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Topic: Could not accept there wasnt a cure............... (Read 1300 times) |
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seraph
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Could not accept there wasnt a cure...............
« on: May 26th, 2005, 1:17pm » |
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I stumbled upon this website in search for answers. I could not accept that there was no cure for the disease i had, and will not rest until it is completely gone. I am not a doctor, nor anyone with a medical degree. I am just a normal person that would not accept that there was no cure and that found answers to alot of problems that may help many of you.
4 years ago I out of the blue started to have uncontrolable headaches. It came slowly and increased in intesity everyday. It would last 1 hr to 3-6 hrs everyday, three times a day. There was no pattern, it would just come at about the same time everyday. I would get a lump on the back right side of my neck and my body would get all stiff. The right side of my body would become numb, i would lose all motor functions on the right side of my body and being to flap around like a fish out of water. My right eye would become blood shot red and roll and quiver in the back of my head. It feels like someone put your head in a huge clamp on your head and is tightening it until your eyes pop out , all the while someone is sticking a icepick in the back of your brain. I felt as thought I was loosing my mind and wanted to take a gun to my head and just end it.
I went to 2 hospitals both couldnt figure out what was wrong with me. (The second one i collapsed on the emergency room floor from overdosing on Excedrin Migraine) The Third i went to in Illinois diagnosed me with Custer Headaches and said there is no cure and will have them for the rest of my life. I could not accept that answer and proceded to find the answer ..... or i would take the rest of my life trying.
I finally found a holistic medicine doctor that took me in and decided to help me. He preformed spinal adjustments, but it didnt help. But what did help was the acupuncture to my back and neck that he was giving. Althought it didnt take it away totally it made it not as severe, and relaxed my back muscles. (Everyone that is reading this knows the headaches are bad, but it took the edge off a little bit).
I continued to look for answers and found a website with all the signs of my illness, and at the top it said mercury poisoning. The symptoms of tremors, fatigue, headaches, depression, .. everything. Now in College i did alot of Extacy and grinded my teeth really bad. But what i didnt know is i cracked a filling and it was leaking in my mouth for 3 years. (I did more of the drug cause it took away the pain for a couple days, but all it did was make it worse when it came around again) The Mercury ate away at my gum and got in my blood stream, and settled in my muscles in my head and neck. The pain started in the upper back molars in my mouth, and though my head and ended at the base of my neck. It was a map to the pain I was feeling and where the mercury was. Now i took the test on this home page and read some of your messages and every sign of Cluster Headaches is what i have.
So i got a blood test to measure the amount of metal in my body and my tin and mercury tested way above normal safe range. (FACT: if you put 1g of mercury into a lake the government has to quarentine the lake / now imagine how your body is gonna react to that)
The next day i got my metal filling taken out and replaced with porceline. It was a pretty penny, but I needed to try.
I went back to the holsitic doctor and he started to give me celation shots to filter out the mercury in my blood stream and...... IT WORKED!!!! It took like 3 weeks, but the headaches slowly went away. It went from 3 a day at 1-3 hrs a time, to maybe 1 a week for 15 mins and didnt even come full blown. I couldnt believe it. I did it for a year got it all out of my blood and am now going and taking it out of my muscles. I am also getting TMJ treatments, after the full celation, cause the consistent grinding of my teeth and cracking of my head and neck cause it would be so stiff when I get the headaches unpositioned my lower jaw.
I dont know how many of you have metal fillings or may have been exposed to mercury or metals, but i wanted to share my story. Dentists will not accept the fact that mercury fillings are bad for you. It is a metal, and should not be in the body. Maybe this can get to a doctor or scientist that hasn’t thought that this might be the problem and can give all the rest of you a cure. Like I said I am not a doctor, nor anyone with a medical degree, just a person that wouldn’t accept no for an answer and knows there is a cure to everything. If i can help one of you that is one less person that has to feel this pain. Please check it out…. It is helping me
Ps. Taking 250 mg of Magnesium (vitamin) a day helps.
Magnesium is needed for bone, protein, and fatty acid formation, making new cells, activating B vitamins, relaxing muscles, clotting blood, and forming ATP—the energy the body runs on. Insulin secretion and function also require magnesium.
Here is the link to the website with the symptoms for Mercury Poisoning
http://www.mercury-poisoning-symptom.com/
Godspeed......
Seraph
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seasonalboomer
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Re: Could not accept there wasnt a cure...........
« Reply #1 on: May 26th, 2005, 2:02pm » |
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Glad you found something that worked for you. Based on what you described it doesn't seem very clear that you suffer from cluster headaches (I know you say you did take the cluster quiz, I'm not sure you interpreted the results correctly). i'm not aware of the icepick in the back of the neck being a prime sympton for a cluster diagnosis, nor have I seen anything about someone's right eye rolling and quivering in the back of their head . Also, if you are losing motor function on one side of your body during these episodes you may want to go see a neuro to get a scan because that is not a symptom of CH, but could be a symptom of something else. As you spent a considerable amount of time on your post it sounds as though you're trolling for some feedback on Chelation Therapy  .
There are some others on the site that may be able to offer you some excellent feedback on this as I believe it has been discussed in the past. So if anyone can "troll" through the archives for the info that has been generated in the past on this subject that would be great. One little piece of info that I've kept in my files is (http://www.quackwatch.org/01QuackeryRelatedTopics/chelation.html) 
Good luck with your treatments. 
Scott
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| « Last Edit: May 26th, 2005, 2:16pm by seasonalboomer » |
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KMT
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Re: Could not accept there wasnt a cure...........
« Reply #2 on: May 26th, 2005, 2:20pm » |
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Some of the stuff you stated doesn't sound like CH!
Quote:It would last 1 hr to 3-6 hrs everyday, three times a day. There was no pattern, it would just come at about the same time everyday. I would get a lump on the back right side of my neck and my body would get all stiff. The right side of my body would become numb, i would lose all motor functions on the right side of my body and being to flap around like a fish out of water.Sounds like something else My right eye would become blood shot red and roll and quiver in the back of my head. It feels like someone put your head in a huge clamp on your head and is tightening it until your eyes pop out , all the while someone is sticking a icepick in the back of your brain. I felt as thought I was loosing my mind and wanted to take a gun to my head and just end it.
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I am not a Doctor just making an observation. I am glad that you did find something to help you. That is the most important thing.
Kim
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seraph
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Re: Could not accept there wasnt a cure...........
« Reply #4 on: May 26th, 2005, 5:48pm » |
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To scott and Kim,
Again what brought me to this website was being told from Doctor in the ER cause i couldnt stand the pain and it was going on for 4 hrs, that i did have Cluster Headaches. I didnt want to admit it or accept it cause when he says there is no cure i couldnt handle that. It was to intense of a pain for there not to be a cure. I got Cat scans, testing of all kind, all came back that they couldnt find anything wrong with me. When i went to this webpage right when you come in there are testimony of people and how they feel. This is the one that grabbed me by the balls and got my attention. This is me to a T!!
My right eye felt like I took a couple punches, and my right nostril was starting to leak. I got out of bed, and went downstairs, all the while, this pressure in the right side of my brain kept building and building. My right eyelid was beginning to swell shut. I was squinting and it was tearing. I kept looking at the tears coming out of my eyes, convinced there was blood pouring out. I dropped to the floor and pressed my hands so hard against my temples that I thought I was gonna crush my skull, it wasn't helping. I got up and well, I went insane. It's the only thing I think I can describe it.... stark raving lunatic insane!
I was pacing from room to room, crying, flinging myself to the floor, getting back up again... holding my head, squeezing my temples, I looked up to the MAN above and literally begged him, that I would do anything, ANYTHING, just make this madness stop. He wasn't in that morning, and I suffered. I wanted to die, just simply that, I wanted death to take me as I just could not deal with this excruciating, horrible, horrible pain. I was chewing Tylenol like tic tacs.. screw swallowing, I was chewing them into a paste... 10 minutes passed, then 20, then 30... I swear my brain was cooked. I mean, the entire right side was numb from my forehead to behind my right ear. I was rocking myself in this chair wimpering like a lost little boy, and then, as suddenly as it started... it was gone.[i][/i]
That is stated at the begining of this website. I've taken so many excedrin Migraine that i've puked up black.
You still dont believe me....
You know when you have to push inside your eye cause it feels like it cant stop, or you eye turns blood shot red and tears. (my eye spasms, yours might be different, like i said, im not a doctor)
Or when you lay down and you have to hold your breath cause the pain is so intense
Or when you start sweating in the beginning
Or when your back arches and every muscle in your back is spasming.
Or the lump on the right side of the neck.... this is for you kim....
During a cluster attack, blood pressure elevates, heart rate increases, the body overheats, a ganglion lump on the back of the neck is quite common which becomes inflamed during an attack and diminishes when the attack subsides. Intolerance to light and sound is much more common with migraine sufferers than cluster sufferers, although some do report the same sensitivity and prefer to be in a quiet dark place to be alone, however, remaining motionless or falling asleep during a cluster attack is NOT POSSIBLE.
if you guys want to sit and deal with them that is up to you. I found, HOPEFULLY, a solution with MY life. Its up to you guys what you do with this information, and your life. I was just trying to help.
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floridian
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Re: Could not accept there wasnt a cure...........
« Reply #5 on: May 26th, 2005, 6:24pm » |
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Chelation may not work by binding up the mercury. It binds up many metals, including calcium. Given the fact that calcium channel blockers are known to help many with clusters, consider that possibility.
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don
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Re: Could not accept there wasnt a cure...........
« Reply #6 on: May 26th, 2005, 7:14pm » |
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Quote:| being told from Doctor in the ER cause i couldnt stand the pain and it was going on for 4 hrs, that i did have Cluster Headaches. |
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Only 1 ER Doc and 4 hours for a DX? Then it must be true.
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Jonny
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Re: Could not accept there wasnt a cure...........
« Reply #7 on: May 26th, 2005, 7:43pm » |
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Ive had CH for 30 years and have posted on this site everyday for nearly six years and NOT ONE person has ever said that one side of their body went numb.
Find a new doc....you do not have CH.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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BobG
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Re: Could not accept there wasnt a cure...........
« Reply #8 on: May 26th, 2005, 9:38pm » |
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Hey Jonny, that was very nice of you. Very much a Gentleman.
seraph, I am not a doctor and can not diagnose. But....
I think I can safely say.......
Your are just plain nuts! You do NOT have clusterheadaches.
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vig
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Re: Could not accept there wasnt a cure...........
« Reply #9 on: May 26th, 2005, 9:44pm » |
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QuickSilver!
bummer about the Hg poisoning, but it's not like CH very much at all... though there's a few here with foul breath... 
SYMPTOMS OF MERCURY POISONING
1. Psychological Disturbances (erethysm)
Irritability, Nervousness, Fits of Anger, Memory Loss, Lack of Attention, Depression, Low Self Confidence, Anxiety, Drowsiness, Shyness/timidity, Decline of Intellect, Insomnia, Low Self Control.
2. Oral Cavity Disorders
Bleeding Gums, White Patches - Mouth, Stomatitis, Bone Loss Around Teeth, Loosening of Teeth, Ulcers of Gums- Palate- Tongue, Excessive Saliva, Burning of Mouth, Foul Breath, Gum Pigmentation, Metalic Taste.
3. Gastrointestinal Effects
Abdominal Cramps, Colitis, Crohn's disease, Gastrointestinal Problems, Diarrhea.
4. Systemic Effects
Cardiovascular, Irregular Heart Beat, Changes in Blood Pressure, Feeble or Irregular Pulse, Pain or Pressure in Chest
5. Neurologic
Chronic or Frequent Headaches, Dizziness, Ringing or Noises in Ears, Fine Tremors (Hands, Feet, Eye Lids, Tongue)
6. Respiratory
Persistant Cough, Emphysema, Shallow or Irregular Breathing.
7. Immunological
Allergies, Asthma, Rhinitis, Sinusitis, Swollen Lymph Nodes in Neck
8. Endocrine
Subnormal Temperature, Cold Clammy Hands & Feet, Excessive Perspiration, Muscle Weakness, Fatigue, Hypoxia, Edema, Loss of Appetite, Loss of Weight, Joint Pain
Anybody got any of these?
not me.
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| « Last Edit: May 27th, 2005, 7:25am by vig » |
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BobG
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Re: Could not accept there wasnt a cure...........
« Reply #10 on: May 26th, 2005, 10:58pm » |
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on May 26th, 2005, 9:44pm, vig wrote:SYMPTOMS OF MERCURY POISONING
Anybody got any of these?
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Yes, I do.
1. Psychological Disturbances
Memory Loss
Sometimes I forget I have Alzheimer’s.
Lack of Attention
What was the question again?
Shyness/timidity
That is why nobody has ever seen me. I hide behind this stupid computer because I’m too shy to meet people.
2. Oral Cavity Disorders
And
Fits of Anger
For me these 2 go together. But not for the symptoms listed. Sometimes when I get pissed I have a shitty mouth.
6. Respiratory
Persistent Cough
I cough a lot. Is there mercury in cigarettes?
8. Endocrine
Excessive Perspiration
I live in Las Vegas. It’s summer here. Everybody has that problem. Does sunshine and low humidity give you mercury poisoning?
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SusieWong
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Re: Could not accept there wasnt a cure...........
« Reply #11 on: May 27th, 2005, 4:28am » |
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on May 26th, 2005, 1:17pm, seraph wrote:
I went back to the holsitic doctor and he started to give me celation shots to filter out the mercury in my blood stream and...... IT WORKED!!!! It took like 3 weeks, but the headaches slowly went away. It went from 3 a day at 1-3 hrs a time, to maybe 1 a week for 15 mins and didnt even come full blown.
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IF you do have CH this could very well be a natural remission. If you have found the answer to what ever caused your problems then I am very pleased for you.
SusieWong
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don
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Re: Could not accept there wasnt a cure...........
« Reply #12 on: May 27th, 2005, 7:02am » |
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Quote:Oral Cavity Disorders
And
Fits of Anger
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Well there you have it seraph, stop letting people screw around with your oral cavaties
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| « Last Edit: May 27th, 2005, 7:37am by don » |
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Ueli
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Re: Could not accept there wasnt a cure...........
« Reply #13 on: May 27th, 2005, 9:41am » |
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Mercury poisoning you get from Mercury vapor, as from living in a room with lots of spilled Mercury, or being a illegal gold seeker in the Brazilian rain forest, who poison themselves and the whole nature with Mercury.
If someone tells you, you have Mercury poisoning from your tooth fillings, he is a crooked quack, a irresponsible scoundrel. Read here about
The Mercury Amalgam Scam
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seasonalboomer
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Re: Could not accept there wasnt a cure...........
« Reply #14 on: May 27th, 2005, 10:02am » |
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on May 26th, 2005, 5:48pm, seraph wrote:
"if you guys want to sit and deal with them that is up to you. I found, HOPEFULLY, a solution with MY life. Its up to you guys what you do with this information, and your life. I was just trying to help." |
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I appreciate your compassion. As I said in my original posted reply, I am glad you found something that worked for you. Cluster headaches are something that almost anyone that is going to spend some time on this site respects and manages.
Part of the value of this website is that many of us learn about various treatments that are both valuable to cluster sufferers and those that have proven to be either marginally helpful, dangerous, or plainly a waste of time. We also develop an eye for presentations and claims that are, quite simply, overly dramatic or seem a little puffed up. And to be honest there Seraph, you lay a lot on folks here in your first ever post on the site to let us know that you found the cure in the form of Chelation Therapy.
We're not a bunch of dolts, laying around waiting on the "cure". We're an actively engaged group of people who have this condition that have tried, many successfully, ways to manage our condition and live a full and happy life. And, we're also here to talk through how to deal with not only symptoms directly related to the pain, but the effects that these headaches have on us psychologially, emotionally and to our families.
So get over yourself! If you are truly a sufferer of Clusters or some other condition, I'm sorry for you, and again state my pleasure that you have found something that works for you. Spend a little time on this website and learn some, you will see that it is an incredibly valuable place for people who have this condition.
Good luck
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KMT
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Re: Could not accept there wasnt a cure...........
« Reply #15 on: May 27th, 2005, 10:42am » |
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Seraph
Quote:| if you guys want to sit and deal with them that is up to you. I found, HOPEFULLY, a solution with MY life. Its up to you guys what you do with this information, and your life. I was just trying to help. |
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You may have been trying to help. To be honest with you that is all we were doing. You may have been misdiagnosed and need to seek further medical assistance. Numbness isn't common on one side of your body(stroke (but CT came back ok)) I don't know.
My first time I went to the ER they stayed clueless. They thought I was FOS. Doctor misdiagnosed it as Greater Occipital Nephropathy. Then my second cycle I fianlly got a true DX.
None of those symptoms for Mercury poisoning are present here.
I again will tell you how very pleased I am that they have been able to help you. Going through life in pain isn't any fun.
Kim
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seraph
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Re: Could not accept there wasnt a cure...........
« Reply #16 on: May 27th, 2005, 11:33am » |
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I came back and read some of the replys and it honestly sickens me. I am not offering a final cure or a solution (i am not that ignorant), i have seen that something is HELPING (NOT CURING) me and sending it out cause it may help others. And maybe you may not feel the pain that you feel in your daily life. What is better doing trying or just dealing with it. What is one more test?
TO ALL THOSE PEOPLE WHO SAY I DONT HAVE IT CAN GO TO HELL!!!! I am 29 years only, and have gotten these stupid fucking things everyday of my life for 4 years. I lost people that have loved me, jobs, family is constantly worried, and lost out on life. From what it seems like in all your posts and i will get them for a long time to come, and all you people can do is put me down and say "you don't have it". NO ONE CAN EVER IMAGINE THE PAIN I GO THROUGH WHEN I GET THESE!!!! EVER!!!!!!!!!! I have researched this thing to death and went to constant doctors and had thousands of test, all of them saying i am in perfect health. So you tell me what the hell i have.
I saw something that helped me and tryed to share it, but i got ridiculed and made fun of. So i will tell you what, you people can go, not look for a answers, put down others cause of your problems, and live with these things. I will not let this control my only life here on this planet. I dont know what i did for god to let me have this, but i found out why god gave it to you.'
For the people that didn't ridicule me, thank you, i hope you find your solution.
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don
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Re: Could not accept there wasnt a cure...........
« Reply #17 on: May 27th, 2005, 11:45am » |
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Quote:| but i found out why god gave it to you.' |
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Its a warm fuzzy!
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thomas
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Re: Could not accept there wasnt a cure...........
« Reply #18 on: May 27th, 2005, 12:10pm » |
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Several people get "cluster lumps" on their necks, and they can last past 4 hours. I am not convinced that this person does not have CH. It may be possible that there is another problem in conjunction with the CH that is causing the numbness. Just ask Carl D about that.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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E-Double
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Re: Could not accept there wasnt a cure...........
« Reply #19 on: May 27th, 2005, 12:28pm » |
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I am thrilled when anyone finds relief regardless of how it came about!!
Chelation therapy is/can, however be dangerous!!!
I've had numbing as a side-effect down face and arm but never anything constant and do have a freaking walnut of a "cluster lump"
As for the cynism, I tend to feel it leans more towards helping people be aware of misconceptions with this affliction and tries to get them to seek appropriate help. It is just misconstrued.
Though it always evokes a nasty reply...
Oh well.....enjoy your PF time and hope if it is CH it stays away for a while!!!
Ex2
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Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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seraph
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Re: Could not accept there wasnt a cure...........
« Reply #20 on: May 27th, 2005, 1:15pm » |
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This is for Thomas.....
I read somewhere that there is a nerve that controls the right and left motor functions (arms, legs, etc) that runs on the outer muscles. At the base of the neck is where it runs though a muscle and enters the brain. If that muscle tightens and gets knotted and pinches that main nerve (hold a straw inbetween your fingers and make a fist) can someone twitch on one side of there body????
During the headaches my neck and back are so tight and the muscles on the right side are tight. Its like i have to relax that muscle to relax the right side of my body.
If you can, please explain more about these "cluster lumps"..
Thank you for the positive response Thomas...
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seasonalboomer
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Re: Could not accept there wasnt a cure...........
« Reply #21 on: May 27th, 2005, 1:17pm » |
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on May 27th, 2005, 11:33am, seraph wrote:
"TO ALL THOSE PEOPLE WHO SAY I DONT HAVE IT CAN GO TO HELL!!!!"
"I lost people that have loved me, jobs, family is constantly worried, and lost out on life.
"From what it seems like in all your posts and i will get them for a long time to come, and all you people can do is put me down and say "you don't have it"."
"NO ONE CAN EVER IMAGINE THE PAIN I GO THROUGH WHEN I GET THESE!!!! EVER!!!!!!!!!! "
"I have researched this thing to death and went to constant doctors and had thousands of test, all of them saying i am in perfect health. So you tell me what the hell i have."
"I saw something that helped me and tryed to share it, but i got ridiculed and made fun of."
So i will tell you what, you people can go, not look for a answers, put down others cause of your problems, and live with these things. I will not let this control my only life here on this planet. I dont know what i did for god to let me have this, but i found out why god gave it to you."
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Wow. There are aspects of your posts that lead me to believe that BobG is right in his assessment.
Look bud, if you've experienced a lot of pain through this affliction you have then that's awful. As for no one here being able to understand YOUR pain. You need to take a few deep breaths and think about what you're saying and to who. THESE ARE CLUSTER HEADACHE PEOPLE!
What you've seen here are some people saying that you may not be being diagnosed correctly. you've got some symptoms that are not only not typical, but not indicative. While you indicate you have had thousands of tests (that would be an average of 1 testevery day for the last 4 years of your affliction) there's something that is indicating to this group of people, who have spent a good bit of time researching as well, that something doesn't sound right.
If your pain has been solved by this Chelation, that is really great. That's great for you. You should now work on many of the psychological issues that you apparently still have that may be related to the pain experience you have gone through.
As for god's role in giving these headaches to you or anyone else, you will find various opinions on that within this forum. I would say that the predominant opinion is that god hasn't really chosen us for these headaches. But that instead a malformation of our hypothalamus is to blame.
Ease up a little there Seraph. Just sit back and read and "feel the love" here on this site. It's there, really.
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Re: Could not accept there wasnt a cure...........
« Reply #22 on: May 27th, 2005, 2:03pm » |
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Quote:Posted by: seraph Posted on: Today at 12:15pm
This is for Thomas.....
I read somewhere that there is a nerve that controls the right and left motor functions (arms, legs, etc) that runs on the outer muscles. At the base of the neck is where it runs though a muscle and enters the brain. If that muscle tightens and gets knotted and pinches that main nerve (hold a straw inbetween your fingers and make a fist) can someone twitch on one side of there body???? I have never really noticed this but not to say it doesn't happen.
During the headaches my neck and back are so tight and the muscles on the right side are tight. Its like i have to relax that muscle to relax the right side of my body. I get this way as well
If you can, please explain more about these "cluster lumps"..
Thank you for the positive response Thomas...
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Seraph
I realize you said this post was for Thomas and I am sorry to but in. Maybe you have CH but you could still have something else as well and that could be the mercury poisoning and that is why you are getting some relief. Many people here have more then one thing going on at a time.
Relax we are all here for you and are glad to see you are getting relief.
There is tons of information here use it to your advantage and store it away.
PF wishes
Kim
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aka...................................................... KimY
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bnfreeman
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Re: Could not accept there wasnt a cure...........
« Reply #23 on: May 27th, 2005, 11:01pm » |
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I was told by an ER nurse that it was CH that I was having. At the time I was seeing a neuro that was treating my for migraines. I can feel your pain. I was glad to see I wasn't going crazy and that there were others who understood my problem. You said you used to do a lot of X in the day. So did I, but I have no cavities. I often wonder it the X is the reason I have CH. Or maybe being punished. Who knows, but at least you have found a way to end your pain. Thanks for your story.
BF
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Sean_C
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Re: Could not accept there wasnt a cure...........
« Reply #24 on: May 27th, 2005, 11:03pm » |
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on May 27th, 2005, 11:33am, seraph wrote:| TO ALL THOSE PEOPLE WHO SAY I DONT HAVE IT CAN GO TO HELL!!!! I am 29 years only, and have gotten these stupid fucking things everyday of my life for 4 years. |
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Give it a break, I've had these for twenty six years and I say you have meegraines................................kid
Why some people want to have CH is beyond me, some even demand it
If they only knew how much fun it really is 
Peace
Sean.............................
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