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Topic: It ain't all about the partyin' (Read 1143 times) |
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Mastifflvr28
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It ain't all about the partyin'
« on: Jul 20th, 2003, 10:06pm » |
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It's about family,
from Mast, who has had 8 hours of sleep in 4 days and didn't touch a drop of alcohol...gave a total of 4 imitrex injections plus ONE on herself (sympathy HIT hopefully) and got to be a supporter and experience the other side.
And wouldn't trade it for the world.
Love you supporters.
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Mastifflvr28 (aka Michelle A.)
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don
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Re: It ain't all about the partyin'
« Reply #1 on: Jul 20th, 2003, 10:16pm » |
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GEEEEEZE !
Looks like a scene from COPs.
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kim
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Re: It ain't all about the partyin'
« Reply #2 on: Jul 20th, 2003, 10:24pm » |
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you don't need to SPLAIN, lucy.................
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Charlie
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Re: It ain't all about the partyin'
« Reply #3 on: Jul 20th, 2003, 11:01pm » |
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Really pisses me off...if ya know what I mean. 
Charlie
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Peppermint
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Re: It ain't all about the partyin'
« Reply #4 on: Jul 20th, 2003, 11:16pm » |
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speaking strictly as an outsider..........................
FUCKENEH Mast! That is the truth.  It's been intense.
I love you guys.
Peppi
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| « Last Edit: Jul 21st, 2003, 6:23pm by Peppermint » |
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When playing in the gym, beware of steel beams. - M. Amyx
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Ted
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Re: It ain't all about the partyin'
« Reply #5 on: Jul 20th, 2003, 11:21pm » |
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That top picture looked like my high school years. Throw in a shitload of straws, passed out junkies and a long gone brother and I might start waxing nostalgic here.
And you all said it wasn't all about partying.
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Ree
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Re: It ain't all about the partyin'
« Reply #6 on: Jul 20th, 2003, 11:41pm » |
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I know Ted... it does take some people back I'm sure...
This has been the most intense experience for so many here. I don't know in past conventions if so many were getting hit at the same time but we all sufferers and supporters alike have been really torn by having to witness what has been happening here. Sure we are together in all of this and that is what makes it so special. It was great to meet everyone here, but hard to then watch several of them suffer the same terror that I have seen Dave experience... The bond between all of these sufferers is incredible. As a supporter I find that the sufferers can now feel the pain of being a "witness".
Whatever fun or partying that has been done here is a deserved relaxation for a job well done. The speakers were awesome and maybe finally OUCH has met an MD that will finally help us...
an unbelievable experience... love to you all and pain free cozy nights to you all Ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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kim
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Re: It ain't all about the partyin'
« Reply #7 on: Jul 21st, 2003, 12:00am » |
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so. no it's mos defnitlynot bout the partying.
No maTTER what it's about gazing into the eyes of another -no questions asked.........a connection we have to one another......  ..........
DJ getyaself a beer and sit down. Look what ya did ya.....it is still happening..........not like that first time..............but still happening..........don't think away.........
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Ted
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Re: It ain't all about the partyin'
« Reply #8 on: Jul 21st, 2003, 12:19am » |
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on Jul 20th, 2003, 11:41pm, Ree wrote:I know Ted... it does take some people back I'm sure...
This has been the most intense experience for so many here. I don't know in past conventions if so many were getting hit at the same time but we all sufferers and supporters alike have been really torn by having to witness what has been happening here. Sure we are together in all of this and that is what makes it so special. It was great to meet everyone here, but hard to then watch several of them suffer the same terror that I have seen Dave experience... The bond between all of these sufferers is incredible. As a supporter I find that the sufferers can now feel the pain of being a "witness".
Whatever fun or partying that has been done here is a deserved relaxation for a job well done. The speakers were awesome and maybe finally OUCH has met an MD that will finally help us...
an unbelievable experience... love to you all and pain free cozy nights to you all Ree |
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You've got mail. In the meantime, exit 2? You and/or Dave have my number/last name to look it up? Stop on by and take a tour of the summer in the Berkshires. Dave, look up Cranwell's golfing. They decided to go from a crap green to world class. Best restaurants in MA too. My treat. Order chicken. Seriously. Stop on by and everything will be my treat.
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kim
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Re: It ain't all about the partyin'
« Reply #9 on: Jul 21st, 2003, 12:30am » |
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k................now can i throw up? lol ;D
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Ted
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Re: It ain't all about the partyin'
« Reply #10 on: Jul 21st, 2003, 12:35am » |
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I've been reading your posts. Like you're starting now.
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Edna
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Re: It ain't all about the partyin'
« Reply #11 on: Jul 21st, 2003, 4:46am » |
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BACK TO THE SUBJECT....
Thanks for a sincere post Mast, and I hope too you had only the need for that one burst of sympathy hit also.
Here's hoping that all who are in pain can soon realize pf moments for themselves.
you did good girl, I'm proud of ya
Love EDNA
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don
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Re: It ain't all about the partyin'
« Reply #12 on: Jul 21st, 2003, 6:16am » |
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A microcosom of the world of Cluster Headaches.
A small group that for 2 days represented what thousands of sufferers/supporters endure on a daily basis, all their life. These are the ones that are treated properly, how many others?
The intensity and immensity of it blows ME away and I wasn't even there.
I hope the speakers were aware of what was happening ? Is it all neccesary, I doubt it.
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| « Last Edit: Jul 21st, 2003, 6:20am by don » |
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OwieMan
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Re: It ain't all about the partyin'
« Reply #13 on: Jul 21st, 2003, 8:45pm » |
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So you're saying that all you clusterheads get together and have Imitrex parties ??? 
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Charlie
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Re: It ain't all about the partyin'
« Reply #14 on: Jul 21st, 2003, 9:03pm » |
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Let's be nice here kids.
Imitrex parties........interesting idea but hardly what goes on. We drink beer, listen to speakers, drink beer, eat stuff, drink beer, exchange ideas, drink beer, play golf, drink beer, take tours, drink beer, and post hundreds of pictures. Out of beer.
Be prepared for some real noise Owie.
Charlie
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suzy617
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Re: It ain't all about the partyin'
« Reply #15 on: Jul 21st, 2003, 9:14pm » |
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Your so right Mast. I also got to be a supporter this weekend instead of a victim. It is so hard to find the words of how I felt having witnessing this.
I learned alot of new info that will help me when my time comes.
I felt a very strong bond with all. It was just an awesome experience.
Suzy
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Ree
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Re: It ain't all about the partyin'
« Reply #16 on: Jul 21st, 2003, 10:49pm » |
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sorry Tedkins didnt get this post til now took a detour and ended up 2 hours off schedule... Next time for sure my friend... but next time dont miss the convention... who knows when it will be this close ever again......love me
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespockethttp://www.prohawaiian.com
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cootie
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Re: It ain't all about the partyin'
« Reply #17 on: Jul 21st, 2003, 11:12pm » |
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Wonderful INSTANT best friend expirience at the convention with all the supporters and suffers....it was not just a party......we went....'we saw'.....we bonded and shared and learned tagether.......includeing the doctor speakers. That doc was awesome...he also "seen" and learned alot and was totally into it all. It was a totally awesome weekend......amazed me how close we felt the second we met. I miss everyone already !!! Takes alot to impress the Coots..........leme tell ya......I was IMPRESSED ! Pam that wonders how 'you' doin
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catlind
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Re: It ain't all about the partyin'
« Reply #18 on: Jul 21st, 2003, 11:21pm » |
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on Jul 21st, 2003, 6:16am, don wrote:
The intensity and immensity of it blows ME away and I wasn't even there.
I hope the speakers were aware of what was happening ? Is it all neccesary, I doubt it. |
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Don, still seriously upset you could not attend 
Mind blowing is an understatement. Our speakers were not only aware but witness.
A page out of that chapter:
Our sweet Roxy had just been hit hard, witnessed for the 2nd time by our fabulous speaker Dr. Bigal. DJ, myself, Roxy and our newest bestest friend Marcelo (he was in friend mode then, not speaker/doc mode) sat there after she had found relief from her pain laughing and going back to life as usual. We all talked about how great a time we were having, and our newest friend sat back and stated simply "I'm depressed!" To us we just pick up and carry on with life. To him, he had to sit and witness what is known as the worst pain to man and as a Dr and a researcher searching for a remedy know that he could do nothing for her.
They know. Probably in a way they could never have known before, and we have some wonderful friends and allies now
Will be preparing much much info as quickly as possibly for the board and the members. Soooooooo much to do, so much to get out and somehow, someway, I HAVE to impress on each person not in attendance the extreme excitement of everything NEW we learned about CH. Never believed that new to that extent was possible....
Cat
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Charlie
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Re: It ain't all about the partyin'
« Reply #19 on: Jul 22nd, 2003, 12:36am » |
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Doc was great. A fun youngster, who besides having a bedside manner better than Marcus Welby, told us about Brazilian fresh pub beer.
Charlie
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Roxy
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Re: It ain't all about the partyin'
« Reply #20 on: Jul 22nd, 2003, 12:48am » |
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Dr. Bigal makes a pretty good supporter. He had seen a cluster attack before, but it had been many years. This is one thing I never thought would ever happen.....having a neuro sit with me through two hits, and then tell me he had never felt so helpless. And he couldn't figure out why we were all laughing.....LOL.
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pigeon
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Re: It ain't all about the partyin'
« Reply #21 on: Jul 22nd, 2003, 11:31am » |
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I tried to make this event all about the partyin'. Having never witnessed an attack from the other side, when you see your newest bestest friend getting slammed you sober up real quick. The word Supporters is now redifined and greatly appreciated and profoundly respected.
CAT you are an unf'nbelievable woman. Thank U
Mast thanx for sharing your pain(how u doin?)
This was not a party, It was a once in a lifetime experience(hopefully repeated each and every year)
DJ is da man
I am starting to save now so I can be at the next family reunion. PF days to all.
Enough of this emotional crap......It's time for a beeerrr(or however the mass contigent says it)
PS I think I heard Ree say the F-word 2 times(can anyone verify that)
Thank u all
JoeP 
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Ree
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Re: It ain't all about the partyin'
« Reply #22 on: Jul 23rd, 2003, 8:18pm » |
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YOU tattletailer Joe............How YOU doin??? Dave says hi...
Love Ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespockethttp://www.prohawaiian.com
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Elaine
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Re: It ain't all about the partyin'
« Reply #23 on: Jul 23rd, 2003, 8:29pm » |
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You will never know the feeling of this unless you are there. The watching and KNOWING the pain they feel and knowing that there is nothing you can do, I watched Tim and Linda and Roxey. My insides just twisted up. A tear let me down with Roxy. I worried so much about Cat when I went to get her a coke and came back she was gone. I knew there was nothing I could do but pray.
The partying well the parting was a way to enjoy. We can hurt and still have a great time afterwards. I got hit three times. It was nice to find someone joking when I returned, it was nice to be able to have something to laugh about when the pain was gone.
It was much more than a party it was so many things.
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stevegeebe
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Re: It ain't all about the partyin'
« Reply #24 on: Jul 23rd, 2003, 9:05pm » |
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Elaine,
I never thought of it that way. What it is to truely know what it feels like and have to watch another go through it.
I don't know if I would know how to act. Would I get out of the way? I don't know.
Steve G
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