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Topic: One Story of Many (Read 303 times) |
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Tom54
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One Story of Many
« on: Aug 10th, 2005, 2:06am » |
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History: Chronic for 5 years, previous episodic for decades. From Chicago area. Now live in southern california.
Diagnosis by Latest Nuerologist: Rebound Headaches
To say the least I was floored!
The story is, I wait for this special appointment over several months, as recommended by my primary care guru, because some left side & lower back parts aren't workin right. I figure its from my DVT/PE I survived 2 years back. "Nope" he says, but you should see Dr. so n so... My primary care guy is great! He understands the CH well...The Nuero person didn't!!!
She walks into the room and I limpididly move to a chair...cuz my body just doesn't respond as fast as it used to, along with a few critical joints. Her attitude is one of an unexpected, interrogation barrage with a twist of "I write nuerology periodicals, I'm a headache expert but never had one in my life" type attitude; as if, I'm an instant drug abuser and non-conformist.
I was clueless as to why the apparent "animosity" and general lack of care. She asks how many headaches do I get a day. I respond with 2-3, depending on circumstances. Without any expalantion or question of what these circumstances are...let alone why I was there to begin with, she unloads with a statement:
You're using way too much Imitrex, How did you get this? You know that Cluster means its periodic in months and very few people have 2-3/day! You are having rebound headaches...
Within a few seconds of her last "s", I state: We're done! Thank you...and left the building.
(Of course patient advocacy will certainly hear from me)
At any rate, has any one else experienced this phenomenon? I guess cluster isn't in her vocabulary???
So, back to my guru primary care guy...I'll give him an ear full as well.
My Point (I guess): 2 hour trip. Parking Fee. Arrive 1 hour early. See Neuorologist for 4 minutes. Invoice my insurance company. Prescription expires soon. Find another. Pay more money for more appointments just to get some relief !!!!!!!!
I'm about done with the whole mess
Tom
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giffy76
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Give me Imitrex or give me death.
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Re: One Story of Many
« Reply #1 on: Aug 10th, 2005, 5:35am » |
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This happens every time I change neuros. I was diagnosed by my family doc. 12 years ago but every fricken neuro I go to thinks the last one mis-diagnosed me and we start at the beginning. It's complete B.S. and I think doctors suck!
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E-Double
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Are we ourselves?
  
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Re: One Story of Many
« Reply #2 on: Aug 10th, 2005, 6:52am » |
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Rebeound headaches are actually called.......
Analgesic Rebound Headache.
Imitrex is not an analgesic!!!!!
I am going through rebound at the moment from withdrawing indomethacin from my system after a full yr.
It sucks to say the least in fact it HURTS but it certainly isn't CH!!!!!!
I hate docs like that.
Good luck
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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brainfreeze
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Re: One Story of Many
« Reply #3 on: Aug 10th, 2005, 9:32am » |
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Haven't located a good neuro yet. I just tolerate the one I have. I did have another neuro send me a letter stating we couldn't have a doctor-patient relationship and asked me to find another doc. I can't imagine where he got his attitude. My last visit with him involved with him saying, 'pain, what is pain?' Well, you can imagine my response. 
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Susan
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kimmeesue
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Re: One Story of Many
« Reply #4 on: Aug 10th, 2005, 11:37pm » |
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I'm beginning to think neuros are dealing with the wrong end of the body. In my experience they are all anal. This + this + this= CH. Period. No deviation allowed. And the thing that seems to upset them the worst is frequency and duration. Not to mention "shadows".
I was a 25 yo pregnant female when I was first diagnosed by a GP. Hardly a classic case. Luckily the doc was able to see the big picture. Most can't or won't.
Has anyone considered putting on a symposium...invite neuros to spend a week with a convention center full of clusterheads? Might open some eyes.
Kim
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If I wasn't doing this I'd probably be doing something else.
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Jeepgun
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BOHICA!!!
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Re: One Story of Many
« Reply #5 on: Aug 11th, 2005, 7:59am » |
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on Aug 10th, 2005, 11:37pm, kimmeesue wrote:| I'm beginning to think neuros are dealing with the wrong end of the body. In my experience they are all anal. |
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You may be right, KimmeeSue. I told my last neuro to stick his Depakote, oral Imitrex, and "cluster migraines" diagnosis up his ass. Suffice to say, we had a rather frank exchange of views.
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Her: "Have you ever hit a deer?"
Me: "What, like, in the FACE?"
Her: ..... "WHAT is the MATTER with you!?"
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seasonalboomer
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If I think hard enough maybe it'll go away.....
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Re: One Story of Many
« Reply #6 on: Aug 11th, 2005, 8:00am » |
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on Aug 11th, 2005, 7:59am, Frank_W wrote:| Suffice to say, we had a rather frank exchange of views. |
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Wouldn't any exchange of views with you be a "frank" exchange of views?
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seasonal boomer
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