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   Author  Topic: Sin City  (Read 774 times)
LasVegas
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Episodic CH since 11 yrs old, now 39.

   
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Sin City
« on: Oct 3rd, 2003, 3:45pm »
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If anybody living in or planning a visit to Las Vegas would like to meet in person, let me know.  
 Gregg in Las Vegas
ghwieser@aol.com
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Wishing all a Pain Free 2008!
LasVegas
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Episodic CH since 11 yrs old, now 39.

   
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Re: Sin City
« Reply #1 on: Oct 24th, 2003, 10:36pm »
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We will be holding our first CH support group meeting in Las Vegas this Tuesday, October 28th at 7pm at the Clark County Public Library located on East Flamingo, between Maryland Pkwy and Spencer.  
 
Spouses and other supporters welcome. Neurologists, nurse practitoners and Emergency Room employees highly encouraged.  
 
 If you have not already confirmed your attendance or need more details, email me.
Gregg in Las Vegas
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vig
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Re: Sin City
« Reply #2 on: Oct 28th, 2003, 3:35pm »
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What happens there stays there!
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never, Never, NEVER quit. -Winston Churchill
LasVegas
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Episodic CH since 11 yrs old, now 39.

   
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Re: Sin City
« Reply #3 on: Oct 28th, 2003, 5:53pm »
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on Oct 28th, 2003, 3:35pm, vig wrote:
What happens there stays there!

 
Sure Vig, agreed, that is how I am running this meeting.  Anybody interested, the Las Vegas 1st meeting is tonight at the Clark County Public Library on East Flamingo at Maryland Pkwy (across from Starbucks and SavOn Drugs) at 7pm.  Meet in the main lobby entrance off the back parking lot.  About 8 people say they will show.  Hope to see you there.
Gregg in Las Vegas
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LasVegas
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Episodic CH since 11 yrs old, now 39.

   
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Re: Sin City
« Reply #4 on: Oct 29th, 2003, 12:40pm »
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It was so good to meet five other Cluster Sufferers last night at our first "Cluster Sufferer" Las Vegas meeting.  We all introduced ourselves, discussed preventative and abortive meds, local doctors, discussion of hypothalymus gland and trigeminal nerve, triggers, potentially forming a local chapter of OUCH, exchanged phone numbers, a demo of the "Imitrex Tip", etc.  Met for 2 and a half hours.
 
All six of us were male, four out of six are smokers, we all are overthinkers, we all are left sided sufferers, ages ranged from 32 to 56, five of us are episodic, one was chronic, we all have health insurance or VA medical assistance, two of the six are Vietnam Veterans, three of us are self employed, one service-related disabled and two are full time employees, two reported deviated septums on the left (Cluster) side-one of these two men had it fixed but did not cure CH's, one had a brain tumor removed-but did not cure CH's, one with history of two closed head injuries.  Of the six of us, one has been PF for 4 days, one is chronic with an average of 1 or 2 daily, the other four haven't experienced a CH in 2, 3 and respectively 4 years.  Reported initial onset of CH's began at age 11, 16, 24, 30 and mid-20's, mid-30s.  Very productive first meeting with all of us understanding that we now have local contacts and are not alone.
Gregg in Las Vegas
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LasVegas
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Episodic CH since 11 yrs old, now 39.

   
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Re: Sin City
« Reply #5 on: Nov 30th, 2003, 9:53pm »
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Anyone interested in Round Two, sometime early December?
 
Gregg in Las Vegas
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Tiannia
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Re: Sin City
« Reply #6 on: Dec 1st, 2003, 12:40pm »
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Sounds good, but will need to be a weekend, as during the week right now is a joke with the kids and such.
 
Tia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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