« Reply #8 on: Feb 16th, 2002, 9:12am » |
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Aw, thanks Ted. K, shut up now.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Monique
New Board Junior
Farm Fresh!
Gender:
Posts: 84
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Re: New board specifically for supporters!
« Reply #9 on: Feb 16th, 2002, 10:21am » |
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OH ME GAWD!!! Margi's a somebody!!!
Sheez left me behind in my nothingness... 
Way to go Sweaty!
DJ's a smart man!
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Deep Breath And Go On.......
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Darleen
New Board Veteran
Peek-a-boo
Gender:
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Re: New board specifically for supporters!
« Reply #10 on: Feb 16th, 2002, 10:47am » |
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Thanks for the new board DJ!! See we are so special we now have our part of the board!! Yippee!!!
Margi - I always knew you were a somebody...
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Donna
New Board Newbie
Gender:
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Re: New board specifically for supporters!
« Reply #11 on: Feb 16th, 2002, 12:21pm » |
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Just when I thought it was good, it got better.
This is a great idea, a great place to be and we have a great coach for our little rooting team here. Only, why are your stars green, Margi? Too busy to polish them? Whats a girl gonna do!
The monkies are doing a good job. Our Support Mascots..............I like that, don't all of you? 
I'm going back to sleep now. These nights are doing me in. And those street lights are too bright.
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tedski
New Board Newbie
Ooh-Rah!!!
Gender:
Posts: 22
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Re: New board specifically for supporters!
« Reply #12 on: Feb 16th, 2002, 1:03pm » |
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Thanks DJ
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Karla's #1 supporter
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Todd
Guest
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Re: New board specifically for supporters!
« Reply #13 on: Feb 17th, 2002, 6:28pm » |
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For the record -
I am a supporter as well as a clusterhead.
KTSSU,
T
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Cheryl
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Re: New board specifically for supporters!
« Reply #14 on: Feb 18th, 2002, 10:59am » |
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WOW!!!!!!!!!!! Isn't this progress... Incentive for the Media Committee HUH!
Love
Cheryl
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RACH
Guest
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THANK GOD!!!
« Reply #15 on: May 17th, 2002, 8:51pm » |
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I HAVE BEEN CHECKING IN WITH THIS SIGHT FOR MANY YEARS TO FIND OUT THE LATEST ON CH FOR MY HUSBAND WHO HAS SUFFERED FOR 15 YEARS. THIS NEW BOARD IS JUST WHAT WE HAVE ALWAYS NEEDED. HE IS NOT IN HIS CYCLE RIGHT NOW (THANK GOODNESS!!) AND WE TEND TO ACT LIKE IT DOESN'T EXIST DURING THE OFF MONTHS BUT WE JUST GOT A NEW PC AND I THOUGHT I WOULD CHECK IN. WHAT A PLEASANT SURPRISE!! I'LL PROBABLY NEED THIS ALOT IN AUGUST WHEN WE EXPECT HIS CYCLE TO BEGIN. WHO KNOWS MAYBE THIS WILL BE THE YEAR WE GET LUCKY!! I AM ALWAYS LOOKING FOR KNEW INFO ON CH AND HAVE A NOTEBOOK FULL OF IT, AND HAVE ASKED MY HUSBAND'S NEURO HOW TO START A SUPPORT GROUP TO SHARE INFO, NOW I GUESS I DON'T HAVE TO. I APPRECIATE ALL OF YOUR HARD WORK. NO ONE ELSE TRULY UNDERSTANDS UNLESS THEY LIVE IT!! GLAD YOU'RE HERE IF I NEED YOU. THANKS DJ
[center][/center]RACH
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Not4Hire
CH.com Alumnus
New Board Hall of Famer
...WAS PF since Oct.'02, but ...oh my...(CBusters)
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Re: New board specifically for supporters!
« Reply #16 on: May 17th, 2002, 10:04pm » |
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I'm not tellin' her (RACH)....somebody, please!!!??
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Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
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ave
Guest
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Dear RacRe: New board specifically for supporters!
« Reply #17 on: May 18th, 2002, 7:06am » |
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Dear Rach,
it is nice the cluster supportgroup is so appreciated. However...
If you check you'll see that many of the people who post here are not in cycle/have no partners etc. in cycle. They don't need to come here. Yet here they are to support others through agony.
And though DJ and Margi deserve all you said in praise, it might be an even better idea to give some support now, before it is August, share your knowledge, share your compassion.
Thanks for listening,
Ave
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Dswife
Guest
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Re: New board specifically for supporters!
« Reply #18 on: Jun 13th, 2002, 8:53am » |
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Hey everyone.
I'm the wife of a cluster headache sufferer and was looking for a place to interact with other supporters. My husband has had chronic clusters for 3 years now. Just wondered if I could join up with you guys. It is SO COOL to see a website with a place for supporters to message.
Thanks for being here.
Jenny
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Dswife
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Re: New board specifically for supporters!
« Reply #19 on: Jun 13th, 2002, 8:54am » |
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Hey everyone.
I'm the wife of a cluster headache sufferer and was looking for a place to interact with other supporters. My husband has had chronic clusters for 3 years now. Just wondered if I could join up with you guys. It is SO COOL to see a website with a place for supporters to message.
Thanks for being here.
Jenny
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Margi
CH.com Moderator
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
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Re: New board specifically for supporters!
« Reply #20 on: Jun 13th, 2002, 10:06am » |
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Hi Jenny - Welcome!
Pull up a chair and read everything you can find that's been compiled here for sufferers and supporters. We're here to help. Check out our Family Services Team at the OUCH website, in the menus above the map.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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THEDONA
Guest
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Re: New board specifically for supporters!
« Reply #21 on: Jun 18th, 2002, 5:26pm » |
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 Help! My husband was just diagnosed with Cluster Headaches. It was a guess on the doctors part. So please those of you that know could you answer the following questions. Do they occur at anytime of day and sometimes many times. Do they stop only with pain medication. Does it take several doses to make them stop. Does anyone you know have the headaches without the other symptoms? Do they just start out of no where. This whole mess started for us 8 days ago. Everything I have read doesn't seem to fit the Headache profile that my husband has. If you know the answer please help ???
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Dswife
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Re: New board specifically for supporters!
« Reply #22 on: Jun 18th, 2002, 8:53pm » |
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Hey, I think you came to the right place if your husband's doctor suspects he has clusters.
I'll share my experience with you, and answer your questions according to what I've found to be true. (I'm the wife of a c.head too.)
Yes, they can occur at any time of the day or night. However, they don't usually respond to "traditional" headache medications. And after a while they would probably have some sort of pattern. Does he just have them at night? Or a certain time of day? My husband is a chronic sufferer, and he is in the 4th year of his cycle.
What is your husband's headache profile? That might make it easier for the people here to answer the questions you have.
Hang in there...there is hope.
Jenny
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kaos
Guest
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Re: New board specifically for supporters!
« Reply #23 on: Jun 26th, 2002, 7:26pm » |
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[color=Purple][/color]
Greetings to all supporters from New Zealand.
Great to have this site.
I don't have much to support with, but find that living day at a time is too long - minute at a time seems to work best, that way we get a few good minutes in every day even if they're bad days.
It's easy to get lost in the doom and despair and miss the odd moment of happiness, and they do occur!
In the midst of all this anguish, a strange thing happened. A horse, long abused by its owners arrived at our place to use the paddock by the house. He was dropped off there and no-one came back to check on him.A bit of a farmer in my past, I couldn't ignore this poor fellow, and took time to check him out. He'd been bitten all over by a particulary nasty stallion, had been beaten mercilessly, and was to be fattened for dog food!!
NO!!!! Off to the vet - (more medical expenses?) wormed him and fed him regularly. Three days later he seemed to snap out of his misery and decided that not all humans were a bad lot. Our daughter arrived and bathed him, and after that, he wouldn't leave me alone. I call him Follow now as he had no name, and this is what he does.
Turns out he's a thorobred and had fallen on hard times when a teenage owner left for education. He passed into cruel hands and ended up with us.
It's strange how it has given us something new and exciting to focus on. It'll be summer B4 I can ride him, he's so thin, but he'll bring us moments of joy in the summer. It was good to do something for him and see a result. He's definitely getting fatter.
Funny how things come along at times when you need them to?
Even if you're not loooking for them.
This site is good! I'm a freelance writer, so if I can be of any assistance, just let me know.
Kind thoughts;
Love, peace, health and happiness always. Kaos
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kristi
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Re: New board specifically for supporters!
« Reply #24 on: Jun 27th, 2002, 9:46pm » |
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Thank you Kaos, for posting such a touching story. My father always said God will give us something, when we most need it, to help us remember what is really important and where we are supposed to place our focus in life. I would say then that God is blessing you through Follow.
PFDAN!
K
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