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Topic: If anyone missed my whining..... (Read 406 times) |
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Tara Ann
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If anyone missed my whining.....
« on: Sep 27th, 2003, 3:07am » |
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...here's a shot of it.
It's 4 19 am and i havent slept yet....this is my night almost every night for what seems like forever now. i get hit then its almost gone and im feeling mr sandman start ti take me away then bam another one starts ti build (as one s beginning to now) the next is worse than the one b4 (whuch is freaking me out right niw cause i know its gonna be horrid) si here i am practicly ballin cant freakin type wirth shit and spelling is a huge pet peeve of mine startung ti feek panicked cause the last one was unbareable si how can i bear anither and another thats prolly ginna be worse
k tomorrow im goonna read this an be horrified at the friggin spillin and whining i just noticed most of my o's i typed with i's so u are prolly gonna need an hour to decipherr this but im gonna post it anyyways and i dont wanna take thee time to fix it
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| « Last Edit: Sep 27th, 2003, 3:08am by Tara Ann » |
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OneEyeBlind
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Re: If anyone missed my whining.....
« Reply #1 on: Sep 27th, 2003, 4:28am » |
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PF vibes coming your way !!! Hope you get some sleep soon !! Hey, and don't worry about the spelling ... you got the first and last letter right - everyone will be able to read it !!!!!!!
Huggs
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rumplestiltskin
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a rose, by any other name, would smell as sweet.
Unless they be full of themself...a Clusterhead knows how the alfabet comes unhinged near the time of pain, close to the darkness, in the shadow of the beast.
Yer message was crystal clear.
To all of us sleepless in pane....Keep seeking the abortive and preventative that works better and better.
Wage Peace
Den
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Carl_D
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Re: If anyone missed my whining.....
« Reply #3 on: Sep 27th, 2003, 6:47am » |
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Hang tight Tara... kind of in the same boat. Head hurts, can't sleep (been up all night) and have rehearsal early today...
I wanna sleep, I want my head to be numb and feel nothing...
Sucks to be us
Peace,
CD
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ShariRae
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Re: If anyone missed my whining.....
« Reply #4 on: Sep 27th, 2003, 6:48am » |
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taraann..
Keep fighting till the beast turns & runs..and as Den said..keep seeking the preventative & abortive that will do the trick for you...heres hopin you are pain free very soon.
Huggs
Shari
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| « Last Edit: Sep 27th, 2003, 12:28pm by ShariRae » |
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BarbaraD
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Hugs to ya
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Re: If anyone missed my whining.....
« Reply #5 on: Sep 27th, 2003, 8:05am » |
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Tara
We've all been there so whine away.... and it's not whinning -- it's VENTING.. The no sleep thing is one of the worst things about this.... We need the rest and the damn beast won't let us rest.
I've been on a sleep depravation diet all week and this morning I'm down to shadows, so I'm hoping - hoping - hoping...... but afraid to hope too much.
Have you done the O2. Sometimes I can catch a catnap sitting up with the O2 on. Not much but it's better than nothing.
Hoping you get a break soon.....
Hugs your way.... BD
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Prense
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Re: If anyone missed my whining.....
« Reply #6 on: Sep 27th, 2003, 8:13am » |
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I am sorry you are getting hit so hard. Is there nothing other than frozen peas in a sock that helps you? I really hope you can find something that works soon! Hang in there and keep right on whining! 
Chris
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Jimi
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Re: If anyone missed my whining.....
« Reply #7 on: Sep 27th, 2003, 9:04am » |
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Hi Tara,
One thing you might try. My last cycle was that way. I was having one every 1 1/2 hrs, sucked 02, went back to sleep etc, etc. I had some Amerge pills, (another triptan like Imitrex) I took one before bedtime and woke up at 6 this next morning. Granted it was toward the end of my cycle so maybe the beast was gettting weaker and ready to leave, I don't know. Anyway, it would probably be worth a shot at this point.
Good luck,
Jimi 
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goaway
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Re: If anyone missed my whining.....
« Reply #8 on: Sep 27th, 2003, 9:07am » |
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I absolutely
when you're in pain. Feel better real soon!!!
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Jackie
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Re: If anyone missed my whining.....
« Reply #9 on: Sep 27th, 2003, 9:11am » |
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Tara....
Jimi has given you a good tip. Blake does the same thing with Zomig. It usually allows him 6 to 8 hours of good sleep.
Good Luck, Sweetie..
Jacks 
HI Jimi.....good to see you... 
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Cerberus
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Re: If anyone missed my whining.....
« Reply #10 on: Sep 27th, 2003, 9:55am » |
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Damn the Beast!!!!!!
Sorry Taraann I really hope yoou feel better soon, I'm with ya tho....fo real.
Ramon
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CathiP
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Re: If anyone missed my whining.....
« Reply #11 on: Sep 27th, 2003, 10:39am » |
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aww, Tara...and we had chatted about your uneventful day, too!
Sending you vibes....and juju,,and hoping Sam is home to help with the kids today...
Be PF, Tara......and get some rest!
 Cathi
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Tara Ann
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Re: If anyone missed my whining.....
« Reply #12 on: Sep 27th, 2003, 10:42am » |
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Thank you everyone! I got a couple hours of sleep this morning but woke up with a little pressure (fingers crossed it stays just that). I just LOVE everyone here, always jump in to support even if you are in pain yourself, socaring it's wonderful.
As for your questions concerning meds, I have a prescription for Atavan that I'm getting filled today (it's for sleep). And my GP won't prescribe me O2 he says I get enough O2 when i breathe regular air, but I have an appt with a HA specialist in January so I'm just playing the waiting game.
Thank you again I LUV you all and I hope and pray everyone has a lovely PF day and night!
P.S. I actually considered going back and fixing my spelling errors on my origional post, that is how anal I am.
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Prense
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Re: If anyone missed my whining.....
« Reply #13 on: Sep 27th, 2003, 7:14pm » |
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on Sep 27th, 2003, 10:42am, taraann wrote:| And my GP won't prescribe me O2 he says I get enough O2 when i breathe regular air, but I have an appt with a HA specialist in January so I'm just playing the waiting game. |
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That is BS Tara! Is it practical to see another GP? Bring him/her O2 info from here and OUCH, and they have to be hard pressed not to prescribe it for you. Be demanding! That is what it took for me to get the ball rolling here. 3 doctors later. ;D
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Callico
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Re: If anyone missed my whining.....
« Reply #14 on: Sep 28th, 2003, 1:20am » |
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Hi Tara,
Missed checking in, so I missed out on your post B4 now. I'm in the same boat with the night time HA's, and have given up on trying to go to bed until I know the last one is gone. I can't handle them when they wake me from sleep. I do much better just staying up, but then, I don't have to keep up with kids in the AM.
Print out the O2 info and take it to your Dr. and suggest he get up to speed on proper treatments for your problem or take him to the State Medical Board for malpractice. There is enough literature out there showing the therapeutic value of O2 for CH that it is negligent for him to not prescribe it unless he has a medical reason not to, i.e. you are allergic to O2.
You are in our prayers.
Jerry
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Tara Ann
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It's always darkest before the dawn.
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Re: If anyone missed my whining.....
« Reply #15 on: Sep 28th, 2003, 12:19pm » |
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I agree Chris that it is BS....I've tried showning him printouts from here...BillyJ gave me a good link from a website from a hospital about CH meds (it includes O2) so I'm hoping he will take it more seriously. Now it's a matter of getting my car fixed so I can make another appt with him....If its not one obstacle its another.
I'm right there with ya Jerry with not wanting to even try to go to sleep during the night alot. But I did actually get some sleep last night (first time in a long time) SO I actually feel somewhat rested today.
How are you guys doing?
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Tara Ann
CH.com Alumnus
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It's always darkest before the dawn.
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Re: If anyone missed my whining.....
« Reply #16 on: Sep 28th, 2003, 12:21pm » |
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on Sep 27th, 2003, 8:05am, BarbaraD wrote:Tara
We've all been there so whine away.... and it's not whinning -- it's VENTING.. The no sleep thing is one of the worst things about this.... We need the rest and the damn beast won't let us rest.
I've been on a sleep depravation diet all week and this morning I'm down to shadows, so I'm hoping - hoping - hoping...... but afraid to hope too much.
Have you done the O2. Sometimes I can catch a catnap sitting up with the O2 on. Not much but it's better than nothing.
Hoping you get a break soon.....
Hugs your way.... BD |
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Did you get a break Barbara?
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cootie
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Re: If anyone missed my whining.....
« Reply #17 on: Sep 28th, 2003, 2:00pm » |
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How you 'doin' now ? Hope yer doin better......hope ya educated yer doc on the O2....sure have heard way too much good about it for yer doc ta say what he said.....so hopein he changes his ideas on that one ! Good luck to ya and hope yer gettin sum sleep too ! Good PF Tara vibes Pam
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