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Topic: I got Trex!!!!!!!!!!!!!!!!!! (Read 327 times) |
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catlind
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I got Trex!!!!!!!!!!!!!!!!!!
« on: Jul 23rd, 2003, 12:23pm » |
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Went to the doc this morning to get meds for the transition during the move. Got lucky with a doc that knows about CH. Told him I wanted trex, and enough to get me through til I get a neuro in Omaha.
He had to check with the cardio, and I got approval for 2 mg injections!!!!!!!!!!!!!!!
They had to put in a special request for the vials though, but, THEY GAVE ME 35 VIALS!!!!!!!!!!!!!!!!!!!
I'm in trex heaven!!!!!!!!!!!!!!!!!!!!!!!!!
Having the cardio recommend the 2mg injections made it so I can get the vials instead of the stat dose 
Life is goooooooooooood right now!!!!!!!!!!
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Linda_Howell
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #1 on: Jul 23rd, 2003, 12:26pm » |
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Whoo-hoo!!! Cat, that is so great. I wish you coulda seen your face as the Trex kicked in as fast as it did. Pure heaven. I'm so happy for you. Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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The mad viking
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #2 on: Jul 23rd, 2003, 1:00pm » |
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Welcome to the trex-heaven Catlind.
You deserve that
Imitrex-shots is Gods gift to us clusterheads
Svenn
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Always Look on The Bright Side of Life
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NotH20
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #3 on: Jul 23rd, 2003, 1:08pm » |
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What a stress reliever Cat.....wtg girl !!!! ;D
Mia
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cathy
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #4 on: Jul 23rd, 2003, 1:12pm » |
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Catlind, really pleased for you!!!! good luck with the move....
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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stuey
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #5 on: Jul 23rd, 2003, 1:30pm » |
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Catlind that is wonderful. You just go on and be pain free damnit!!!! I didn't know imitrex came in 2mg injections. i will ask about that too. good for you! Stuey
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catlind
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #6 on: Jul 23rd, 2003, 1:45pm » |
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Stuey, you have to get the vials and needles and load the needles with 2mg. The kicker is that 2mg is equally as effective, with much less danger and side effects than 6mg for a CH'er. That was something that Dr. Bigal pointed out to us.
Glaxo has a 3mg injection out there somewhere, but won't go public with it because they don't want people to know that 3 mg is as effective for CH as 6 mg is. They are making their money on the 6mg injections.
The good thing is you can get it in vials (no idea the cost) and in 4 years Glaxo's patent runs out on trex 
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Leesa
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #7 on: Jul 23rd, 2003, 2:16pm » |
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Way to go Cat!WOOOOOOOOOHOOOOOOOOOOOO Im happy dancin for ya gal!! It's been a long time comin for ya and enjoy it hun!! You earned it that is for damn sure!!!
Happy dancin round the house, Leesa 
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"The truth of the matter is that you always know the right thing to do. The hard part is doing it." General H. Norman Schwarzkopf
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don
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #8 on: Jul 23rd, 2003, 3:30pm » |
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Ah! Mysterious ways!
For all the good you have done for other sufferers you have recieved what you need and deserve.
Restores my faith in...........something?
Made my day Cat!
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Hooter
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #9 on: Jul 23rd, 2003, 4:14pm » |
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So chuffed for you Cat!
I know how good it feels 'cos for the first time I now have a spare room stocked with a pretty oxygen cylinder and my stash of Imigran. It is a wonderful 'safe' feeling that I never had in my cycle last year.
The fear is gone and I'm SURE for me it makes the pain less.
Love
Hooter
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Jayne
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #10 on: Jul 23rd, 2003, 4:18pm » |
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That's such good news.
Another soldier gets their AMO against the beast.
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Charlie
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #11 on: Jul 23rd, 2003, 4:29pm » |
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I'm happy for you too. After meeting you and the others, I have a better picture of what you go through.
About time good things happen to good people.
Take care, kid.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Edna
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #12 on: Jul 23rd, 2003, 4:52pm » |
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Cat, so glad for you hon
And thanks for the tips............because of mail order prescription plan and a major screw up that actually "HELPED" me more than hurt.....I too have the vials of trex............and will certainly try using only the 2 mg instead of 6.
At the end of last cycle I had used only 3mg and that worked fine, but it was at the end of the cycle.....so will try and see.
pf wishes to you happy trex amo girl,
EDNA
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TerryS
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #13 on: Jul 23rd, 2003, 4:59pm » |
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Omaha? I didn't know you were heading out there. I have a ch friend that lives in and around Omaha. Her name is Carol.
If you would like her e mail address just drop me a note.
Very happy about the Trex for you.
God bless,
TerryS
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> It is only a tiny rosebud,
> A flower of God's design;
> But I cannot unfold the petals
> With these clumsy hands of mine.
> The secret of unfolding flowers
> Is not known to such as I.
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cootie
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Re: I got Trex!!!!!!!!!!!!!!!!!!
« Reply #14 on: Jul 23rd, 2003, 5:02pm » |
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Great new Cat...am very happy for you ! Pam that is happy for good news from clusterbud pals
Hi Bill
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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