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Topic: Please please please help me! (Read 388 times) |
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Davies
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I love YaBB 1G - SP1!
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Please please please help me!
« on: May 16th, 2005, 8:55am » |
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 Please help me.Went to the doctors a month ago and he gave me verapamil to take 4 times a day they didnt do a thing! What do I do next? Had such a bad attack last night couldnt stop crying was nearly screaming with pain! I couldnt go to work today and its not nice for my huuby but you all will know this.The doctor will go for new medication for me tomorrow but please tell me what do i do ? Any ideas what to try? I take imagran sprays but they have not been that good.They will stop it when I take it then it gets worse again later on.Any ideas???????
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nani
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Got kudzu?
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Re: Please please please help me!
« Reply #1 on: May 16th, 2005, 8:59am » |
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Have you tried oxygen? Also, you may want to add lithium to the verapamil. Sometimes the combo is just what's needed. Imitrex injections are probably the most effective way to deliver the Imitrex. Or, consider dropping all of those and trying one of the alternatives. There are 3 that help many. Kudzu, LSA, or 'shrooms. Read about them first. Pain free wishes and hang in there, nani
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Others may come and go, but MY power is MINE.
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thomas
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"Hit like a phillips head into my brain."
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Re: Please please please help me!
« Reply #2 on: May 16th, 2005, 8:59am » |
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O2 at a high flow rate to abort, for starters. Are you getting hit while you sleep? If so see if melatonin is available where you are, it can help a lot with the night hits.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Bob P
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Re: Please please please help me!
« Reply #3 on: May 16th, 2005, 9:30am » |
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Quote:| Concurrent use of calcium channel blocking agents with lithium may increase the risk of neurotoxicity in the form of ataxia, tremors, nausea, vomiting, diarrhea and/or tinnitus. Caution is recommended. |
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Be careful with the verap/lithium combo.
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sandie99
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Re: Please please please help me!
« Reply #5 on: May 16th, 2005, 10:50am » |
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I hope you'll find relief soon... In my case it came from verapamil, 600mg/day.
Best wishes & PFDANs,
Sandie
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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LeLimey
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Re: Please please please help me!
« Reply #7 on: May 16th, 2005, 11:56am » |
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Hi Davies
Go to OUCH uk to the meds board here http://www.clusterheadaches.org.uk/home/index.cfm?address=../treatments/ txt_treatments.cfm&added=23/01/04&code=CD
Pay particular attention to this O2 link http://www.clusterheadaches.org.uk/home/index.cfm?address=../treatments/ txt_drug_oxygen_regs_cd.cfm&added=11/08/03&code=CD
In the UK the high flow regulators aren't available on the NHS.. we have to buy them. This way you can get a smaller tank with an in built regulator whoch makes it alot easier to try. You need a non rebreather mask too. These are not available on prescription but you can buy them from Boots for about £4-5. You can get them through OUCH UK alot cheaper but see how you get on with it first.
There is a helpline phone number on the OUCH website which is well worth giving a call for further advice on meds. Think about asking for the Imigran injections, they are ALOT faster and are in fact the only licenced treatment for CH in the UK. I know they are expensive but your GP cannot refulse to prescribe them based on cost. There are resources at OUCH yet again that will back this up for you.
This site is fantastic for support, I love it but for advice on meds I would recommend the OUCH site as there ARE differences between the US and the UK on drug names for instance as well as regulations and cylinder sizes for instance.
Make the most of all the resources you have I say!
Good luck, let us know how you are getting on okay?
Regards
Helen
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MINGEYTWO
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Re: Please please please help me!
« Reply #8 on: May 30th, 2005, 9:42am » |
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I HAVE SUFFERED FOR 35 YRS. CALL YOUR DOC AND ASK FOR DEPECOTE 500 MI. PER DAY AND MAXALT 10 MI MELT IN YOU MOUTH TABS FOR WHEN CH HAPPENS. THE DEPECOTE WILL BRAKE THE CYCLE AND WHEN ONE BLEEDS THROUGH THE MAXALT TAB STOPS THE PAIN IN 3-5 MIN. ITS CHANGED MY LIFE MINGEYTWO@COMCAST.NET
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