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UnsolvedEquation
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My local neurologist said he attended a conference and they devoted some time discussing cluster headaches. He said a recent study involving 80 epesodic cluster patients revealed that over 80% had sleep apnea which was not previously diagnosed. During sleep, your oxygen levels may become decreased which may contribute to cluster headaches. Do you snore ? Have you ever woke up with shortness of breath or even gasping for air ? Well, I do snore softly but I never remember having trouble breathing or gasping for air. I am going to have a test in the 'sleep lab' at my local hospital this week to find out if I have sleep apnea. Treating sleep apnea may help with clusters !
Any thoughts on this ? Please reply 
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cathy
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Re: New info from my neuro >>
« Reply #1 on: Sep 29th, 2003, 1:30pm » |
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Yeah I remember Wes waking up breathless and short of breath......he was okay once I took the pillow off his face.... ;D
Seriously though, I have heard this somewhere before, but it's like the chicken and the egg syndrome isn't it...maybe the CH causes the Apnea...just a thought....I also heard that for some people CH symptoms can be brought on by lack of calcium....
Cathy
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UnsolvedEquation
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Re: New info from my neuro >>
« Reply #2 on: Sep 29th, 2003, 1:32pm » |
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I don't know about the Calcium thing. I had kidney stones twice this year. Isn't that calcium build up ?
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Hirvimaki
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Re: New info from my neuro >>
« Reply #3 on: Sep 29th, 2003, 1:45pm » |
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When I was going through the let's-see-what-you've-got phase with the doctor, one of the things I was tested for was sleep anpea. No dice. Sleep apnea does not play a role in my CH. Although, like with most things in CH, I doubt you are going to find a consensus of "yeas" or "neas".
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Amber-Artie
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Re: New info from my neuro >>
« Reply #4 on: Sep 29th, 2003, 3:10pm » |
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Hi UE,
I have read a couple of reports about a possible relationship of sleep apnea and ch. My husband has ch and upon our request, his neurologist agreed to write a "prescription" to have him tested for sleep apnea. He has not gone in for the test yet, but I will be sure to post any useful info when he does.
Have you seen any reduction in your headaches since your RF procedure?
Best wishes to you!
Amber-Artie
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Prense
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Re: New info from my neuro >>
« Reply #5 on: Sep 29th, 2003, 5:39pm » |
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No, I don't snore...no, I don't wake up trying to catch my breath... I actually sleep pretty well. The vast majority of my attacks are during the evening... Interesting post though.
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jonny
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Re: New info from my neuro >>
« Reply #6 on: Sep 29th, 2003, 5:59pm » |
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If sleep apnea had anything to do with CH would I get CH when im awake, if so why im not sleeping.
...........................jonny
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Charlie
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Re: New info from my neuro >>
« Reply #7 on: Sep 29th, 2003, 6:01pm » |
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Never had sleep problems.
I know I snore but never short of breath.
So many new things all the time about this horror and some have to be right.
Charlie
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Ree
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Re: New info from my neuro >>
« Reply #8 on: Sep 29th, 2003, 7:20pm » |
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Dave snores so bad that... if he wasn't so cute I'd be sleepin in the guest room............Several times a night I am wacking him and trying to get him to flip over on his side............I have a sleep issue because of his snoring.. and yes sometimes it seems as if he is choking... I thought it was reflux........... very interesting information thanks U-E!...............love ree
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fubar
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Re: New info from my neuro >>
« Reply #9 on: Sep 29th, 2003, 7:32pm » |
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My neuro says the same thing... that a lot of patients discover the sleep apnea at a sleep clinic, treat it, and their headaches fade away.
-Fu
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Ree
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Re: New info from my neuro >>
« Reply #10 on: Sep 29th, 2003, 7:36pm » |
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I think they are referring to the sleep deprovation that people suffer from with the sleep apnea and the deprovation of 02 when you stop breathing jonny... its adding to the reasons why people have CH while awake. I have heard that before... Not true for everyone but true in some.......... it is very interesting ........... ree
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UnsolvedEquation
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Re: New info from my neuro >>
« Reply #11 on: Sep 29th, 2003, 7:38pm » |
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Johnny - I'm not saying that CH is caused by sleep apnea and I'm not saying that sleep apnea is caused by CH. I'm just saying that sleep apnea may just make CH worse. The depletion of oxygen during the night might be a trigger thats all. Oxygen seems to help alot of CH'ers so I thought maybe there is some connection with CH attacks at night due to the oxygen levels dropping.
If someone were to have sleep apnea and then treat it ... maybe they would have less attacks or less severe attacks. Maybe ??
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suzy617
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Re: New info from my neuro >>
« Reply #12 on: Sep 29th, 2003, 7:38pm » |
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on Sep 29th, 2003, 1:30pm, cathy wrote:Yeah I remember Wes waking up breathless and short of breath......he was okay once I took the pillow off his face.... ;D
Cathy |
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LOL Cathy!
No sleep problems here except for the CH itself.
Suzy
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BarbaraD
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Re: New info from my neuro >>
« Reply #13 on: Sep 29th, 2003, 7:40pm » |
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If snoring has anything to do with these things - my exhubby should have them BIG TIME - NOT ME!!!!!
Seriously, I think the answer back before was about right - we did this survey back some time ago and it was mixed about 50/50.
Wish you luck with the sleep survey. Maybe you'll be oneof the "lucky" ones... Hope so anyhow...
Hugs BD
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UnsolvedEquation
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Re: New info from my neuro >>
« Reply #14 on: Sep 29th, 2003, 7:52pm » |
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Guess I'll let you guys know if I have sleep apnea too in the next few days and what the doc wants to do about it. 
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ebk3
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Re: New info from my neuro >>
« Reply #15 on: Sep 29th, 2003, 8:31pm » |
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Can't imagine sleep apnea has anything to do with it. I'm very familiar, my Dad suffered from it, he never had a headache. I think you're on the wrong track.
Gene
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UnsolvedEquation
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Re: New info from my neuro >>
« Reply #16 on: Sep 29th, 2003, 11:16pm » |
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Gene ~ Like I said ... if you would've read my earlier post ... I don't think sleep apnea is causing CH and I don't think CH is causing sleep apnea. I want type all that again. Just read the above. Thanx
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Callico
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Re: New info from my neuro >>
« Reply #17 on: Sep 29th, 2003, 11:30pm » |
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My Neuro, Dr Freedom, works with sleep apnea, and has told me that he has found several CH sufferers also have apnea. He does not find a corelation between them, but tries to follow up on treating both. I used to have apnea before I went chronic, but have not had a problem with it since, maybe because Ihave forgotten what sleep is. 
jc
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Turts
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Re: New info from my neuro >>
« Reply #18 on: Sep 30th, 2003, 7:03am » |
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My first issue with this thread, is that I am CHRONICALLY SINGLE.
I dont know if I snore or choke in my sleep, and there is noone to elbow me in the ribs to let me know.
I guess I need a volunteer from the audience to help mewith this one. lol
 ( this wink id for the laaadies!!)
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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Killroy 2.0
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Re: New info from my neuro >>
« Reply #19 on: Sep 30th, 2003, 9:12am » |
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 I go for my sleep study this friday night
I snore, wake up gasping for breath all of that.
but it does not seam to go hand in hand with the clusters.
I can have one with out the other. or both!!
Gena
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Bob_Johnson
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Re: New info from my neuro >>
« Reply #20 on: Sep 30th, 2003, 9:58am » |
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I've posted a few medical journal reports on this topic. There is enough experience to justify following through with the testing your doc suggests. One of those areas just starting to get explored.
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Bob Johnson
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Zonie
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Re: New info from my neuro >>
« Reply #21 on: Sep 30th, 2003, 6:14pm » |
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on Sep 29th, 2003, 1:20pm, UnsolvedEquation wrote:My local neurologist said he attended a conference and they devoted some time discussing cluster headaches. He said a recent study involving 80 epesodic cluster patients revealed that over 80% had sleep apnea which was not previously diagnosed. During sleep, your oxygen levels may become decreased which may contribute to cluster headaches. Do you snore ? Have you ever woke up with shortness of breath or even gasping for air ? Well, I do snore softly but I never remember having trouble breathing or gasping for air. I am going to have a test in the 'sleep lab' at my local hospital this week to find out if I have sleep apnea. Treating sleep apnea may help with clusters !
Any thoughts on this ? Please reply |
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UE, Yes I have heard of this helping clusters. My sister mentioned this to me over a year ago. She had read it somewhere that people were being put on C-Paps or Bi-Paps for their sleep apnea and quiet by coincidence it had relieved cluster headaches in some of the patients. I had not heard anymore about this since my sis died August as a year ago, but my insurance won't even get oxygen for me so I'm sure that they'd never do a sleep study. I'm in a big black funk right now and have been for a couple of weeks, but I wanted to check to see how you are doing. You did not reply to Amber-Arties post and I don't feel up to looking through all of the old ones for the week right now.
I thought that you were doing really good. Has something changed.....or why are you having a sleep study done???
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