Author |
Topic: Role of coffee (Read 537 times) |
|
Dave
New Board Junior
Gender: 
Posts: 62
|
 |
Role of coffee
« on: Oct 29th, 2005, 1:40pm » |
 Quote  Modify
|
I've noticed that coffee can sometimes be helpful but also on occassion can be a trigger.
I have recently come to believe that coffee and the habit of drinking it daily may be a very, very bad thing for CH syndrome even though the effects are not always immediate.
Has anyone tried totally eliminating coffee (including decaf) and all caffeinated beverages? Did it help?
|
|
 IP Logged |
|
|
|
Redd
CH.com Alumnus
New Board Hall of Famer
Gender: 
Posts: 6661
|
|
Re: Role of coffee
« Reply #1 on: Oct 29th, 2005, 1:54pm » |
Quote Modify
|
Don't you take away my coffee....anyone who tries would pull back a bloody stump. It's as much of a daily medication for me as anything else. I drink it strong to start with, and I make double strong that all I need to do is pop in the micro...
|
|
IP Logged |
I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
|
|
|
pattik
CH.com Alumnus
New Board Hall of Famer
 
Gender:
Posts: 2404
|
|
Re: Role of coffee
« Reply #2 on: Oct 29th, 2005, 2:01pm » |
Quote Modify
|
About eight years ago, I got off of caffein entirely (not for CH reasons) for about two years. Now I mostly drink tea. During my caffein-free time there was no improvement in the frequency or intensity of my cluster headaches. Just my 
Pat
|
|
IP Logged |
The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
|
|
|
rextangle
Guest
|
Well, it's a balancing act.... if you do too much, you'll get a rebound HA. But when I wake up sore in the morning, my 2 cups definitely clear it up, and then I can remember my name, the name of my wife, I stop wondering who's cat is sleeping on the bed, ....
My neuro had told me to quit cigs and coffee...
I wanted to tell her to quit talking shit and stop breathing.
That evil evil bitch!
COFFEE ROCKS!
REX
|
|
IP Logged |
|
|
|
Jasmyn
CH.com Alumnus
New Board Hall of Famer
Each day will be a new trick in life's journey
Gender:
Posts: 2762
|
|
Re: Role of coffee
« Reply #4 on: Oct 29th, 2005, 3:40pm » |
Quote Modify
|
I believe that coffee:
Wakes-up tired braincells
Make meds work faster
Gives energy after lack of sleep
Is my friend 
|
|
IP Logged |
Jazz
Madness is proclaimed by society’s inability to accept its own infallibility
|
|
|
jon019
Guest
|
Hi Dave,
Balance, titration, timing, dosage...
Can't I just drink a dang cup of coffee? Well, depends. If you are a clusterhead in cycle, better be careful.
Pure and simple, caffeine constricts blood vessels. Our heads are full of them and in cluster they don't behave.
Triptans, caffeine, ergotamines, O2, et al, they all constict those bad boys and stop (we hope, pray?) the crap we deal with.
For me, a cup of coffee at the right time might abort a hit or send the shadows packing. The body, however, is an amazing thing, it ADAPTS. Read the threads here and you will see how often what worked before just don't work no more.
Too much caffeine or at the wrong time and guess what,
rebound headache. Personally, I avoid it during cycles except as a med. My experience is that it is more effective in that situation after having avoided it. Only you will know what works best for you.
Regards
Jon019
|
|
IP Logged |
|
|
|
kyt
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 10
|
|
Re: Role of coffee
« Reply #6 on: Oct 29th, 2005, 10:35pm » |
Quote Modify
|
 to more coffee...
|
|
IP Logged |
If you choke a Smurf...what color does it turn?
|
|
|
zanychef
New Board Newbie
i'm busting with a masx cant really go wrong can i
Gender:
Posts: 46
|
|
Re: Role of coffee
« Reply #7 on: Oct 30th, 2005, 11:11am » |
Quote Modify
|
i drink 3 pots of strong coffee a day never rebound and during or after a hit it helps me get back on track 
DONT TAKE MY COFFEE AWAY!!! 
zany
|
|
IP Logged |
plenty of time to sleep now me headaches aint too bad
|
|
|
Lastdaddy
New Board Newbie
My II's are always open !!
Gender:
Posts: 23
|
|
Re: Role of coffee
« Reply #8 on: Oct 31st, 2005, 5:17pm » |
Quote Modify
|
Coffee and pain meds are the only thing that are helping me this cycle, after an 8 year remission I'm not up on the newer meds out there. In the past coffe has sometimes worked for me and sometimes it hasn't. As I have yet been to see the Doc this time around , The coffee will have to suffice for now!! Another thing , being most of my really severe Bites happen 3 or 4 in the Morning, coffee is the fastest things for me to get my hand on. Since there is usually some in the pot I just throw it in the Mircowave for a minute to get it hot, by the end of the 1st cup I can feel it starting to diminish !!!
|
|
IP Logged |
Lastdaddy/Nico/Daddy
|
|
|
youngmichael
New Board Newbie
Artist, Episodic CH
Gender:
Posts: 36
|
|
Re: Role of coffee
« Reply #9 on: Oct 31st, 2005, 9:01pm » |
Quote Modify
|
I've never had coffee before, and I haven't drank any soda for a couple years now.
I'm 2 1/2 weeks into a cycle and it's getting worse each day. My guess is that caffein has little if any influence.
|
|
IP Logged |
|
|
|
Dave
New Board Junior
Gender:
Posts: 62
|
|
Re: Role of coffee
« Reply #10 on: Oct 31st, 2005, 9:55pm » |
Quote Modify
|
Has anyone ever had an attack or shadows triggered by decaf coffee?
|
|
IP Logged |
|
|
|
jon019
Guest
|
Yup, and a Kip 10 after no alcohol wine...
Jon019
|
|
IP Logged |
|
|
|
floridian
Guest
|
on Oct 31st, 2005, 9:55pm, Dave wrote:| Has anyone ever had an attack or shadows triggered by decaf coffee? |
|
People who drink moderate to heavy amounts of coffee have elevated levels of TNF (tumor necrosis factor), which could feed into the immune activation seen in clusters (along with IL-1, IL-6, nitric oxide, etc). Moderate to heavy coffee consumption is also linked to an increase in Rheumatoid factor and Rheumatoid arthritis - not a direct concern in CH, but a sign that coffee can be inflammatory.
Tea does not have the same effect, and green tea can lower these inflammatory compounds. But when a CH occurs, coffee can be good.
|
|
IP Logged |
|
|
|
Sandy_C
CH.com Alumnus
New Board Hall of Famer
Burn that bra!
Gender:
Posts: 2585
|
|
Re: Role of coffee
« Reply #13 on: Nov 1st, 2005, 9:09am » |
Quote Modify
|
Three cups of coffee in the morning - then more caffeine for me, especially in the evening. Keeps me wide eyed and jittery all night long. Never seemd to make much difference in my CH hits whatsoever.
However, a nice piece of chocolate now and then doesn't hurt! - but only when out of cycle 
Sandy
|
|
IP Logged |
Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
|
|
|
Lastdaddy
New Board Newbie
My II's are always open !!
Gender:
Posts: 23
|
|
Re: Role of coffee
« Reply #14 on: Nov 1st, 2005, 10:25am » |
Quote Modify
|
Hi, Jon019 says Caffine constricts Blood Vessels, well about 20 yeqars ago a Dr explained CH this way to me: For some unknown reason the blood vessels in the head constrict , when the Blood flow tries to get through the constricted vessels that's what causes the pain we all experience. Not yet knowing what I was dealing with it sounded logical to me.As I've stated in an earlier post Coffee has worked for me in the past on a limited basis. After an 8 year remission and shortly after my current cycle began my wife remembered me telling her about that and suggested I try it, Lo and behold it's been working pretty good for me this time around.usually after the first cup I can feel the Beast climbing back into the hell from which it came !! I am 4 weeks into this new cycle, my Doc was on Vacation for two of those weeks so I've yet to see him, so untill I do and he prescribes something that works faster and better or untill the coffee stops working I wll keep the pot full Because most of the pain come within 2 hours of falling asleep !!
|
|
IP Logged |
Lastdaddy/Nico/Daddy
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss