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   Author  Topic: Tell me!!!!  (Read 1195 times)
jonny
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Tell me!!!!
« on: Aug 24th, 2003, 5:32pm »
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How many of you have met another clusterhead or supporter?
 
This is key folks!!
 
If you havent met one Ill let the folks that have clue you in.
 
Talk to me....................;D
 
.........................................jonny
 
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Hooter
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Re: Tell me!!!!
« Reply #1 on: Aug 24th, 2003, 5:37pm »
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Lots but they were all British (apart from Riccardo)
 
I want to meet a real live American one now!
 
Love
 
W the B
 
P.S. Where is Riccardo? Is it the Rome convention week at the moment?
« Last Edit: Aug 24th, 2003, 5:38pm by Hooter » IP Logged
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Re: Tell me!!!!
« Reply #2 on: Aug 24th, 2003, 6:03pm »
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Jonny,
 
Only two.  
 
One has been PF for several years and the other checked out (for good).  
 
Nick, the one I can still talk to, has helped explain CH to some of the people at my office.
 
Steve G
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Big Dan
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  Danboyceccg   DanielNBoyce
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Re: Tell me!!!!
« Reply #3 on: Aug 24th, 2003, 6:13pm »
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...  two...  
 
 
Jim (JDM) and Mark (? Bad with names, Echo)...
 
... both times, I felt like I was seeing a long lost brother.  Its nice to know there is an actual physical being that knows what its like to deal with Satan himself....
 
.. oh.. and I spoke on the phone with Leesa... supporter.  Hell of a gal too... (thought *I* had a southern draw.. ;D)
 
 
-Big Dan
« Last Edit: Aug 24th, 2003, 6:14pm by Big Dan » IP Logged

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Re: Tell me!!!!
« Reply #4 on: Aug 24th, 2003, 6:22pm »
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Met with Jill about a year ago when I helped her out.  
 
Met Opus/Paul in the spring.  His sister actually lives quite close to me !!!  Small world.  
 
Then this past week spent a glorious time with Fenny/Cathy from England, CathiP from Oregon, Kim from Long Island, CLR /Cindra from Oklahoma, Opus from NY State and Pep from Queens.  It was a life changing expererience.  Missed Suzie617 on that trip ........ maybe next time !!!    
 
I will get down to meet LiveForFun who only lives about 1/2 hour away from me.  Just hasn't worked out yet.  Also have plans on joining the next Reading meeting to hook up with those guys !!!!!!!!  Jonny I'm sure I'll meet you one of these days.  Can never meet enough clusterbuds !!!!!
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Re: Tell me!!!!
« Reply #5 on: Aug 24th, 2003, 6:27pm »
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I fineally met a awesome bunch at the NY convention.....I fell in love with em all......then got the convention blues.....then.....shit hit the fan on here and I am very disappointed.......there ALL good people !!! Pam that really had a great time in NY
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Leesa
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Re: Tell me!!!!
« Reply #6 on: Aug 24th, 2003, 6:35pm »
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Well lets see here......... Yall I can tell ya this if ya aint met a Ch'er ya gotta!!! It's the BEST!!! I've met Jonny (and gawd what a tall drink of water he is!!  Wink ;D) Met Elaine (grand lady she is) JudyW, BarbG, Den, Georgia, NancyC, Riccardo, Ueli, BobP (aka Boob) "da man" DJ, Jayne, and soooooooooo many others in HOT lanta! I ever got mooned in HOT lanta. (Hey Jonny nice ass bro!  Wink) If yall get the chance to meet a Cluster bud DO IT!!!! Its time well spent a time you will NEVER forget!!
And Big Dan you do have a southern draw hun!  Wink
Gotta love da family Leesa
 
PS check out the convention pics and yall will see what I mean. HOT lanta will NEVER be the same!!!  Wink
« Last Edit: Aug 24th, 2003, 6:36pm by Leesa » IP Logged

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161860987 161860987   kirk_jones511   krkevrtt
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Re: Tell me!!!!
« Reply #7 on: Aug 24th, 2003, 6:46pm »
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2 in person. One on the phone
 
 
TTFN
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Re: Tell me!!!!
« Reply #8 on: Aug 24th, 2003, 6:48pm »
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on Aug 24th, 2003, 6:22pm, OneEyeBlind wrote:
Then this past week spent a glorious time with Fenny/Cathy from England  Grin thats me...lol, CathiP from Oregon, Kim from Long Island, CLR /Cindra from Oklahoma, Opus from NY State and Pep from Queens.  It was a life changing expererience.  Missed Suzie617 on that trip  ........ maybe next time !!!    
 
 

Ditto to Nans post..... also met Opus/Paul and Nancy... and have yet to meet, 9erfan, Linda Howell, and Jonny  
 
Cathy
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Re: Tell me!!!!
« Reply #9 on: Aug 24th, 2003, 6:58pm »
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Cathy.....start collectin yer beer tabs now fer the first time ya meet jonny.....he collects em and esp likes em down his pants. Pam that witness'd jonny gettin tab'd
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Re: Tell me!!!!
« Reply #10 on: Aug 24th, 2003, 7:03pm »
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Jonny,
 
  Almost met a couple of clusterheads last week (hi Kim and all the rest).  Spoke with Kim on the phone on several occasions but that's it.
 
  My loss.  LInda T
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135447360 135447360   mondocharlie   mondocharlie
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Re: Tell me!!!!
« Reply #11 on: Aug 24th, 2003, 7:03pm »
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Yeah...Finally. Spent lots of time getting and getting to know not enough of them. Strange thing is that for the most part they were pretty much as I expected.
 
It was hard to see people get hit. It was my first experience watching what this horror can do. I hadn't really thought about having to drag CH equipment around. Shitty deal but clusterheads are a helpful bunch. Even the children behaving badly at the moment.
 
Charlie
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Re: Tell me!!!!
« Reply #12 on: Aug 24th, 2003, 7:09pm »
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Hey LindaT ....... when I get back up to Kim's WE WILL MEET !  It was our loss as well.  Dang the blackout !!!!!!!
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CathiP
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Re: Tell me!!!!
« Reply #13 on: Aug 24th, 2003, 7:14pm »
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Laugh? YOU are NOT gonna make me laugh more, are ya, Miss Fluffyknickers? Cathy's right....we are all guilty as charged....we have met.....and it's gonna happen again!
In addition, I am sooo looking forward to meeting Linda Howell and Virginia (9er Fan) in Oct.- perhaps Slammy....oh, and I already knew Marc....he's the reason I ended up here....sorry, Marc-I'm here for the duration, and I met Martin and Jill.....and I'm going to meet Brian Y in Oct......and, and....
In case anyone is listening, here's my two-cents worth.
Since it's been nearly a year and a half since I arrived, I have made some wonderful friends. it was never my intention to stay- just get the info, and move on. I found people who were without supporters, fun people who were simply a pleasure to banter with......angry people who were in constant pain, and kind people who encouraged me to stay. I may not be the most knowledgeable person on this website, but I do come here with only the best intentions......as do most who are here. I will not tout myself as an expert on the subject of clusterheadaches- but I will always be around, as as sounding board, "encourager"(I am NOT a groupie, nor am I a cheerleader)....and if more people would take even a modicum of interest in this site, perhaps a cure/control would be forthcoming. I will never intentionally harm anyone who resides here....my intentions are purely positive, and at the end of each day, I will wish you ALL PF.  
If everyone here was focused on the most positive aspects, and posted with love and concern...AND RESPECT for one another, the anger would be uneccesary, and we could all interact without fear of recrimination.
As  you sow, so shall you reap........sow the seeds of good intention, and your harvest will be bountiful.
Looking forward to meeting soooo many more in the future.......
BE PF!
Cathi  Kiss
 
Oh, and Hoots, and Coots.....I really look forward to meeting you 2...and Echo Kissand Grant Kissand Jonny Kiss  
and Suzy Kissand Charlie Kiss and Kirk, Lee......well, good grief- ALL of the people here!!
« Last Edit: Aug 24th, 2003, 7:19pm by YR_FREINDCATHI » IP Logged
cootie
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Re: Tell me!!!!
« Reply #14 on: Aug 24th, 2003, 7:33pm »
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Ahh yes Cathi the best is yet to come ! (stick laugh sounds here)  Grin ;D ;D  Lookin forward to meeting ya too 9and alot of others on here).....and still sad I couldn't go ta NY the second time ta do so ! Pam that has clean feet  Wink
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Re: Tell me!!!!
« Reply #15 on: Aug 24th, 2003, 7:46pm »
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Well, the only CHer I have met is my man ... hoping to meet others in the future.  Smiley
 
~April~
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Ueli
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Re: Tell me!!!!
« Reply #16 on: Aug 24th, 2003, 8:02pm »
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I have met about 100 clusterheads and supporters,  
50 in Atlanta 2001 and 50 in Regensburg 2002.
 
My sister I meet quite often.
 
Ueli
 
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Karla
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Re: Tell me!!!!
« Reply #17 on: Aug 24th, 2003, 8:21pm »
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I have met many in Atlanta and Vancouver at the OUCH conventions.  About 100 peoples.  Also I have met quite a few Wisconsinites that are clusterheads.  
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Re: Tell me!!!!
« Reply #18 on: Aug 24th, 2003, 8:30pm »
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I have not met one yet. Do all of you really exist? Im wondering if im the only one and you all are a figment of my imagination. I guess ill have to go to the Fla get together to find out for sure.     ..............andy
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Re: Tell me!!!!
« Reply #19 on: Aug 24th, 2003, 8:43pm »
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i haven't met one yet...........you better believe we all exist andy!                                            .............Jack
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Re: Tell me!!!!
« Reply #20 on: Aug 24th, 2003, 9:21pm »
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I've met 6 clusterheads and their families and all have been this year.  
I met the first four, M.R. Cerebus, Pink Foyd and BrianW in Chicago Memorial day weekend and and Big Dan and Koda seperately about a month afer that.  
Also found out Carl_D lives close by and hoping to meet him in the near future so I can say I knew him when   Wink
It has been AWESOME to finally meet other people who know what this is all about.
If ya haven't done it yet, I highly recomend it.
 
Jim
 
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Let me tell you
« Reply #21 on: Aug 24th, 2003, 9:32pm »
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Nan, and ect. have told of my meetings,
It was unbelievable how you can become instant friends with peaple you have never met. The only thing we have is common is that we have felt, or seen, the pain. If anyone gets a chance to meet a clusterbud, do everything you can to make it possible. Chances are you will never be the same, and you will know beyond a doubt that you are not alone in your fight with the beast.  
 
Opus/Paul  
 
PS Hooter, I hope I get to be one of those yanks
« Last Edit: Aug 24th, 2003, 9:41pm by Opus » IP Logged

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Re: Tell me!!!!
« Reply #22 on: Aug 24th, 2003, 9:56pm »
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Paul, Cathi, Cootie et al
We'd better get a date sorted for next year then!
 
Hooter aka W the B
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Re: Tell me!!!!
« Reply #23 on: Aug 24th, 2003, 9:59pm »
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I have met only one CH! He is not part of this board, and no matter how hard I try an how much I talk to him he just doesn't want to listen to me. WTF? I tell him about all of the other people including myself on this site , along with the wealth of information here but he just doesn't listen to me. I dunno, maybe he's suffered so long that he has become immune to advice and the fact that he isn't the only one that sufferes from CH's.  
 
Believe me, I have talked my ass off to this guy, but he just doesn't listen to anything! What more can I do?
 
Seeya,
 
Jimbo
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Re: Tell me!!!!
« Reply #24 on: Aug 24th, 2003, 10:01pm »
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.... He's probably convinced himself that he's really alone in this....
 
 
I can see how he'd come to that conclusion on his own.... depending on how long and what type he's got...
 
 
 
-Big Dan
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