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Topic: OPRAH: Our email Target this week (Read 1376 times) |
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SommelierCH
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OPRAH: Our email Target this week
« on: Sep 19th, 2003, 10:25am » |
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This is the Oprah: “email the producers with a great show idea” link.
http://www.oprah.com/email/reach/email_showideas.jhtml
Do we have a great idea for a show or what???
Tell a small part of your story in two paragraphs. The next day email another part of your story. Do this for 7 days. THEY WILL HEAR US!!!
These categories might help to organize your thoughts:
How we support and love each other.
The strength of the Supporters (you are angels for all of us).
Short bio’s of personal hell.
Hassles with Doctors.
Hassles with Insurance.
Hassles with Employers.
Definition of our pain.
How we deal with our families, how our families deal with us.
Remedies we’ve tried, to relieve the pain.
Scripts given for meds that do nothing for CH.
Meds that fuck up your life.
Financial burden of CH.
The fact that people have found better relief from their pain, from a lay group of anonymous strangers on the web, than they have from the trusted Medical Community.
Any life-threatening misdiagnosis’.
Suicide.
Our plan is to have all the ClusterHeads and Supporters around the world focus on one Target every week, with a barrage of email. We only want them to know… that we exist.
THEY WILL HEAR US
There will be 52 different Targets every year!!! WE WILL BE HEARD!!! WE DO EXIST!!!
David J.
If any of the targets piss you off, just sit it out till the next week. Don't fuck with us, don't derail this mission, go find some insurance prick to fuck with. Or tell me that you can cure me today!!!!!!!!!!!!!!!!
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River_Rat
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Re: OPRAH: Our email Target this week
« Reply #1 on: Sep 19th, 2003, 12:26pm » |
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I swear to GOD if you, my fellow clusterheads don't do this simple task then you must not care, so do this or just sit quietly in the corner and enjoy your headache.
LEE
If nothing else maybe we can get some donations to OUCH
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hopefull
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Re: OPRAH: Our email Target this week
« Reply #2 on: Sep 19th, 2003, 12:31pm » |
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I think all this is great and i hope it works...
But I have to say... hope they don't drop in when theres fighting going on cause then we just look really bad and won't be taken serious....
I feel this has already happen....
hope I'm wrong....
Thank you for working so hard at this...
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OneEyeBlind
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Re: OPRAH: Our email Target this week
« Reply #3 on: Sep 19th, 2003, 4:04pm » |
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Hey Lee, gotta agree ...........
Get off your butts, and send those emails !!!!!!!
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Miss_Deleny
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Re: OPRAH: Our email Target this week
« Reply #4 on: Sep 20th, 2003, 11:19am » |
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Sorry, but I think this deserves to be bumped up!
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Cerberus
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Re: OPRAH: Our email Target this week
« Reply #5 on: Sep 20th, 2003, 11:57am » |
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getting right on it......
Bump!
Ramon
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5-string
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Re: OPRAH: Our email Target this week
« Reply #6 on: Sep 20th, 2003, 12:26pm » |
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Great idea!!
What the hell, its worth a try. I'm in..
..Mark...
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Ree
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Re: OPRAH: Our email Target this week
« Reply #7 on: Sep 20th, 2003, 5:44pm » |
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Ive done it never heard back but Im willing to give it a go again........... she had a woman in her mag last month with bad CH's... there was actually an article about it... ree
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BobG
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Re: OPRAH: Our email Target this week
« Reply #8 on: Sep 21st, 2003, 4:16am » |
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Done
and bumped back to the top.
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SommelierCH
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Re: OPRAH: Our email Target this week
« Reply #9 on: Sep 21st, 2003, 7:26am » |
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Thank you, River_Rat, hopefull, OneEyeBlind, Miss_Deleny, Cerberus, 5-string, Ree and my friend who has supported me, many times, and is willing to try anything, no matter how small it seems, to get the word out.. Bob G.
If any of you do email this weeks Target, let us know with a reply. This would be a good safe starting post for some of you Newbies and Lurkers, to show your face and let us know that you are out there.
A reply to this post could be as simple as “done”. Seems simple, but in truth, that one word reply keeps this post alive, and encourages other ClusterHeads and Supporters to give it a shot.
Thanks again kids,
David J.
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Jackie
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Re: OPRAH: Our email Target this week
« Reply #10 on: Sep 21st, 2003, 7:39am » |
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O'Sommy.... 
I 'did the deed' and have received a reply(in the form of a canned e-mail). At least we're giving it a go....
If we keep nagging long enough and hard enough somebody is gonna listen....surely!!!!
Jacks 
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BarbaraD
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Re: OPRAH: Our email Target this week
« Reply #11 on: Sep 21st, 2003, 7:44am » |
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I sent my request. Now we need about 1000 others to do the same. I think this is a great idea. Numbers...... If enough of us yell - someone will eventually get the message....
Hugs BD
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DJ
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Re: OPRAH: Our email Target this week
« Reply #12 on: Sep 21st, 2003, 8:55am » |
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Done. ;D
If I may suggest another category for people to write on to add to the list you've suggested David, although it is much more generic....
How about internet medical support groups in general?
These shows might not want to spend the time and effort to do an entire show on cluster headaches, specifically, but would they be more willing to spend the time and effort to do a show on "internet support groups" in general?
If we could convince them to do a show about internet support groups "in general", we might be able to get them to make us a MAJOR PLAYER in the story rather than the ONLY PLAYER?
Baby steps.
Just a thought.....
DJ
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Jackie
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Re: OPRAH: Our email Target this week
« Reply #13 on: Sep 21st, 2003, 9:17am » |
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Good thinking, DJ,... good idea.....
Recognition, awareness, publicity....Wherever, whenever, however.....that's one of the goals here!!!
Jacks
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Prense
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Re: OPRAH: Our email Target this week
« Reply #14 on: Sep 21st, 2003, 11:05am » |
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Done! ;D
Thank you!
Your message was successfully sent to Oprah.com. Thanks for your contribution!
We appreciate your message! Unfortunately, we cannot guarantee a personal response to every e-mail that we receive. Please read our Frequently Asked Questions to see if we've already answered your question or Search for another topic that interests you.
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Miss_Deleny
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Re: OPRAH: Our email Target this week
« Reply #15 on: Sep 21st, 2003, 11:12am » |
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E-mail sent!
~April~
One for the supporters! 
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surfshi
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Re: OPRAH: Our email Target this week
« Reply #16 on: Sep 21st, 2003, 10:47pm » |
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DONE, HELLO ALL....SURF
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Charlie
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Re: OPRAH: Our email Target this week
« Reply #17 on: Sep 21st, 2003, 11:52pm » |
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Me too.
Interesting idea DJ
Charlie
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Miss_Deleny
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Re: OPRAH: Our email Target this week
« Reply #18 on: Sep 22nd, 2003, 7:44am » |
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Ok, I recieved a "reply" from Oprah:
Dear April,
Thank you for your e-mail! Your message is important to us. Unfortunately, due to the volume of e-mail messages we receive every day, we cannot guarantee that you'll receive a personal response. Feel free to check out our Frequently Asked Questions for additional help.
http://www.oprah.com/tows/program/tows_prog_main.jhtml
Thanks again for writing to us!
Sincerely,
The Oprah.com Staff www.oprah.com
** NOT a personal one but a computer generated one I am guessing .. but hey, its a response none the less
~April~
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don
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Re: OPRAH: Our email Target this week
« Reply #19 on: Sep 22nd, 2003, 8:27am » |
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I personnally will not be sending Oprah or any other "show business type" anything.
My energies will be better put into contacting the medical community and legitimate news resources.
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kissmyglass
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Re: OPRAH: Our email Target this week
« Reply #20 on: Sep 22nd, 2003, 9:25am » |
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Theres no such thing as bad publicity.....
Kev
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aprilbee
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Re: OPRAH: Our email Target this week
« Reply #21 on: Sep 22nd, 2003, 9:28am » |
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Done, and I will continue to email her, or anyone else, I think DJ has the right idea, internet support groups is a great topic! And it just might be the edge we need.
In my email to Oprah, I mentioned how she has helped so many with weight, family issues and make-overs, that we are all in need of help here for doctors, insurance companies, hoping to pull at her (well her producers) heart strings a little bit.
If you think you can't make a difference by yourself, imaging what one mosquito can do in your sleeping bag!!
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don
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Re: OPRAH: Our email Target this week
« Reply #22 on: Sep 22nd, 2003, 10:06am » |
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Quote:| Theres no such thing as bad publicity |
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Oh yes there is.
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forgetfulnot
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Re: OPRAH: Our email Target this week
« Reply #23 on: Sep 22nd, 2003, 1:11pm » |
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Did we not do this same drill with Dr. Phill a few weeks ago. What happened to that deal?
Lee
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don
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Re: OPRAH: Our email Target this week
« Reply #24 on: Sep 22nd, 2003, 1:55pm » |
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Same as all the other show biz deals.
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