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Topic: Important Info!!! (Read 2755 times) |
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catlind
CH.com Alumnus
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Taz taught me the cluster dance
  
 
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Important Info!!!
« on: Sep 10th, 2003, 2:43pm » |
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Dr. Bigal and Lori Choyce (our speakers from this years annual convention for OUCH) are moving forward with the quality of life survey.
They need to know how many people will participate in this survey.
There are currently just over 1000 members of OUCH. If you are not a member, go join, and then reply to this message to let me know how many of you intend to participate in the survey.
The purpose of this survey is to assess the impact on quality of life that CH has. This info is imperative to any further research as well as to getting current meds labeled for CH use.
If you want to do something about your affliction, start with this... If we don't get enough respondants, there will not be sufficient data for the New England Research Institute to begin some very promising research into the treatment of the CAUSE of CH.
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Lori
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Posts: 526
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Re: Important Info!!!
« Reply #1 on: Sep 10th, 2003, 2:47pm » |
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I will be happy to help..didn't know about this so just tell me who I need to contact.
Thanks..
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Blessings and PFDAN,
Lori
Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
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JDH
CH.com Alumnus
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We will get by, We will survive!
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Posts: 2453
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Re: Important Info!!!
« Reply #2 on: Sep 10th, 2003, 2:50pm » |
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on Sep 10th, 2003, 2:47pm, Lori wrote:I will be happy to help..didn't know about this so just tell me who I need to contact.
Thanks.. |
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Ditto
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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catlind
CH.com Alumnus
New Board Hall of Famer
Taz taught me the cluster dance
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Re: Important Info!!!
« Reply #3 on: Sep 10th, 2003, 2:51pm » |
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Right now I am just gathering numbers for them. They need to have a good estimate of how many participants there will be before it goes any further.
This will be done through the OUCH membership as that is the easiest way to get this done. If you are not a member of OUCH, you need to go join, it's free.
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Melissa
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will the survey be emailed or snail mailed? or will it be done in person? just wonderin....
oh yeah, P.S.~ YES I am in too!
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| « Last Edit: Sep 10th, 2003, 3:28pm by Melissa » |
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KingOfPain
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Disgusted!
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Re: Important Info!!!
« Reply #5 on: Sep 10th, 2003, 3:17pm » |
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O.U.C.H. Member here.
Count me in.
KingOfPain
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| « Last Edit: Sep 10th, 2003, 3:18pm by KingOfPain » |
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Arrived August, 1999.
We swallow greedily any lie that flatters us, but we sip only little by little at a truth we find bitter.
- Denis Diderot
Real friendship is shown in times of trouble; prosperity is full of friends. - Euripides
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sadsue
New Board Newbie
I sobbed with joy when I found ythis web-site!
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Re: Important Info!!!
« Reply #6 on: Sep 10th, 2003, 3:20pm » |
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i'M NEW TO ALL THIS- JOINED CLUSTERHEADS LAST SUNDAY AND O.U.C.H. TOO. PLEASE COUNT ME IN!
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'THY SOUL SHALL FIND ITSELF ALONE
'MID DARK THOUGHTS OF THE GREY TOMB-STONE-
NOT ONE, OF ALL THE CROWD, TO PRY
INTO THINE HOUR OF SECRECY:'
edgar allen poe 1844( CLUSTERHEAD.)
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ozzman
New Board Old Timer
We who are not as others -- Chaos A.D. --Sepultura
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Re: Important Info!!!
« Reply #7 on: Sep 10th, 2003, 3:20pm » |
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Cat,
I'm glad they didn't lose interest. I was afraid they did. Absolutely count me in and I will certainly hammer the message home at the PA-NJ meeting. Everyone should participate. I can't think of any excuse why somebody wouldn't.
Ozzy
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"Always remember rule ONE" --Lu-Tze
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ave
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She is beside herself; her favourite position
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Posts: 655
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Re: Important Info!!!
« Reply #8 on: Sep 10th, 2003, 3:33pm » |
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If being a different nationality is no problem, I'll join.
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There is a break in reality. Do not adjust your mind.
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Linda_Howell
CH.com Alumnus
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Hearing is one thing. Listening is another.
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Re: Important Info!!!
« Reply #9 on: Sep 10th, 2003, 3:51pm » |
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Hand is up cat.
LindaH
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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miCHel
New Board Veteran
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Posts: 184
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Re: Important Info!!!
« Reply #10 on: Sep 10th, 2003, 3:57pm » |
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If our opinion is worth more than our money, this Canadian dude is in 
miCHel
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Good one Scotty! Now beam down my clothes...
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Elaine
Guest
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I will ! I would do anything to help !
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suzy617
CH.com Alumnus
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Love is friendship set on fire
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Re: Important Info!!!
« Reply #12 on: Sep 10th, 2003, 4:29pm » |
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I'm in!
Suzy
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When God measures men, He puts the tape around the heart, not the head.
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Important Info!!!
« Reply #13 on: Sep 10th, 2003, 4:36pm » |
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In like Flint here (man that's an old saying isn't it....does anyone remember that one ? ) Ouch member family Pam
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| « Last Edit: Sep 10th, 2003, 4:37pm by cootie » |
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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jonny
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;D  ;D ;D ;D
.........................jonny 
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stevegeebe
CH.com Alumnus
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I love YaBB 1G - SP1!
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Re: Important Info!!!
« Reply #15 on: Sep 10th, 2003, 5:17pm » |
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Add me please.
Steve G
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eyes_afire
New Board Hall of Famer
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Re: Important Info!!!
« Reply #16 on: Sep 10th, 2003, 5:24pm » |
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This is a no-brainer.
Count me in.
Sometimes people wonder... 'what can I do to help, just let me know'.
Here's the chance!
--- Steve
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Still around... in a brand new world now...
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TxBasslady
CH.com Alumnus
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Bass fishin' is a h00t It's the catchin' that sux
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Posts: 3201
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Re: Important Info!!!
« Reply #17 on: Sep 10th, 2003, 5:28pm » |
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;D
I'm game, count me in !!!!!!
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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ClusterChuck
CH.com Alumnus
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The BEAST rises again, and again, and again, and .
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Re: Important Info!!!
« Reply #18 on: Sep 10th, 2003, 6:16pm » |
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To quote a famous donkey "Pick me, Pick Me, Pick me, me, me, me, "
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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Not4Hire
CH.com Alumnus
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...WAS PF since Oct.'02, but ...oh my...(CBusters)
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Re: Important Info!!!
« Reply #19 on: Sep 10th, 2003, 6:44pm » |
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yep..ya know where to find me....
..the *quality* part is a bit worrisome tho.... ;D
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Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
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Opus
New Board Hall of Famer
(Insert witty comment here)
Gender:
Posts: 2509
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Re: Important Info!!!
« Reply #20 on: Sep 10th, 2003, 6:56pm » |
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Cat,
This OUCH member is willing.
Opus/Paul
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Zed-Zed-nine plural-Zed alpha,
There is no place like home.
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Karla
CH.com Alumnus
New Board Hall of Famer
One of Many and Never Alone - Join OUCH
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Re: Important Info!!!
« Reply #21 on: Sep 10th, 2003, 7:04pm » |
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Count me in. Whatever I can do to help.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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Mark C
CH.com Alumnus
New Board Hall of Famer
Onward through the fog.
Gender:
Posts: 2660
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Re: Important Info!!!
« Reply #22 on: Sep 10th, 2003, 7:04pm » |
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Proud O.U.C.H. member who is more than willing to participate. Let me know what to do.
PFDAN's
Mark
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Click The Flag
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ShariRae
New Board Hall of Famer
 
Gender:
Posts: 927
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Re: Important Info!!!
« Reply #23 on: Sep 10th, 2003, 7:40pm » |
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Count me in too!
Shari
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Only two defining forces have ever offered to die for you,
Jesus Christ and the American Soldier.
One died for your soul, the other for your freedom.
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rumplestiltskin
Guest
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Of course Georgia and I are in.
She never even responded to my request for help (7-31-03 e-mail)...butt...I'll help them IF there's a chance it helps us.
den
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