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Topic: Sleep Deprevation (Read 418 times) |
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millie the episodic
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Sleep Deprevation
« on: Jul 22nd, 2005, 2:20am » |
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Hello Out There, 
I was just wondering if anyone out there has been told by your neuro that our problem of Cluster Headaches could be coming from sleep deprevation. That we are not getting enough level 4 sleep, dream land. She prescribed Amitriptyline and Lorazapam  . I hate the idea of feeling like a sleep walking zombie, but I have to try something, I don't know what else to do. 
Millie
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| « Last Edit: Jul 22nd, 2005, 2:21am by millie the episodic » |
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burnt-toast
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Re: Sleep Deprevation
« Reply #1 on: Jul 22nd, 2005, 2:37am » |
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The old maintain normal sleep habits bit. What a joke.
In case it hasn't become clear to the medical community CH causes sleep deprivation. It happens to be what this nightmare is best at.
Nothing like gettin' smacked in the side of the face/head with a hammer while someone jams a sharp curling iron through the roof of your mouth and out your eye - several time a night - to assist one in maintaining normal sleep habits.
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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millie the episodic
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Re: Sleep Deprevation
« Reply #2 on: Jul 22nd, 2005, 2:44am » |
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Those are my thoughts exactly. That is what I tried to explain to the neuro, but she wanted me to see things her way. The H/A's and the fear of getting a H/A are what keeps me from sleeping. 
Question, Why do we (some of us) go into remission and have no headaches? Do we just all of a sudden start sleeping deeper and the H/A's go away?
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burnt-toast
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Re: Sleep Deprevation
« Reply #3 on: Jul 22nd, 2005, 3:13am » |
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A). Do you stop having CHs because you're sleeping better?
B). Do you start sleeping better because you're not having CHs?
I'm pickin' B.
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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BobG
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Re: Sleep Deprevation
« Reply #4 on: Jul 22nd, 2005, 4:07am » |
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I'm with Tom, pickin' B.
Deep sleep is where you don't want to go. Try melatonin or dramamine (sp?). It may help with your sleep by keeping you out of the REM sleep mode.
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Stay stressed. Never relax. Never sleep. Ever.
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millie the episodic
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Re: Sleep Deprevation
« Reply #5 on: Jul 22nd, 2005, 7:47am » |
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 I had chosen B too. But I am not a doctor. I am a clusterhead who feels like a lab rat.
I have been on this Amitriptyline for two days, while having to drag myself to work because of the after affect of the drug only to have an attack at 3:30 and one at 6:30 and yes I am in it right now.
It is hard but I don't know what else to do. I am grasping at straws.
Thank God for you all!!!
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floridian
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Before a summer cycle, I start to sleep less, and wake up on my own earlier and earlier. I used to think this was great (more productive, energetic). Now I know it means my hypothalamus is slipping into a cluster pattern, and I need to restore my normal sleep patterns.
Taking melatonin as soon as the prodromal symptoms (warning signs) helps me reduce or supress a cycle. Magnesium supplements can also help the circadian clock to work better in some people.
That doesn't mean that poor sleep is The Cause - there are other things going on. But improving sleep can help many people. I prefer melatonin to some of the prescription pharmaceuticals ... it doesn't change the structure of sleep. Clusterheads produce less melatonin than normal people, and this is true year round, in cycle and out.
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| « Last Edit: Jul 22nd, 2005, 8:08am by floridian » |
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Topical
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Re: Sleep Deprevation
« Reply #7 on: Jul 22nd, 2005, 8:49am » |
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A week after getting back from a cross-country trip by car I had my CH come back. My sleep was slightly deprived and the time adjustment was severe, roughly 8 hours (+-3 hours from the time zones).
Since then another person asked this question and I decided to be a guinea pig. (Actually, I love the Tour de France and wanted to watch it live.)
I threw off my time schedule and now am sleeping roughly 8 hours past my usual time. I was in cycle but noticed no change to my CH. I had one attack in 7 days. I am taking Verapamil as a prevent. I also stayed up 28 hours one day and stayed PF for 2 days.
I have been getting 6-7 hours of sleep a day.
I will stop on Sunday as that is the end of the Tour. It's completely anectdotal and not scientific at all but wanted to share.
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BMoneeTheMoneeMan
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Re: Sleep Deprevation
« Reply #8 on: Jul 22nd, 2005, 2:51pm » |
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Well, look at the melatonin/benadryl info here on this site. I have have problems with sleeping for years, and took almost all prescription sleep aids with no help. After seeing the info on melatonin, i started taking that, and swear to god i am getting the best sleep i have gotten in my whole life. It does reduce the quantity of CHs i get per night, and when i do get one, the benadryl helps keep my eye from tearing and my nose doesnt get stuffed up anymore either.
I take 9mg melatonin, and 50mg dyphenhydramine every nite 1 hour before going to bed. Its important to remain vertical (not lying down) for the hour after you take it. Also, skipping dinner so you have an empty stomach makes the drugs get in your system better.
I tried almost all sleep aids to no avail, then I tried melatonin and it not only helps the sleep, it also helps the CH.
I highly reccommend it
BMonee
Oh, and yes, i personally think the sleep deprevation is the worst thing about the cluster cycle. I go for about 8 weeks with 3 to 4 hours of sleep per night. I typically only sleep for 1 to 2 hours between hits, so i never get any "deep" sleep. Getting 4 hours of interrupted sleep every nite for 8 weeks would make john mccain cave under pressure. Its a good thing the VC never did that to him!
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clarence
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Re: Sleep Deprevation
« Reply #9 on: Jul 22nd, 2005, 11:13pm » |
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on Jul 22nd, 2005, 2:37am, burnt-toast wrote:
In case it hasn't become clear to the medical community CH causes sleep deprivation. It happens to be what this nightmare is best at.
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BINGO!
Casey
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hdido
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For some reason, many times when I cannot sleep well for several days, the intensity of my CH attacks appear to decrease, but when the lack of sleep finally causes me to sleep a long time, the CH attacks are back full force. Anyone else have that experience?
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violet
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Re: Sleep Deprevation
« Reply #11 on: Jul 24th, 2005, 1:32am » |
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Is it REM sleep that triggers the clusters?
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pattik
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Re: Sleep Deprevation
« Reply #12 on: Jul 24th, 2005, 10:44am » |
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I have had chronic sleep problems for several years now. And just like the CH waking me in the middle of the night like clockwork, even out of an episode, 6 out of 10 nights, I will still wake up about the same time every night. Often the first thing you will hear out of the mouths of docs is that you are depressed, but even depression doesn't have that kind of regularity for years on end. Melatonin works for me, but I am
about to switch to a time released form which I hope will work better for my type of insomnia. I will use Alprazolam on those rare occasions when nothing else has worked and I need a really good catch-up. 
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