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Topic: DAMN!! (Read 391 times) |
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ZAIRA
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 Although I’ve been suffering CH for 10 years I considered I was fortunate – thinking about the chronics – because I was episodic.
Today my doctor told me that I am chronic.
He checked my last year of CH, he was sure that I became chronic, but he didn’t want to tell this to me because he hoped to be wrong... it is not so!
This means that I’ll get many bumps and I’ll make the subscription to the ER...... ;D  !
Sorry, Zaira 
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Love yourself, Love others, Love often, Forever!
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The mad viking
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Re: DAMN!!
« Reply #1 on: Aug 29th, 2003, 3:09pm » |
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Hi there Zazi
Sad to hear about this.
IM crossing my fingers and hoping your doc has wrong.Think you might get another doc to just get a second opinion to.Just in case.
You know we are here if you need a shoulder or anything.
The very best from Svenn
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Always Look on The Bright Side of Life
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Cerberus
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Re: DAMN!!
« Reply #2 on: Aug 29th, 2003, 4:11pm » |
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Oh Zaira -
Soooo sorry!! Stay hard, sister!!!
Tina 
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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CryingInPain
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I'm very sorry to hear that! Here's to hoping you PF days and night and hoping your Dr was wrong! ~Holding up a glass of hmmm well apple juice...no alcohol for us ~
~Hugs~
Jen
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2late
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Re: DAMN!!
« Reply #4 on: Aug 29th, 2003, 5:09pm » |
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sorry to hear that babe.....my doc recently used the "C" word on me also, but i'm not gonna take it. good luck to ya Z ..........Jack
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Cooked Brain
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Re: DAMN!!
« Reply #5 on: Aug 29th, 2003, 6:06pm » |
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sorry to hear that zaira... still it is just an etiket. According to some definitions I am episodic, according to others I am also chronic, cause even uot of cycle i would get HA within every two weeks. Since 8 years I have had my cycle change many times back and forth, never longer than two weeks though, these last two weeks are the first! I suspect there even might be a cycle in a cycle, so you do have chance that this will only be temporary. Whatever it is, we are here for you!
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"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
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ClusterChuck
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Re: DAMN!!
« Reply #6 on: Aug 29th, 2003, 7:54pm » |
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SHIT, Zazi!!!
I am so sorry!! But hey, there are a lot of us chronics here, and we are somehow dealing with it. How? I haven't the faintest freaking idea, but just remember, it can be dealt with!
Love ya, Dear and always good to chat with you.
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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ZAIRA
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Brave to Stand !!!
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Re: DAMN!!
« Reply #7 on: Aug 30th, 2003, 8:23am » |
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I’d like to believe you, I hope that the doctors are wrong, but in the last year the beast was with me constantly, I’ve never had episodic clusters. in spring and autumn I was always bad... Doc. Bussone  (one of the most important doctors in Italy studying CH, as Doc. Leone) told me last year that I was becoming chronic, yesterday he confirmed it, and if he thinks it... it is bad for me!!
Anyway..... Love you all and Thank you, Zaira
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suzy617
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Re: DAMN!!
« Reply #8 on: Aug 30th, 2003, 8:43am » |
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Sorry for all your suffering Zaira. Wish you could catch a break.
Stay hard sister! 
Suzy
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Tara Ann
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Re: DAMN!!
« Reply #9 on: Aug 30th, 2003, 9:05am » |
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Oh Zaira I'm so sorry to hear the bad news! Hang in there hun and vent and cry and scream to us anytime you want or need to!
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http://www.myspace.com/taraann77
 
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Prense
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Re: DAMN!!
« Reply #10 on: Aug 30th, 2003, 6:28pm » |
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Take it from a chronic...it's just a label! Your pain/frequency will not change one bit JUST because a doc has changed your "label". Hang in there! It sucks, I know (still untreated here). I have hope though, and I will continue to do so.
Chris
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Peppermint
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Re: DAMN!!
« Reply #11 on: Aug 30th, 2003, 8:00pm » |
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Zazita.... sorry the docs said this but don't let it get you down sorellina.
Stay hard!
Ciao,
Peppi
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FYI - I am NOT a clusterhead.
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totka
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Re: DAMN!!
« Reply #12 on: Aug 30th, 2003, 8:18pm » |
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I'm so sorry to hear that. I wish you many-many PF days & nights and ... stay hard Zazi!
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I have two enemies, cluster headache and English grammar.
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Charlie
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Re: DAMN!!
« Reply #13 on: Aug 30th, 2003, 8:35pm » |
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Very sorry Zaira.
This damn thing truly is a horror. It takes no prisoners but hopefully, neither will you.
Rant away, it's what we're for.
Charile
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Callico
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Re: DAMN!!
« Reply #14 on: Aug 31st, 2003, 12:09am » |
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Zaira,
Stay strong! You have dealt with it this long and the label doesn't make it any worse. It just takes away the hope of the cycle ending, but at the same time, since becoming chronic March a year ago, I don't have to dread the beginning of a new cycle, or wonder ifit is going to hit out of sequence. In a lot of ways it has been easier for me to deal with once I accepted it. You will be in our prayers.
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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Roxy
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Re: DAMN!!
« Reply #15 on: Aug 31st, 2003, 12:15am » |
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Zaira.....just stay hard girl. Don't let any label change your state of mind. I have personally decided I'm not chronic....I'm episocic with really, really, really, really long cycles. ;D
Hang tough girl....and kick some ass!
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
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nancyc
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Re: DAMN!!
« Reply #16 on: Aug 31st, 2003, 1:02am » |
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Double damn, sis...so sorry for this news... nancyc
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Jayne
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Re: DAMN!!
« Reply #17 on: Aug 31st, 2003, 2:06am » |
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Dear zaira.
If this helps ( and I hope it does)
My story!
My Episodic times...PAIN
I turned chronic......PAIN UNDER CONTROL
I have times when it flares up, even when I am chronic.
But with the help of my doctor and some angels here on the board. I have suffered less pain in the whole picture since I have been chronic than I did when I was episodic.
When I was episodic...I always seemed to be playing the catch up game to the pain. Now I am chronic...I know what I have to do everyday...and what I need.
I was like you when I turned "chronic" It was an awful diagnosis......
YOU WILL BE OK.....Just stay one step ahead of the beast at all times and always have your amunition (sp) and beat the bastard everyday........you will become aware and know what your body needs and when! Love Jayne
FIGHT FIGHT!!!! PREPARE PREPARE!!!! MEDS MEDS!!!!!ABORTIVES ABORTIVES!!!!!!!! IT WILL BECAOME A WAY OF LIFE!
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Tim_w
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Re: DAMN!!
« Reply #18 on: Aug 31st, 2003, 4:22am » |
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Zaira
Sorry to hear this, but it happens to the best of us!
You will learn to deal with it !
STAY HARD!!!
WISHING YOU PFDAN Tim_w
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Opus
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Re: DAMN!!
« Reply #19 on: Aug 31st, 2003, 7:04am » |
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Zazi,
As I sat reading your posts and started getting hit I think I may join you in a year. I am 4 months into a cycle and I never get hit everyday. This mornings hit was from sleeping more that 6 hours. I am thankful that I get that much but over sleeping scares me. I am able to abort everyone so far and I am not complaining. Actually I was hoping this cycle would end so I can get my memory back for three months LOL I hope this makes sense
Opus/Paul
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andy
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Re: DAMN!!
« Reply #20 on: Aug 31st, 2003, 9:18am » |
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Zaira, sorry about your new diagnosis. Do what ya gotta do. Fight that bastard back in to remission my Italian friend. PF 2 you Zaira ............andy
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Mahle421
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anyone want to share some pain with me!
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Re: DAMN!!
« Reply #21 on: Sep 2nd, 2003, 4:03am » |
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My best advice is tell the docs what u need because most of them don't know. I am from Rochester, home of mayo clinic, and have see some of the best doctors in the special pain and headache clinic. I walked across the street to another clinic building and they don't have a clue what I'm talking about.
Jason
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Lissa
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Re: DAMN!!
« Reply #22 on: Sep 2nd, 2003, 7:50am » |
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I'm so sorry to hear that Zaira. You hang in there sweety! 
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Episodic cluster survivor since 1995 at age 16.
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Big Dan
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Re: DAMN!!
« Reply #23 on: Sep 2nd, 2003, 7:55am » |
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... damn Zaira... sorry to hear the news... 
... here's hopin' that it's a misdiagnosis... and keep on fightin' that bastard....
-Big Dan
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