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Topic: Update from Raytown (Read 221 times) |
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Carla_Comiter
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Kisses to all my Clustermates. I've been PF for nearly 3 weeks now. Quit taking the Verapamil today.
My history, briefly (believe that and I'll sell you anything!): First episode in 1967 (before most of you were born). 7-10 episodes total. Went 10 years, then 5 years, then 12 years between episodes.
Typical episode lasted 6 weeks, 100 headaches. Not correctly diagnosed until 1986 when I married a neurologist. Unfortunately, he didn't know how to treat them, but that's for another story.
Definite relationship between CH and going off birth control pills. I think this episode was triggered by going off hormone replacement therapy.
This episode was the easiest to manage. It lasted only 4 weeks, and at its peak, I was having 4 headaches, KIP 6, per day. Had one KIP 8 and a couple KIP 7's. I don't get headaches at night.
Took every *triptan I could find--sample pills from various sources. Had 2 sample Imitrex nasal sprays, they worked well.
Started Verapamil about week 3. Took my last one yesterday. Had side effects much like ADD (another one of my affectations). Wandered around, lost things, forgot things, pretty frustrating.
I have a great doctor and great friends. My family (all out of state) are a bunch of poopy-heads, but that, too, is a topic for another time.
The most frustrating part of this episode was being advised about my diet about 4 times per week. I frankly don't think I have dietary triggers (I don't smoke, don't drink, but I do date boys who do!)
When I asked one person about O2, he advised me to add small amounts of hydrogen peroxide to my water. I never did get through to him why we use O2.
Worse yet were my New Age friends who wanted me to embrace the pain--to quit blocking it and learn what it was trying to tell me. (Choice expletives here.)
Right now my life is like the aftermath of Hurricane Andrew. My house looks like a biiiig wind blew through it! My finances have taken a hit, and I'm still detoxing from the meds, lack of sleep and the stress.
Finding ya'll is definitely a high point in my life. I talk about you everyday. I'm still drinking Coke with gay abandon.
You are welcome at Casa Carla any time you are in Kansas City. I've been keeping you in my prayers, and carry you in my heart.
Love,
Carla
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Ted
New Board Newbie
I love YaBB 1G - SP1!
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Posts: 1
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Re: Update from Raytown
« Reply #1 on: Aug 28th, 2003, 1:58am » |
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I watched a video once with Gay Abandon's sister.
Glad you're painfree. Hope to see you around still to help those who are having a hard time. Or just having a hard time getting those videos. 
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Kirk
CH.com Alumnus
New Board Hall of Famer
VINIMUS, VIDIMUS, DOLAVIMUS
    
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Re: Update from Raytown
« Reply #2 on: Aug 28th, 2003, 4:29am » |
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Embrace the pain and learn what it is telling me.
Please put you favorite Anglo-Saxon Adjetives here.................................................................
TTFN
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Patrick_A
New Board Hall of Famer
If i could get my hands on that wascally Wabbit
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Re: Update from Raytown
« Reply #3 on: Aug 28th, 2003, 6:22am » |
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on Aug 28th, 2003, 1:48am, Carla_Comiter wrote:
I have a great doctor and great friends. My family (all out of state) are a bunch of poopy-heads, but that, too, is a topic for another time.
Worse yet were my New Age friends who wanted me to embrace the pain--to quit blocking it and learn what it was trying to tell me. (Choice expletives here.)
Love,
Carla
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I embrace the time i am painfree. I take advantage of every single minute that i can. I totally close myself off from the world when i am in pain. I cannot stand myself, much less anybody else. Sleep is a luxury, Work is toiling. Fun lets me smile for a time!
Patrick
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Do you think that when they asked George Washington for his ID, that he just whipped out a One Dollar Bill?
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SommelierCH
New Board Hall of Famer
I’m awed by the amazing resiliency that we possess
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Re: Update from Raytown
« Reply #4 on: Aug 28th, 2003, 6:59am » |
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Hellloooo Raytown,
I grew up in Independence, and I had several girlfriends from Raytown, through those years. I left Missouri in 1980 (to become a professional Blackjack player, in Lake Tahoe NV [single deck, one dollar minimum]…don’t anybody reading this, ever let their kids do this [my dad staked me]). I see that you have had 20 posts, sorry that I missed them. You sound hot. I would like to take this time to say: the women on this board are the most intelligent women that I have ever met. I love intelligence and wit, and that’s what this family exudes…uh,….besides all the pain stuff. Did I mention to the Message Board that I am single? …… What?…. What do you mean?…I thought this was the ClusterHead Love Connection?…Damn. Wrong URL….Again.
I would like to reiterate, that any card-carrying Supporter or ClusterHead that comes to the LA area, is invited to have V.I.P. treatment at the restaurant where I work, even if it’s just a quick drink at the bar. I would love to meet any of you!!!! Still never met a ClusterHead.
David J.
ClusterHead Productions
P.S. Carla, hang around and help out the newbies. All of us need to remember the exhilaration we felt when we first found this site. You expressed it, wonderfully.
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Wine is a little like love. When the right one comes along, you know it!
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Charlie
CH.com Alumnus
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Happy to be here
 
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Re: Update from Raytown
« Reply #5 on: Aug 28th, 2003, 3:12pm » |
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Quote:| Worse yet were my New Age friends who wanted me to embrace the pain--to quit blocking it and learn what it was trying to tell me |
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While I don't wish this horror on anyone, I can't help wondering how these new agers wishing you to embrace your pain would fair dealing with a cluster attack for a minute or two. They haven't a clue.
Stick around and you'll find some good ideas about dealing with this horror. Just meeting others is helpful.
Here is the technique I learned from my first neurologist. It's helped me and some others. It costs nothing and the damn thing can help shorten the attacks:
http://www.netsync.net/users/charlies/
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
 
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Re: Update from Raytown
« Reply #6 on: Aug 28th, 2003, 3:36pm » |
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These "New Age Friends" who wanted you to embrace the pain aren't friends.........
They're Yuuzhan Vong!
The FORCE, Luke.....it's Broken!!
RJ
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May those who don't want any
Have memories of never getting any.
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Carla_Comiter
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What's Yuuzhan Vong?
I was thinking about those friends today and wondering if they'd give the same advice to someone who had just had a leg blown off by a grenade...
Just took a Verapamil. Having strong shadow this PM. Don't want to quit the meds prematurely.
David J, formerly from Independence, are you the DJ who keeps this site going? If so, kudos! Even if not, thanks for the kind words.
Carla
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