Author |
Topic: Any new miracles from this time last year? (Read 333 times) |
|
Tessa
New Board Newbie
I love YaBB 1G - SP1!
Gender: 
Posts: 16
|
 |
Any new miracles from this time last year?
« on: Jul 19th, 2003, 8:47am » |
 Quote  Modify
|
I'm back again for another yearly round of mind numbing torture! Forgot my password from last year so I had to make a new one! The beast is rearing his ugly head and I just wanted to check with everyone and see if there is anything new in the world of cluster's. Mine are episodic and very punctual this year. I'm glad I have this web site to get me through it! Any new info would be helpful, and I am interested in hearing more about this shrrom treatment. I am a 17 year sufferer and have seen and done it all! Currently using imitrex and oxygen, the most efeective to date, but my insurance only gives me 15 and 3/8's a month of imitrex. How the hell do you get the 3/8's out of the pharmasist? Stupid insurance companies! Anyways, hoping for a reply from someone saying yes, we found a cure! Doubt it, but I am just starting a cycle and still have my sense of humor. Give me a few weeks and I'll be crawling in here begging for relief!
|
|
 IP Logged |
|
|
|
rumplestiltskin
Guest
|
I have been here almost daily for 4 years. IMHO you got a shitload of catchin up to do. The sheer volume of daily posts here is staggering. This will be the slowest weekend in a year cause most of the rattletraps are face to face, smile to smile at the convention.
I will say that between this forum, the "medication" forum and the "supporters" forum there is one of the widest variety of techniques and meds and theories currently being discussed than I have seen for quite some time.
One definative silver bullet in the CH world is as yet undiscovered....BUTT You may find yer "miracle" waiting in one of those posts...most certainly a way to "manage yer pain" is at this site. You have to look I can't take you there because I don't walk in yer shoes or hurt in yer face.
...and beyond that...I believe there is some crappy mumbo jumbo from the inexperienced and/or self styled "experts" being put forth....including some politics from the dark side masquerading as saints being espoused here.....as always. My catch phrase, "take what ya need and leave the rest" seems timely right now.
....another catch phrase "grab an oar" comes to mind....which I saw you do quite nicely in yer responce to CarlD's post.
Welcome back
Walk in the sunshine
den
|
|
IP Logged |
|
|
|
don
Guest
|
|
Re: Any new miracles from this time last year?
« Reply #2 on: Jul 19th, 2003, 11:08am » |
Quote Modify
 Remove
|
1 word: "awareness"
2 words: "Rome , Italy"
3 words: "We are there"
|
|
IP Logged |
|
|
|
justin
New Board Veteran
what it is...
Gender: 
Posts: 211
|
|
Re: Any new miracles from this time last year?
« Reply #3 on: Jul 19th, 2003, 11:55am » |
Quote Modify
|
hey,
i've posted this concoction a few times. hope it can help you . talk to your neuro.
verapamil, 480mg a day
neurontin , 300mg a day
depakote, 1000mg a day (extended release formulation)
and of course i still get the odd breakthrough so imitrex and oxygen
best of luck
|
|
IP Logged |
if any clusterheads in NYC want to get together shoot me an email justinott@mac.com
|
|
|
BobG
New Board Hall of Famer
Gender:
Posts: 5747
|
|
Re: Any new miracles from this time last year?
« Reply #4 on: Jul 20th, 2003, 4:11am » |
Quote Modify
|
Quote:| Any new miracles from this time last year? |
|
Yes. Our webmaster left a message yesterday.
I ain't saying where or to whom. You'll have to find it yourself.
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
   
Gender:
Posts: 14968
|
|
Re: Any new miracles from this time last year?
« Reply #5 on: Jul 20th, 2003, 10:00pm » |
Quote Modify
|
Lots of good stories to check from newbies and others that may switch on the lightbulb above your head. Take a good look and feel free to ask questions or contribute again.
There ought to be some informative posts coming out the the convention in the next few weeks. It was interesting as hell to me and great to listen to an MD who oddly, decided this horror needs some attention. The future may look a bit brighter for some who are still afflicted. At least they know more research is actually going on.
Stick around and rant away if you need. Anything that helps take your mind off the beast for a minute, is fine.
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
don
Guest
|
|
Re: Any new miracles from this time last year?
« Reply #6 on: Jul 20th, 2003, 10:20pm » |
Quote Modify
Remove
|
Quote:| Yes. Our webmaster left a message yesterday. |
|
ROFLMMFAO
|
|
IP Logged |
|
|
|
Tessa
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 16
|
|
Re: Any new miracles from this time last year?
« Reply #7 on: Jul 23rd, 2003, 3:00pm » |
Quote Modify
|
somebody tell me what message the webmaster that that's so damn funny, I WANT TO SEE IT!
Teresa
|
|
IP Logged |
|
|
|
Mark C
CH.com Alumnus
New Board Hall of Famer
Onward through the fog.
Gender:
Posts: 2660
|
|
Re: Any new miracles from this time last year?
« Reply #8 on: Jul 23rd, 2003, 3:06pm » |
Quote Modify
|
on Jul 20th, 2003, 4:11am, BobG wrote:
Yes. Our webmaster left a message yesterday.
I ain't saying where or to whom. You'll have to find it yourself. |
|
on Jul 20th, 2003, 10:20pm, don wrote:
LMFAO !!
|
|
IP Logged |
Click The Flag
|
|
|
cathy
CH.com Alumnus
New Board Hall of Famer
Not all those that wander are lost......
Gender:
Posts: 2267
|
|
Re: Any new miracles from this time last year?
« Reply #9 on: Jul 23rd, 2003, 3:08pm » |
Quote Modify
|
We have a webmaster.... ???
Cathy 
|
|
IP Logged |
My own tears would mean nothing to me, if I could stop you from just shedding one....
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss