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Topic: Going to the Neuro on monday what should I ask for (Read 355 times) |
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gfdfirefighter
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Going to the Neuro on monday what should I ask for
« on: Oct 26th, 2005, 2:58pm » |
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I Need help I suffer from episodic CH
What should i ask for as far as prevenative medication.
I am currently using O2 for the everynight bouts.
But have been doing that since late august. I have access to it throught the fire dept. the last time I had these he put me on lithium felt like a zombie don't want to go there again. but one thing is for sure i deffinetly want to say goodbye to the beast for another five years.
I miss my tequila 
Smiley
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| « Last Edit: Oct 26th, 2005, 3:00pm by gfdfirefighter » |
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Les we never forget 9/11/01 we lost 343 american Hero's(God Has Got One Heck Of A Fire Dept)
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vig
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Re: Going to the Neuro on monday what should I ask
« Reply #1 on: Oct 26th, 2005, 3:27pm » |
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Hey Smiley!
Most people start with Verapamil.
It has low side effects mixed with being pretty effective.
It's a good place to start.
My opinion is to avoid Prednisone, if possible.
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never, Never, NEVER quit. -Winston Churchill
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gfdfirefighter
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Re: Going to the Neuro on monday what should I ask
« Reply #2 on: Oct 26th, 2005, 4:12pm » |
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Thanks Vig
I will make that my request and see what the Doc say's
Thanks Again
Smiley
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Les we never forget 9/11/01 we lost 343 american Hero's(God Has Got One Heck Of A Fire Dept)
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Jonny
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Re: Going to the Neuro on monday what should I ask
« Reply #3 on: Oct 26th, 2005, 6:25pm » |
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Yeah, Verapamil works for lots of folks.....ask about that.
Ive been taking Verapamil and Lithium everyday for about 13/14 years....It was a godsend for all those chronic years....Ive been PF for awhile, first time in 30 years....What a ride!!....LMAO
Feel your Doc out, ask what he thinks you should try.....you can always bounce that off the folks here to see if what he recommends has worked for them.
Good luck, Dude!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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gfdfirefighter
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Re: Going to the Neuro on monday what should I ask
« Reply #4 on: Oct 26th, 2005, 6:35pm » |
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Hi Jonny
Will do I am just hoping the Doc I see is up to speed on CH's I have wrote down all my episod's from the begining all the symptons and med's i have used in the past. I actually feel pretty good today so i am hoping to have a good night but if not I got my O2 handy.
Talk to ya later
Thanks for the advice 
Smiley
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Les we never forget 9/11/01 we lost 343 american Hero's(God Has Got One Heck Of A Fire Dept)
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E-Double
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Re: Going to the Neuro on monday what should I ask
« Reply #5 on: Oct 26th, 2005, 6:52pm » |
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This is a great resource to know like the back of your hand...print it out and give it to the doc
http://www.brightok.net/~mnjday/chtherapy.pdf
It will present the appropriate treatments that you should seek and your doctor should know!!!
If you want an abortive with the least amount of side-effects O2 should not only be requested but demanded from your doctor!!!
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm
I have recently been using Zyprexa as an abortive and have found it to work (for me) as fast as Imitrex and without the "hangover"
Good luck
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Jonny
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Give me a shovel Ill dig my own grave!
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Re: Going to the Neuro on monday what should I ask
« Reply #6 on: Oct 26th, 2005, 7:08pm » |
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on Oct 26th, 2005, 6:35pm, gfdfirefighter wrote:| I have wrote down all my episod's from the begining all the symptons and med's i have used in the past. |
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You are way ahead of the normal CH'er that has not been here, Bro....Good for you!!
Check out E-Doubles links and print out what you think might help.......you can never have enough info
Also, bounce on up to the General board....lots of laughs up on that mutha.....LOL
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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gfdfirefighter
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 21
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Re: Going to the Neuro on monday what should I ask
« Reply #7 on: Oct 27th, 2005, 12:22pm » |
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Thanks Guy's
E-Double thanks for the info I want to go in with both barrels loaded
Smiley
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Les we never forget 9/11/01 we lost 343 american Hero's(God Has Got One Heck Of A Fire Dept)
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