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Topic: i'am tired of it too (Read 274 times) |
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Boots
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i'am tired of it too
« on: Aug 10th, 2003, 8:15am » |
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going on 5 months into this cluster,been at it for 24 years now  .still trying to explain ch at work,been there for 13 years(you still injecting that pain stuff?)my wife asked me last night"arent you done with those ha's yet?".i know she cares and want's to understand but i tell her this cluster has'nt been all that different from the rest.she has seen kip 10's last for an hour and a half and asked me" why don't you sit down and relax, it'll help".i know i don't post alot but i do read yours,and i know only you can really understand.
thanks for listening
Bill
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Don't feed me sorrow,pain is the poison i digest
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Patrick_A
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Re: i'am tired of it too
« Reply #1 on: Aug 10th, 2003, 9:03am » |
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Wow Bill, I can surely relate! I am sorry to say this, but your wife needs to get a clue. I can understand my co-workers being a bit ignorant. But my family has seen me at my worst CH's and they never make comments that i would deem insensitive. In fact my Dad has been in remission for CH for about 30 years so he totally understands!
Good luck, Patrick
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Do you think that when they asked George Washington for his ID, that he just whipped out a One Dollar Bill?
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Prense
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Re: i'am tired of it too
« Reply #2 on: Aug 10th, 2003, 9:26am » |
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on Aug 10th, 2003, 8:15am, Boots wrote:| still trying to explain ch at work,been there for 13 years |
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I believe recently there was a guy that pretty much hacked his own arm off with a pocket knife (to free himself) after a rock fell on him. Describe it that way, only the pain is in your head/eye. The guy was lucky in one respect though, his arm was already numb, and he only had to go through it ONCE!
Man, I still can't believe someone could actually do that.
Seriously, I would suggest having your wife come to this site and poke around...maybe then she might have a better understanding of what you are dealing with. That is extremely important in my opinion. Support from friends and family is everything!
Best wishes!
Chris
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Opus
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Re: i'am tired of it too
« Reply #3 on: Aug 10th, 2003, 7:49pm » |
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Bill,
Yes we understand, I gave up on the wife ever understanding, I just hide when I get hit at home if I can.
Work is tough too especially if you haven't made yourself indispensable. Stick around, grab an oar and help us row to a cure.
Paul
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Big Dan
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Re: i'am tired of it too
« Reply #4 on: Aug 10th, 2003, 7:51pm » |
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... sorry that you needed to find this place, Boots.. but you couldn't have done a better thing for yourself...
... sit back, relax, put on a flame-retardant, and get to work... we all have to pull our weight to make this thing happen..
... oh.. and here's some VIBES for ya... 
-Big Dan
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cathy
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Re: i'am tired of it too
« Reply #5 on: Aug 10th, 2003, 7:58pm » |
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Hi Bill....as a supporter I can only hope that I do really understand as best I can....why not get your wife to register and come and chat on the supporters board.
PF vibes to you!
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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CathiP
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Cathy's right, Bill-you should not have to deal with this alone.....drag your wife, kicking & screaming if you must, to read some of what is here....like what Chris has written- the analogy is good....really good!
I am glad you have spoken up....you are among friends.
BE PF, Bill- and jump in....the water's fine!!
Cathi
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Charlie
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Re: i'am tired of it too
« Reply #7 on: Aug 10th, 2003, 8:33pm » |
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Sorry to hear that you're having a hard time making people understand. Here is Simon's letter on this subject that so many have copied and used just for this purpose. It's really worth the effort.
http://www.ouch-uk.org/ch/note_colleagues.cfm
Good luck and stick around Bill.
Charlie
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AlienSpaceBabe
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Re: i'am tired of it too
« Reply #8 on: Aug 11th, 2003, 11:12am » |
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CH sucks, don't it?
My brother was in town for the weekend. I got hit repeatedly on Saturday.... he found me and tried rubbing my head. Without ripping his arm out (surprisingly), I moved his hands away and put his thumb at that one spot at the base of the skull, then pointed HARD in front of me. He got it... tried to push that damn thumb straight through my skull - it was perfect!
Ripped my daughter's head off as I dove for the bathtub to douse my head in cold, cold water.
My point? After the first time each person saw me getting hit, I told them what I need and what not to do: Don't touch me. Don't try to make me stop rocking. Ice is heaven. A shot of imitrex - let me do it unless i point at it then my arm... Keep people away - I'm not a circus attraction. If I pull over on the expressway and a sheriff needs to help, get me oxygen, mask with bag, 12 to 15 liters per minute.
Hope this helps,
Lizzie
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OwieMan
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Re: i'am tired of it too
« Reply #9 on: Aug 11th, 2003, 2:26pm » |
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I hate it when they ask if its a bad one ...BWAHAHAHAHHAHAHAHAAH
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