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Topic: Pain Free for 10 days!!! (Read 443 times) |
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rextangle
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For those who don't know me, I'm a 39 y.o. chronic.
Last year, I finally got insurance and went to get diagnosed with CH
officially. Of course, the docs tried all the meds (you know the list)
on me and nothing worked. I was on meds (prednisone with verapamil
taper and maxalt as an abortive) from april til november. They also
tried propalonol, indocin, and some other crap that I'm spacing out
now.
I ended up in the hospital for a day due to a bad reaction to
prednisone. My BP was sky high, as well as my white cell count and I
was completely dehydrated.
Then I found out about clusterbusters. It was right after I had quit all meds, I grew my own shrooms for a
while and tried various methods and different doses every time.
I noticed an improvement after a few days, then my CH would ramp up
again. All I had was 02 as an abortive, and zero meds.
After a few emails with Bob W, he encouraged me to try Hawaiian Baby
Woodrose seeds (HBWS).
The first time I took some, (5 of them) I got hit with a CH right
away.
After a few days (about 5) the attacks would fade away and I would end
up with a couple of pain free days then they would start again.
Recently, I went to France to have my teeth done. I had a lot of work
to be done, and after my first visit, I had 3 pain free days.
Then the CH started again. Back in Denver, the attacks got more
frequent, more intense. Still only using 02.
I reordered some HBWS and took 2 of them. Then, on the same day, I
started taking melatonin (9mg each night).
I've been pain free for 10 days now!!!! I keep a 2 seeds maintenance
dose every friday (no side effects whatsoever, except a slight lose of
appetite on the first day) and keep taking melatonin.
I've had maybe 2 shadows that disappeared quickly.
This is so far the best result I've ever gotten since my CH started.
I will keep you guys updated with my progress.
I want to thank Bob W. for all his help and advice.
Good luck to all and PFDAN,
Rex
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| « Last Edit: Jun 20th, 2005, 4:31pm by rextangle » |
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LeLimey
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Re: Pain Free for 10 days!!!
« Reply #1 on: Jun 20th, 2005, 4:46pm » |
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Fantastic! I'm so glad yu are finally getting some PF time, you deserve it. I hope it continues for ooh... ever? Is ever okay?!
Congratulations!
Helen
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cazman
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Re: Pain Free for 10 days!!!
« Reply #2 on: Jun 20th, 2005, 5:00pm » |
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great love to hear good things happenning to good peeps keep it up and good luck
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vig
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Re: Pain Free for 10 days!!!
« Reply #3 on: Jun 20th, 2005, 5:35pm » |
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way cool
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Pinkfloyd
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comfortably numb
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Re: Pain Free for 10 days!!!
« Reply #4 on: Jun 20th, 2005, 5:43pm » |
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Ya know somethings up when even the French are being nice to me. 
Next thing ya know, Mars will be the size of the moon for cryinbg out loud.
Glad to hear it Rex!!!
rock on brother,
Bobw
(Now, if Pink Floyd ever reunites you'll know we're on the brink of something big!!)
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"There is no passion so contagious as that of fear."
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Langa
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Re: Pain Free for 10 days!!!
« Reply #5 on: Jun 20th, 2005, 6:05pm » |
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AWESOME NEWS REX!!!!!!!!!!!!!!!!!!!!!!!!!!!
WOO-HOOOO!!!!!!!!!!!!!!!!!!!!!!!!
So happy you're getting a break Rex...long overdue!
Hugs,
Langa
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nani
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Re: Pain Free for 10 days!!!
« Reply #6 on: Jun 20th, 2005, 6:33pm » |
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I am so happy for you, Rexie!!!
 
Enjoy every moment and may it last forever! 
hugs, nani
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rextangle
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Re: Pain Free for 10 days!!!
« Reply #7 on: Jun 20th, 2005, 6:41pm » |
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Thank you Helen, Nani, Maria, Vig, Bob and Cazman!
Pink Floyd wrote: Ya know somethings up when even the French are being nice to me.
LMAO
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Candycane
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Re: Pain Free for 10 days!!!
« Reply #8 on: Jun 20th, 2005, 7:59pm » |
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Happy for you, Rex.....we need some that funny stuff around here more again
Hey, I guess I easily entertained
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BMoneeTheMoneeMan
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Re: Pain Free for 10 days!!!
« Reply #9 on: Jun 20th, 2005, 9:47pm » |
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CONGRATS, MAN!!!
Thats awesome!!
I noticed that melatonin mixed with benadryl is the most effective thing I have taken.
Keep it up, more PF days are on the way.
BMonee
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LeeS
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Re: Pain Free for 10 days!!!
« Reply #10 on: Jun 21st, 2005, 7:17am » |
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Bon chance mon ami
-Lee
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rextangle
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Re: Pain Free for 10 days!!!
« Reply #11 on: Jun 21st, 2005, 6:24pm » |
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Thank you everyone for your support....
11 Days!!!!!!
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| « Last Edit: Jun 21st, 2005, 6:24pm by rextangle » |
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marlinsfan
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Re: Pain Free for 10 days!!!
« Reply #12 on: Jun 21st, 2005, 7:44pm » |
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Here's hoping for 12!
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Langa
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Re: Pain Free for 10 days!!!
« Reply #13 on: Jun 21st, 2005, 8:05pm » |
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on Jun 21st, 2005, 7:44pm, marlinsfan wrote:| Here's hoping for 12! |
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12 Years... 
Langa
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burnt-toast
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Re: Pain Free for 10 days!!!
« Reply #14 on: Jun 21st, 2005, 8:23pm » |
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Best wishes for a long permanent remission. Congratulations.
Tom
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Pain Free for 10 days!!!
« Reply #15 on: Jun 22nd, 2005, 10:08am » |
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Congratulations, Rex!!! 
That's fantastic!
Wishing you lots of more PF time,
your fellow chronic,
Sanna/sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Chillrmn1
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Re: Pain Free for 10 days!!!
« Reply #16 on: Jun 22nd, 2005, 10:35am » |
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Rex,
Glad to hear buddy! May the PF remain.
Bob
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rextangle
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Re: Pain Free for 10 days!!!
« Reply #17 on: Jun 22nd, 2005, 11:36am » |
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Thank you everyone for your wishes....
12 DAYS!!!! 
Now I can't wait until this board shows more PF days reports than bad ones.
Be well!
Rex
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lionsound
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breathe
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Re: Pain Free for 10 days!!!
« Reply #18 on: Jun 22nd, 2005, 12:48pm » |
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Yahoo, Rex!
Wonderful news!
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KMT
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Re: Pain Free for 10 days!!!
« Reply #19 on: Jun 22nd, 2005, 1:42pm » |
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<<<<<<<<<<Hip hip Horray>>>>>>>>>>>  PF wishes that it continues indefinitely............Kim
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aka...................................................... KimY
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BobG
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Re: Pain Free for 10 days!!!
« Reply #20 on: Jun 22nd, 2005, 4:34pm » |
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Stay stressed. Never relax. Never sleep. Ever.
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