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Topic: verapamil quiery (Read 321 times) |
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moi
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verapamil quiery
« on: Mar 18th, 2005, 10:25pm » |
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Hi all. Just wondering if anyone can tell me, if verapamil works for you, then do you stay on it all the time? I met a guy in my area through your site (thank you to whom ever started it) and after telling him my doc perscribed voltarin that doesn't work, he told me 'dont ask your doc, tell him you want verapamil and imigran'. I did and since taking the 'v' I have had 5 ch in 3 weeks. The imigan helped each time just at the point of wanting to rip the side off my face off which is a bonus. In the first 2 weeks I had several a day start and each time they did I sprinted as fast as I could for a few minutes and most of them buggered off. In the last week, nothing. Lifes good again. I still knew the ch were around, shadows ,until a couple of days ago when I feel they may have gone. I'm a little worried about going off the v. My head may be playing tricks on me. So back to my quiery. Do you take them forever? I would like to have a babe one day soon, but not with this stuff in me. My docs a bit of a no go as all the others have been to me. He said to me that he hasn't ever had any patients with ch, they must stay at home. ???????????????????
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zrmulcahy
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Re: verapamil quiery
« Reply #1 on: Mar 19th, 2005, 4:34am » |
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I believe episodics can go off verapamil between cluster cycles. However, if you get pregnant and the clusters come back, your first line of defense against the beast is gone. I would hate to be pregnant and have CHs at the same time.
Are your cycles regular enough that you'd know about how long you'll have before the next bout comes? If not, or if there's well under a year between them, find something that works and you can take while with child. I haven't really considered this factor in my drug research (not sure why), so I don't know what you can and can't take.
That's my two cents anyway. Actually, closer to fourty cents when you factor in inflation back to the late 1800's when the phrase was coined.
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pubgirl
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If you are episodic the strong advice here is that you should come off Verapamil slowly when you believe your cycle has ended, at the first sign of any pain, step the dosage back up, and try again in another week after you have been pain free again.
The experts here recommend episodics don't stay on Verap all the time, and even chronics should take a break from it every few years.
r.e. drugs in pregnancy and during breast feeding, I don't know any prevent which is guaranteed safe, but 02 is fine for the attacks themselves
Wendy
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| « Last Edit: Mar 19th, 2005, 6:18am by pubgirl » |
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karma
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Re: verapamil quiery
« Reply #3 on: Mar 19th, 2005, 8:01am » |
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The verap won't do anything for you accept block the plumbing and render it ineffective when out of cycle.
There has been some discussion about verap actually lengething cycles so taper down and get med free as soon as you can.
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Kris_in_SJ
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Re: verapamil quiery
« Reply #4 on: Mar 19th, 2005, 7:38pm » |
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Ditto to Wendy,
I'm episodic with several years between cycles. Verapamil at 480mg/day during cycle has worked wonders for me. Once I'm fairly sure my cycle is over - all shadows gone, etc. - I slowly wean down 120mg at a time. I usually spend several weeks at each level, but if I start to get twinges or shadows, I go back up for a bit. Took me 5 months to wean off this last time, but I'm currently cluster and drug free. My bottle still has quite alot left in it though, so I'll carefully store it until next time around. Hope this info helps.
Kris
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sandie99
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Re: verapamil quiery
« Reply #5 on: Mar 20th, 2005, 4:02am » |
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Hi there,
I'm a chronic. For time being, I'm taking verapamil 600mg/day. I'm hoping that this dose will break my cycle...heh...we'll see.
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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