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Topic: Response from World Headache alliance to OUCH (Read 1250 times) |
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don
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Response from World Headache alliance to OUCH
« on: Sep 25th, 2003, 8:29am » |
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Dear Don,
Thanks for writing regarding membership in World Headache Alliance. I'm sorry you have been having trouble. Our technical staff are attempting to discover and correct the problem but it is great to know that the discussion board offers a positive alternative to facilitate communication.
I am so glad you wrote. I actually had it on my list of things to do. Dr. Fred Sheftell, WHA's chairman, and a number of our member representatives were present at the Cluster Headache programme in Rome and were inspired, to say the least!
I had corresponded with Bennie Taylor over the last couple of years and we spoke about OUCH considering membership in WHA. Unfortunately at that time, Bennie reported that your board was not interested but would consider it possibly in the future.
I have attached a membership application form. If you have any questions, please do not hesitate to contact me. You can reach me directly at karyshannon@sympatico.ca or by phone at +1 905 333-8185; fax +1 905 637-5254.
If you have a moment, I'd also be happy to share with you news of Lifting The Burden, the global campaign to reduce the burden of headache worldwide. Lifting The Burden is a joint enterprise of International Headache Society, European Headache Society and WHA in collaboration with the World Health Organization. You can see some of the preliminary information at www.l-t-b.org.
I hope you and OUCH organizations around the world will find value in becoming an integral part of WHA.
With best wishes,
Kary
Kary Shannon
Chief Operating Officer
WORLD HEADACHE ALLIANCE
3288 Old Coach Road
Burlington ON Canada L7N 3P7
Tel: +1 905 333-8185
Fax: +1 905 637-5254
Email: karyshannon@w-h-a.org
Website: www.w-h-a.org
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Re: Response from World Headache alliance to OUCH
« Reply #1 on: Sep 25th, 2003, 8:34am » |
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holy shit batman, thats only 25 minutes up the road from me!!!
i best be getting in contact with that person! thank you very much for that info don!!!
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BobG
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Re: Response from World Headache alliance to OUCH
« Reply #2 on: Sep 25th, 2003, 8:35am » |
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Dang 
This gets bigger and better every day.
Congratulations to all who have worked so hard for OUCH.
Thank you 
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don
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Re: Response from World Headache alliance to OUCH
« Reply #3 on: Sep 25th, 2003, 8:37am » |
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The potential for this is huge.
The UK has Goadsby.
I'll go out on a limb here and say we may have Dr. Sheftell.
With Dr. Sheftell comes, Dr. Rappaport, Dr. Bigel and the staff of the New England Headache Center and Research Institute.
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| « Last Edit: Sep 25th, 2003, 8:39am by don » |
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catlind
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Re: Response from World Headache alliance to OUCH
« Reply #4 on: Sep 25th, 2003, 8:44am » |
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And everyone thought that the board and officers of OUCH didn't do any work 
The organization really is moving into the big leagues. It's time we get our ducks in a row and show them we are an intelligent knowledgeable group of people who have the drive and determination to make CH a thing of the past.
All Aboard!!!!!!!!!!!!!!!!
Cat
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JDH
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Re: Response from World Headache alliance to OUCH
« Reply #5 on: Sep 25th, 2003, 8:48am » |
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on Sep 25th, 2003, 8:44am, catlind wrote:
All Aboard!!!!!!!!!!!!!!!!
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Jim
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don
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Re: Response from World Headache alliance to OUCH
« Reply #6 on: Sep 25th, 2003, 8:51am » |
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I had a discussion with Dr. Sheftell in Rome.
His enthusiasm and respect for OUCH was obvious.
He was quick to point out that it was his Doctor that attended our convention.
Dr. Sheftell has been watching us!
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Re: Response from World Headache alliance to OUCH
« Reply #7 on: Sep 25th, 2003, 8:59am » |
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Don,
If he happens to mention that he wants to meet with somebody for some tests or even just to ask some questions, i will volunteer for sure, like i said he is just a stones throw away from me!!
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ozzman
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Re: Response from World Headache alliance to OUCH
« Reply #9 on: Sep 25th, 2003, 9:38am » |
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This is excellent Don. Great work, we are moving into uncharted territory, but good territory nonetheless.
Awareness by Physicians and Neurologists (at the local level) seems to be the major roadblock for treatment. Who is the governing body for Neurologists (much like AMA). is it IHS?
My thought here is that some governing body needs to communicate (force feed?) its community what the symptoms, treatments and guidelines are. I do understand that the IHS might be that body and that you can't make Neuros to read and apply the information, but I think it is inexcusable for Neurologists to still confuse CH with migraines, or to call them Cluster-Migraines or even worse to under-medicate their patients!!
I do realize that this were we individuals, and local chapters need to do the legwork, but in most cases, our "word" will not be sufficient for most Docs. They may say like my Neuro (Selected best Neuro in New Jersey by New Jersey Mag), when I presented him the report from the convention, well that's nice (without opening) adding "I'll just put it in your medical file.." !!!!
Where I'm going with this rambling is basically, association with a leading Neuro and/or organizations (plural) is possibly the best step we can take now to gain credibility, locally and nationally.
I ran out of brain ink, so I'll just leave it at that.
Ozzy
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Cerberus
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Re: Response from World Headache alliance to OUCH
« Reply #10 on: Sep 25th, 2003, 10:30am » |
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Round trip ticket for me please.....woohooo!
Ramon
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Re: Response from World Headache alliance to OUCH
« Reply #11 on: Sep 25th, 2003, 10:47am » |
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Awesome news Don!
Suzy
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Re: Response from World Headache alliance to OUCH
« Reply #12 on: Sep 25th, 2003, 10:48am » |
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Rocking !!!!!!!!!!
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Re: Response from World Headache alliance to OUCH
« Reply #13 on: Sep 25th, 2003, 11:36am » |
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forgetfulnot
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Re: Response from World Headache alliance to OUCH
« Reply #14 on: Sep 25th, 2003, 11:54am » |
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Way to go Don, so much better than Dr. Phill or Oprah.
Lee
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BarbaraD
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Re: Response from World Headache alliance to OUCH
« Reply #15 on: Sep 25th, 2003, 12:12pm » |
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So has the BOD voted to join his organization yet?
We need to join ALL the headache organizations to get OUCH known in the headache community so we can get OUR word out. Once we're members of these groups we can have OUR say.
Great work Don..... You're a good man!!!
Hugs BD
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don
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Re: Response from World Headache alliance to OUCH
« Reply #16 on: Sep 25th, 2003, 12:26pm » |
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The discussion is open with the BoD if I can get them to respond we'll have an answer.
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Hirvimaki
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Re: Response from World Headache alliance to OUCH
« Reply #17 on: Sep 25th, 2003, 12:41pm » |
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Yeah, Don! Awesome, wonderful news. Let me know if there is anything I can do to help (as per our precious conversations...)
PB
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Hirvimaki
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Re: Response from World Headache alliance to OUCH
« Reply #18 on: Sep 25th, 2003, 12:42pm » |
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Er, previous, not precious... LMAO!
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"What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others."
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BarbaraD
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Re: Response from World Headache alliance to OUCH
« Reply #19 on: Sep 25th, 2003, 12:48pm » |
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Geezzz! so vote already.... What's to discuss --- Let's join.....
Hugs BD
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don
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Re: Response from World Headache alliance to OUCH
« Reply #20 on: Sep 25th, 2003, 1:00pm » |
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We can not vote when members of the BoD do not respond. We need a quorum.(SP?)
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BarbaraD
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Re: Response from World Headache alliance to OUCH
« Reply #21 on: Sep 25th, 2003, 1:04pm » |
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Calling All BOD members --- WE NEED A 'YES' VOTE HERE ASAP......
BD
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jonny
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Re: Response from World Headache alliance to OUCH
« Reply #22 on: Sep 25th, 2003, 2:01pm » |
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on Sep 25th, 2003, 12:41pm, Hirvimaki wrote:| Yeah, Don! if there is anything I can do to help (as per our precious conversations...) |
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BWWWAAAA!!!! ;D
............................jonny
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Re: Response from World Headache alliance to OUCH
« Reply #23 on: Sep 25th, 2003, 3:17pm » |
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on Sep 25th, 2003, 8:29am, don wrote:Dear Don,
I had corresponded with Bennie Taylor over the last couple of years and we spoke about OUCH considering membership in WHA. Unfortunately at that time, Bennie reported that your board was not interested but would consider it possibly in the future.
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First of all, I want to congradulate the BOD and those individuals for the recent strides being made.
I would like to ask a question though. If the WHA has been trying to get OUCH to join for a couple years, why is everyone so happy as if OUCH has made some great breakthrough? Why didn't they join two years ago?
Could have "had" Dr. Sheftell a couple years ago?
What are we celebrating? The fact that you finally decided to join?
I'm not trying to knock anyone or take anything away from what is now happening and the work that is being done. I'm trying to find out if there has been some big shift in the direction of OUCH....
PF
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don
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Re: Response from World Headache alliance to OUCH
« Reply #24 on: Sep 25th, 2003, 3:29pm » |
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I believe it's just a revival of enthusiasm.
We haven't joined yet. The vote hasn't taken place.
Has there been a shift in the direction of OUCH?
I think being invited to the "Cluster Club" in Rome sort of answers that one. We went.
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