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Topic: Preventatives (Read 350 times) |
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Kiwiinoz58
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Preventatives
« on: Jun 15th, 2005, 8:59pm » |
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I've seen on various pages that preventatives like Verapamil are good to use until a remission occurs.
Question: how do we know when we are in remission rather than that the meds are actually working and are we supposed to stop them for a while?
cheers, Jacqs
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We are here for a good time not a long time. Time then to think outside the square and to give and get the best possibles of love and life.
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burnt-toast
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Re: Preventatives
« Reply #1 on: Jun 15th, 2005, 9:44pm » |
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I had scant few remissions in my 10 years but you will know when one occurs.
Mine have typically started with a period where CHs begin to taper back in frequency and intensity until as suddenly as they began they are gone. Really gone - as if they never existed.
For most sufferers, the start and stop of CHs becomes a somewhat predictable cycle. The cycle can be weeks, months, years and seems to depend on the individual.
I never stop taking meds. because my CHs tend to lean towards chronic and the 1 to 3 mos. break I have occasionally gotten isn't long enough to come off meds. Longer remissions may be different.
Here's to hoping everyone's cycle is on the backside of the curve.
Tom
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don
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Simple.
Prevents do not eliminate the CH. They reduce frequency and intensity.
If you have been complete pain free for 2 weeks, then consider tapering off the prevents.
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bnfreeman
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Re: Preventatives
« Reply #3 on: Jun 17th, 2005, 12:28pm » |
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I have only had CH for about 2 years and I am still wondering the same thing. Last year I was on topomax for several months and the HA started to go away only to come back in October, the same month they started. I am starting to think I am in a down period now and won't know if the medicine is helping until October. I still have them now, but they are not 9 and 10 and I shadow every day. Trial and error and only time will tell. Good luck!
B
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