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Topic: Bad News (Read 580 times) |
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Lissa
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11 days PF until last night. 
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Episodic cluster survivor since 1995 at age 16.
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BruceD
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Got Atrium?
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Re: Bad News
« Reply #1 on: Aug 22nd, 2003, 7:55am » |
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Sorry to hear that Jewel. Perhaps it was just a fluke ... like one last hurrah before the beast takes his leave. BTW, did you get a chance to give O2 a shot yet?
Take care
BruceD
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Childhood is short, maturity is forever. (The Indispensable Calvin and Hobbes)
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Lissa
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Re: Bad News
« Reply #2 on: Aug 22nd, 2003, 8:16am » |
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No I didn't give oxygen a try yet just because I had gone 11 days without a HA and thought I was reaching the end of my cycle.
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Episodic cluster survivor since 1995 at age 16.
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JDH
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Re: Bad News
« Reply #3 on: Aug 22nd, 2003, 8:18am » |
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awe man, sorry to hear that Jewel.
time for you to start a new stretch of 11 pf days starting now.
pfdan's
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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Melissa
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Jewel, I'm sorry you got hit!  How long do your cycles usually last? With me, mine only go for a month, so I know when 30 days have past, and I go at least 4 days PF, my cycle is done. Hopefully I will be able to keep on predicting it! I hope this is just a "one time" thing for you, and your cycle is really over.
Good thoughts coming your way!
 mel
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Lissa
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Re: Bad News
« Reply #5 on: Aug 22nd, 2003, 8:46am » |
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My cycles NORMALLY last up to one month and I usually get attacked up to 3 times a day. This cycle has lasted over 3 months now but I haven't gotten hit nearly as much. It's been an unusual cycle.
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Episodic cluster survivor since 1995 at age 16.
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Melissa
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was there something different this time around? Like new meds, or a change in stress level at home? (i.e. new job, new home, etc.) With me, the only thing different with this cycle, is it came 2 months early. I had a baby June 23rd and my CH's began 3 weeks later. Like Margi had told me, might have been due to a surge in my hormones from giving birth. Anyhow, keep us updated on your progress, like I said before, hopefully this is a one time thing, and it goes away real fast!
mel
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Lissa
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Re: Bad News
« Reply #7 on: Aug 22nd, 2003, 9:03am » |
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The last cycle I had was over 3 years ago. Back then I wasn't on anti-depressants and anti-anxiety medication. My anorexia wasn't nearly as active either, and I wasn't underweight like I am now. I don't know if any of these things have anything to do with the difference in this cycle but I suppose they could possibly be factors.
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Episodic cluster survivor since 1995 at age 16.
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Cooked Brain
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a.k.a. Max Payne, YOUCH this hurts...
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Re: Bad News
« Reply #8 on: Aug 22nd, 2003, 9:17am » |
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sorry to hear that jewel, hope you will do better soon
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"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Bad News
« Reply #9 on: Aug 22nd, 2003, 9:46am » |
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Really really sorry....hopein ya stay PF and no more flukes !!! Pam who's knows a few flukes
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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cathy
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Re: Bad News
« Reply #10 on: Aug 22nd, 2003, 9:52am » |
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Jewel...that sux's sorry yr still feeling the pain....PF vibes coming to you!
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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Lissa
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Re: Bad News
« Reply #11 on: Aug 22nd, 2003, 9:56am » |
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Thanks everybody.
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Episodic cluster survivor since 1995 at age 16.
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maggie_may
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Re: Bad News
« Reply #12 on: Aug 22nd, 2003, 9:58am » |
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Sorry to hear that Jewel.. Hope it was just a one time thing and that you'll be pf from now on.
maggie
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Strength does not come from physical capacity. It comes from an indomitable will. - Mahatma Gandhi
The human spirit is stronger than anything that happens to it. - C.C. Scott
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TomM
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Re: Bad News
« Reply #13 on: Aug 22nd, 2003, 11:28am » |
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Bummer, Jewel.
On the bright side...you did have 11 PF days, right? A CHer should count thier blesings where they can find them. My mumble opinion.
TomM
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"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
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Leesa
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Re: Bad News
« Reply #14 on: Aug 22nd, 2003, 12:29pm » |
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Sorry to hear it Jewel. The good thing is you have 11 days with out the beast knocking your head. You'll soon have more PF time. In that I firmley believe!
Keep up the fight girlfriend I have faith in you, Leesa
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"The truth of the matter is that you always know the right thing to do. The hard part is doing it." General H. Norman Schwarzkopf
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kim
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I love YaBB 1G - SP1!
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Re: Bad News
« Reply #15 on: Aug 22nd, 2003, 12:31pm » |
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Hey Jewel,
It's a let down when ya had yer hopes up, I know. Hang in, it will end!!!!!!
***Kim
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stevegeebe
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Re: Bad News
« Reply #16 on: Aug 22nd, 2003, 12:45pm » |
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Hope and pray that it is just an after shock.
While I've considered myself PF about a month ago, I still get a hit every now and then.
Good luck to you.
Steve G
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Tara Ann
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Re: Bad News
« Reply #17 on: Aug 22nd, 2003, 12:52pm » |
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SOrry to hear the bad news Jewel...this CH beast is mean like that...I had almost a week PF a while ago and I thought I was lucky that I had a short cycle...but it came back for me too.........I am really hoping it was just a goodbye Hit for you!! Hang in there it will end sooner or later (but hoping its sooner for you)
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http://www.myspace.com/taraann77
 
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Charlie
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Re: Bad News
« Reply #18 on: Aug 22nd, 2003, 2:18pm » |
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Damn. You never get a break.
All I can think of is to let us know how you're doing so we can offer some support.
Damn.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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jonny
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on Aug 22nd, 2003, 7:24am, Jewel wrote:| 11 days PF until last night. |
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Join the club.....7 weeks 10 hours and 15 mins PF
Nailed and hard at work with no abortives, ice packs and sucking 02 out of a torch dont cut it but it took the edge off.
I set a fucking record 
........................................jonny
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Carl_D
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I set my own record since becoming chronic back in February. Went for 2 1/2 weeks without a single CH attack then one night, went to bed and quickly awoke with an attack. It has been downhill from there.
Wishing it was Febraury again...
Carl D
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Peppermint
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Work it out baby!
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Re: Bad News
« Reply #21 on: Aug 22nd, 2003, 10:05pm » |
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Sorry to hear that... Jewel... Jonny... Carl....
Man!
I hope you get some pain free time real soon.
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You like apples? How ya like them apples?
When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
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athos
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Reality is for those who lack imagination!
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Re: Bad News
« Reply #22 on: Aug 23rd, 2003, 12:03am » |
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hang in there..... Pullin for ya...
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zanychef
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i'm busting with a masx cant really go wrong can i
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Re: Bad News
« Reply #23 on: Aug 23rd, 2003, 12:44am » |
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hang in there jewel
vibes from the uk comin at ya! ;D ;D ;D
from a 3 hours pf zany lol
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plenty of time to sleep now me headaches aint too bad
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OneEyeBlind
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Yea, I can do this
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Re: Bad News
« Reply #24 on: Aug 23rd, 2003, 3:03am » |
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Hang in there Jewel. Pain free vibes coming your way !!!!!!
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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