Author |
Topic: Response from World Headache alliance to OUCH (Read 1239 times) |
|
don
Guest
|
 |
Response from World Headache alliance to OUCH
« on: Sep 25th, 2003, 8:29am » |
 Quote  Modify
 Remove
|
Dear Don,
Thanks for writing regarding membership in World Headache Alliance. I'm sorry you have been having trouble. Our technical staff are attempting to discover and correct the problem but it is great to know that the discussion board offers a positive alternative to facilitate communication.
I am so glad you wrote. I actually had it on my list of things to do. Dr. Fred Sheftell, WHA's chairman, and a number of our member representatives were present at the Cluster Headache programme in Rome and were inspired, to say the least!
I had corresponded with Bennie Taylor over the last couple of years and we spoke about OUCH considering membership in WHA. Unfortunately at that time, Bennie reported that your board was not interested but would consider it possibly in the future.
I have attached a membership application form. If you have any questions, please do not hesitate to contact me. You can reach me directly at karyshannon@sympatico.ca or by phone at +1 905 333-8185; fax +1 905 637-5254.
If you have a moment, I'd also be happy to share with you news of Lifting The Burden, the global campaign to reduce the burden of headache worldwide. Lifting The Burden is a joint enterprise of International Headache Society, European Headache Society and WHA in collaboration with the World Health Organization. You can see some of the preliminary information at www.l-t-b.org.
I hope you and OUCH organizations around the world will find value in becoming an integral part of WHA.
With best wishes,
Kary
Kary Shannon
Chief Operating Officer
WORLD HEADACHE ALLIANCE
3288 Old Coach Road
Burlington ON Canada L7N 3P7
Tel: +1 905 333-8185
Fax: +1 905 637-5254
Email: karyshannon@w-h-a.org
Website: www.w-h-a.org
|
|
 IP Logged |
|
|
|
CC
Guest
|
|
Re: Response from World Headache alliance to OUCH
« Reply #1 on: Sep 25th, 2003, 8:34am » |
Quote Modify
Remove
|
holy shit batman, thats only 25 minutes up the road from me!!!
i best be getting in contact with that person! thank you very much for that info don!!!
|
|
IP Logged |
|
|
|
BobG
New Board Hall of Famer
Gender: 
Posts: 5747
|
|
Re: Response from World Headache alliance to OUCH
« Reply #2 on: Sep 25th, 2003, 8:35am » |
Quote Modify
|
Dang 
This gets bigger and better every day.
Congratulations to all who have worked so hard for OUCH.
Thank you 
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
don
Guest
|
|
Re: Response from World Headache alliance to OUCH
« Reply #3 on: Sep 25th, 2003, 8:37am » |
Quote Modify
Remove
|
The potential for this is huge.
The UK has Goadsby.
I'll go out on a limb here and say we may have Dr. Sheftell.
With Dr. Sheftell comes, Dr. Rappaport, Dr. Bigel and the staff of the New England Headache Center and Research Institute.
|
| « Last Edit: Sep 25th, 2003, 8:39am by don » |
IP Logged |
|
|
|
catlind
CH.com Alumnus
New Board Hall of Famer
Taz taught me the cluster dance
  
Gender: 
Posts: 3433
|
|
Re: Response from World Headache alliance to OUCH
« Reply #4 on: Sep 25th, 2003, 8:44am » |
Quote Modify
|
And everyone thought that the board and officers of OUCH didn't do any work 
The organization really is moving into the big leagues. It's time we get our ducks in a row and show them we are an intelligent knowledgeable group of people who have the drive and determination to make CH a thing of the past.
All Aboard!!!!!!!!!!!!!!!!
Cat
|
|
IP Logged |
A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
|
|
|
JDH
CH.com Alumnus
New Board Hall of Famer
We will get by, We will survive!
Gender:
Posts: 2453
|
|
Re: Response from World Headache alliance to OUCH
« Reply #5 on: Sep 25th, 2003, 8:48am » |
Quote Modify
|
on Sep 25th, 2003, 8:44am, catlind wrote:
All Aboard!!!!!!!!!!!!!!!!
Cat |
|
Punch my ticket, this is a ride I don't wanna miss.
Jim
|
|
IP Logged |
9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
|
|
|
don
Guest
|
|
Re: Response from World Headache alliance to OUCH
« Reply #6 on: Sep 25th, 2003, 8:51am » |
Quote Modify
Remove
|
I had a discussion with Dr. Sheftell in Rome.
His enthusiasm and respect for OUCH was obvious.
He was quick to point out that it was his Doctor that attended our convention.
Dr. Sheftell has been watching us!
|
|
IP Logged |
|
|
|
CC
Guest
|
|
Re: Response from World Headache alliance to OUCH
« Reply #7 on: Sep 25th, 2003, 8:59am » |
Quote Modify
Remove
|
Don,
If he happens to mention that he wants to meet with somebody for some tests or even just to ask some questions, i will volunteer for sure, like i said he is just a stones throw away from me!!
|
|
IP Logged |
|
|
|
ozzman
New Board Old Timer
We who are not as others -- Chaos A.D. --Sepultura
Gender:
Posts: 299
|
|
Re: Response from World Headache alliance to OUCH
« Reply #9 on: Sep 25th, 2003, 9:38am » |
Quote Modify
|
This is excellent Don. Great work, we are moving into uncharted territory, but good territory nonetheless.
Awareness by Physicians and Neurologists (at the local level) seems to be the major roadblock for treatment. Who is the governing body for Neurologists (much like AMA). is it IHS?
My thought here is that some governing body needs to communicate (force feed?) its community what the symptoms, treatments and guidelines are. I do understand that the IHS might be that body and that you can't make Neuros to read and apply the information, but I think it is inexcusable for Neurologists to still confuse CH with migraines, or to call them Cluster-Migraines or even worse to under-medicate their patients!!
I do realize that this were we individuals, and local chapters need to do the legwork, but in most cases, our "word" will not be sufficient for most Docs. They may say like my Neuro (Selected best Neuro in New Jersey by New Jersey Mag), when I presented him the report from the convention, well that's nice (without opening) adding "I'll just put it in your medical file.." !!!!
Where I'm going with this rambling is basically, association with a leading Neuro and/or organizations (plural) is possibly the best step we can take now to gain credibility, locally and nationally.
I ran out of brain ink, so I'll just leave it at that.
Ozzy
|
|
IP Logged |
"Always remember rule ONE" --Lu-Tze
|
|
|
Cerberus
New Board Hall of Famer
Whomever said that two heads are better than one?
Gender:
Posts: 2117
|
|
Re: Response from World Headache alliance to OUCH
« Reply #10 on: Sep 25th, 2003, 10:30am » |
Quote Modify
|
Round trip ticket for me please.....woohooo!
Ramon
|
|
IP Logged |
I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
|
|
|
suzy617
CH.com Alumnus
New Board Hall of Famer
Love is friendship set on fire
Gender:
Posts: 1902
|
|
Re: Response from World Headache alliance to OUCH
« Reply #11 on: Sep 25th, 2003, 10:47am » |
Quote Modify
|
Awesome news Don!
Suzy
|
|
IP Logged |
When God measures men, He puts the tape around the heart, not the head.
|
|
|
OneEyeBlind
New Board Hall of Famer
Yea, I can do this
Posts: 574
|
|
Re: Response from World Headache alliance to OUCH
« Reply #12 on: Sep 25th, 2003, 10:48am » |
Quote Modify
|
Rocking !!!!!!!!!!
|
|
IP Logged |
One cannot step twice in the same river, for fresh waters are forever flowing around us.
|
|
|
Elaine
Guest
|
|
Re: Response from World Headache alliance to OUCH
« Reply #13 on: Sep 25th, 2003, 11:36am » |
Quote Modify
Remove
|
|
|
IP Logged |
|
|
|
forgetfulnot
Guest
|
|
Re: Response from World Headache alliance to OUCH
« Reply #14 on: Sep 25th, 2003, 11:54am » |
Quote Modify
Remove
|
Way to go Don, so much better than Dr. Phill or Oprah.
Lee
|
|
IP Logged |
|
|
|
BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
Gender:
Posts: 5164
|
|
Re: Response from World Headache alliance to OUCH
« Reply #15 on: Sep 25th, 2003, 12:12pm » |
Quote Modify
|
So has the BOD voted to join his organization yet?
We need to join ALL the headache organizations to get OUCH known in the headache community so we can get OUR word out. Once we're members of these groups we can have OUR say.
Great work Don..... You're a good man!!!
Hugs BD
|
|
IP Logged |
What don't kill ya, Makes ya stonger!
|
|
|
don
Guest
|
|
Re: Response from World Headache alliance to OUCH
« Reply #16 on: Sep 25th, 2003, 12:26pm » |
Quote Modify
Remove
|
The discussion is open with the BoD if I can get them to respond we'll have an answer.
|
|
IP Logged |
|
|
|
Hirvimaki
New Board Hall of Famer
Quod me nutrit me destruit.
  
Gender:
Posts: 1105
|
|
Re: Response from World Headache alliance to OUCH
« Reply #17 on: Sep 25th, 2003, 12:41pm » |
Quote Modify
|
Yeah, Don! Awesome, wonderful news. Let me know if there is anything I can do to help (as per our precious conversations...)
PB
|
|
IP Logged |
"What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others."
|
|
|
Hirvimaki
New Board Hall of Famer
Quod me nutrit me destruit.
Gender:
Posts: 1105
|
|
Re: Response from World Headache alliance to OUCH
« Reply #18 on: Sep 25th, 2003, 12:42pm » |
Quote Modify
|
Er, previous, not precious... LMAO!
|
|
IP Logged |
"What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others."
|
|
|
BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
Gender:
Posts: 5164
|
|
Re: Response from World Headache alliance to OUCH
« Reply #19 on: Sep 25th, 2003, 12:48pm » |
Quote Modify
|
Geezzz! so vote already.... What's to discuss --- Let's join.....
Hugs BD
|
|
IP Logged |
What don't kill ya, Makes ya stonger!
|
|
|
don
Guest
|
|
Re: Response from World Headache alliance to OUCH
« Reply #20 on: Sep 25th, 2003, 1:00pm » |
Quote Modify
Remove
|
We can not vote when members of the BoD do not respond. We need a quorum.(SP?)
|
|
IP Logged |
|
|
|
BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
Gender:
Posts: 5164
|
|
Re: Response from World Headache alliance to OUCH
« Reply #21 on: Sep 25th, 2003, 1:04pm » |
Quote Modify
|
Calling All BOD members --- WE NEED A 'YES' VOTE HERE ASAP......
BD
|
|
IP Logged |
What don't kill ya, Makes ya stonger!
|
|
|
jonny
Guest
|
|
Re: Response from World Headache alliance to OUCH
« Reply #22 on: Sep 25th, 2003, 2:01pm » |
Quote Modify
Remove
|
on Sep 25th, 2003, 12:41pm, Hirvimaki wrote:| Yeah, Don! if there is anything I can do to help (as per our precious conversations...) |
|
BWWWAAAA!!!! ;D
............................jonny
|
|
IP Logged |
|
|
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
Gender:
Posts: 1406
|
|
Re: Response from World Headache alliance to OUCH
« Reply #23 on: Sep 25th, 2003, 3:17pm » |
Quote Modify
|
on Sep 25th, 2003, 8:29am, don wrote:Dear Don,
I had corresponded with Bennie Taylor over the last couple of years and we spoke about OUCH considering membership in WHA. Unfortunately at that time, Bennie reported that your board was not interested but would consider it possibly in the future.
|
|
First of all, I want to congradulate the BOD and those individuals for the recent strides being made.
I would like to ask a question though. If the WHA has been trying to get OUCH to join for a couple years, why is everyone so happy as if OUCH has made some great breakthrough? Why didn't they join two years ago?
Could have "had" Dr. Sheftell a couple years ago?
What are we celebrating? The fact that you finally decided to join?
I'm not trying to knock anyone or take anything away from what is now happening and the work that is being done. I'm trying to find out if there has been some big shift in the direction of OUCH....
PF
|
|
IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
don
Guest
|
|
Re: Response from World Headache alliance to OUCH
« Reply #24 on: Sep 25th, 2003, 3:29pm » |
Quote Modify
Remove
|
I believe it's just a revival of enthusiasm.
We haven't joined yet. The vote hasn't taken place.
Has there been a shift in the direction of OUCH?
I think being invited to the "Cluster Club" in Rome sort of answers that one. We went.
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss