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Topic: MY DAD! (Read 464 times) |
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River_Rat
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I left a messege for ree and it made me start to think of my DAD, You see he had Clusters for years and years, He died before anyone ever figured out what he had!
How long did you folks have these things before you figured out what you had? My guess is, that you figured it out before your Doc did.
For me I went 11 years, with tylonal3's, Vikes, Motron 800's These ch's just laughed at that shit. I went to the Dentist, Eye Doctor and the Chiropractor. Finally a pharmisist told me they might be clusters I researched it and I was a text book case....WOW!!
My DAD----They made him wear a neck brace (wtf) They once made him go to the hospital every night for a week so they could take like 3 pints of blood and replace it with 3 pints of different blood (again wtf)
That poor guy had nothing.
Anyway, I thought this would be an interesting thread, Its funny to me that its so often misdiagnosed. Whats you story??
LEE
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juvy
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Re: MY DAD!
« Reply #1 on: Aug 14th, 2003, 4:39pm » |
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River_Rat
I was originally misdiagnosed with CH. When the Neuro mentioned it, I had no idea what it was. I did a littel research and ended up here. Later (almost a year) it was found that I actually have CPH which is almost a form of CH.
Compared to most I was diagnosed pretty quickly. From onset of symptoms to diadnoses was i think 3 years.
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forgetfulnot
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Hey Rat, I went to twenty Doc,s over five years and finally ran into an X- Vietnam Army Doc who made the call in seconds, said his father and brother both had clusters. He was scared shitless he would get them. He put me on verap, lithium and O-2, this was 1985. Sadly he moved and I had mucho trouble getting other Doc,s to do the same, they didn't have a clue.
Lee
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Gofishgriff
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Re: MY DAD!
« Reply #3 on: Aug 14th, 2003, 4:58pm » |
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I was sent to the eye doctor and ended up with glasses that I don't wear.
My doc was the one who finally figured it out. Took about 5 visits, a cat scan, and a mri. And oh yeah, glasses... 
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jonny
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14 yrs till diagnose, 28 total chronic yrs.
Curently 6 weeks PF (My record PF) and counting.
.....................................jonny
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River_Rat
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Re: MY DAD!
« Reply #5 on: Aug 14th, 2003, 5:04pm » |
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[quote author=Gofishgriff link=board=general;num=1060900544;start=0#3 date=08/14/03 at 16:58:02]I was sent to the eye doctor and ended up with glasses that I don't wear.
My doc was the one who finally figured it out. Took about 5 visits, a cat scan, and a mri. And oh yeah, glasses... [/quote
HOLY SHIT!! thats the funniest thing I've ever heard, They actually gave you glasses. (WTF)
LEE
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Gofishgriff
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Re: MY DAD!
« Reply #6 on: Aug 14th, 2003, 5:07pm » |
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Yeah, they gave me glasses. Actually, they didn't give them to me... I had to pay out the teeth to get ones I liked.
My vision is still good, I think. I hardly wear them, until my eyes are burning from looking at the computer screen all day.
I never wear them outside of the office either. Hmmmmm. Perhaps that's why my golf game is in the toilet right now. ;D
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Gofishgriff
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Re: MY DAD!
« Reply #7 on: Aug 14th, 2003, 5:11pm » |
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Oh, as for being recommended to see an eye doctor. My doc said he thinks those pesky headaches could be from eye strain. Hence, the visit to the eye doc.
And the eye doc conveniently sells frames and lenses right in his office, soooooo, I imagine anyone who goes to that office ends up with subpar vision. 
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River_Rat
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Re: MY DAD!
« Reply #8 on: Aug 14th, 2003, 5:15pm » |
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Your killin me griff OMG!! ;D What a scame!!
LEE
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2late
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Re: MY DAD!
« Reply #9 on: Aug 14th, 2003, 5:24pm » |
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i was real lucky....only about 1 year.....my p.c.p. refered an excellent neuro who know's his shit. .............Jack
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ClusterChuck
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Re: MY DAD!
« Reply #10 on: Aug 14th, 2003, 5:30pm » |
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This is probably a new one for y'all.
This all started around 1980. The first HA I had was during sex with my wife, and she was on top. Unfortunately, we told them about it at the hospital. I was in the hospital for about two weeks. Ran all sorts of tests, and all looked fine. The neurologist said I should be proud as he normally does not see such good tests from his patients.
It was decided that my problem was psycological. I spent the next 5 or 6 years getting treatment from various shrinks, trying to find out "Why I didn't like sex with my wife, especially if she is on top." They had me convinced that I was crazy. Of course none of this did anything to the beast.
It was my sister, who is a registered nurse, who came up with the idea of cluster headaches. It took a while, but the right drugs were finally found that gave me releif! -- What I wouldn't do for some drugs or something that would work now!!!
The above is why I will have nothing to do with shrinks. Most of the ones that I went to were almost as crazy as I am. They need to be locked up in nut houses! I know thay can't be all bad, but I have seen over a dozen of them over the years, and there isn't a one of them I have any feelings of competence from.
To answer your question, it took about 6 or 7 years before they figured it out.
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
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jimmers
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Re: MY DAD!
« Reply #11 on: Aug 14th, 2003, 5:33pm » |
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Had em since I was 12 (Episodic) Spring/Fall whatever.
Never knew WTF it was until about a year ago. Doc said no it's not CH. Thanx to this site I proved him wrong.
What the fuck did I pay him for? I got more 411 from this site than he could ever imagine, hell I think he maybe even learned something. I could have taken the money that I paid him and used it somewhere useful like expensive booze, carribean stud games, and betting on football games.LOL
Seeya,
Jimbo
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I don't suffer from INSANITY; I'm enjoying every minute of it!
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jonny
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on Aug 14th, 2003, 5:30pm, ClusterChuck wrote:| The first HA I had was during sex with my wife, and she was on top. |
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How big are the titties?
Does she grind while on top?
Enquiring minds want to know ;D
..............................jonny
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2late
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Re: MY DAD!
« Reply #13 on: Aug 14th, 2003, 5:38pm » |
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on Aug 14th, 2003, 5:35pm, jonny wrote:
How big are the titties?
Does she grind while on top?
Enquiring minds want to know ;D
..............................jonny
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LMMFAO!!! thanx 'bro i needed that! ;D
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ClusterChuck
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Re: MY DAD!
« Reply #14 on: Aug 14th, 2003, 5:41pm » |
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I should have expected this from you Johnny!! Ha ha !!
Sorry to disapoint you, but only a "B" cup ...
And let me just say that she more than satisfys me when she is on top!!!! Nuff said !!!!!!! Ha ha!!!!
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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River_Rat
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Re: MY DAD!
« Reply #15 on: Aug 14th, 2003, 5:43pm » |
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OMG Chuck You had me in tears, I swear I've never heard anything as funny as that (still laughing), headaches because you hated sex with the wife on top HOLY SHIT!!
And if you want you can go ahead and answer Jonny's question!!
LEE
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ClusterChuck
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Re: MY DAD!
« Reply #16 on: Aug 14th, 2003, 5:47pm » |
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Lee, I can sure look back now and laugh at it, but at the time, they had me so screwed up, I was almost afraid to have sex. In any position! For a while, I was even afraid of Madam Thumb and her four daughters!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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jonny
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Chuck,
You will learn that EVERYTHING you post will be questioned......I was just making you awhere of that, Bro ;D
..........................................jonny
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ClusterChuck
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Re: MY DAD!
« Reply #18 on: Aug 14th, 2003, 5:56pm » |
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Jonny, I am not at all upset. I loved your responce! It gave me a good laugh, and in my present set of circumstances, I need all I can get!
Thanks!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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Gofishgriff
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Re: MY DAD!
« Reply #19 on: Aug 14th, 2003, 5:58pm » |
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Lee, and you thought my glasses story was funny...
Chuck! What's the matter with you? You don't like sex with your wife? Even when she's on top? ROTFL
Ding, Ding, Ding... I think we have a winner!
Good one Chuck.
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ClusterChuck
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Re: MY DAD!
« Reply #20 on: Aug 14th, 2003, 6:08pm » |
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Gofish, I can't tell you how many times the shrinks kept on me about that! They wanted to know each and every detail of our sex lifes together and my sex life from day one!!! It was extreemly embarassing and humiliating!
And then I also had the headaches to deal with at the same time. They were convinced that it was psychological and not neurological as all my tests came back good. Therefore, I was crazy. - Not that I disput that, but it sure and hell was not the cause of the torture that I was going thru!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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Mark C
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Re: MY DAD!
« Reply #21 on: Aug 14th, 2003, 6:08pm » |
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on Aug 14th, 2003, 5:24pm, 2late wrote:i was real lucky....only about 1 year.....my p.c.p. refered an excellent neuro who know's his shit.
.............Jack |
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Hmmmm.....finally a Doctor who know's Jack's Shit!
Sorry.....
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Gofishgriff
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Re: MY DAD!
« Reply #22 on: Aug 14th, 2003, 6:14pm » |
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Good one Mark.
Chuck, I'm surprized they didn't want you and your wife to come in and go at it so they could analyze it some more. ;D Sorry, but I'm still ROTFL
You probably screwed up the old shrink. For all these years, he thought it was the wife who got the headache...
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ClusterChuck
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Re: MY DAD!
« Reply #23 on: Aug 14th, 2003, 6:19pm » |
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Don't laugh -- on second thought, go ahead -- but they did bring that up. My wife and I put the squash on that real quick!
I might be kinky and a bit of an exsobitionist (I know I butchered the spelling on that one) I was not going to have some sex depraved shrink watch us do it!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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Gofishgriff
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Re: MY DAD!
« Reply #24 on: Aug 14th, 2003, 6:21pm » |
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Enough already. My ribs are hurting.
Isn't it great you can look back at things like this and laugh?!
There's gotta be some other funny stories out there. C'mon people, fess up...
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