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Topic: Clusters and Epilepsy (Read 543 times) |
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Pinkfloyd
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Clusters and Epilepsy
« on: Nov 14th, 2004, 9:04pm » |
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If there are any cluster sufferers here, that also suffer from epilepsy, could you please contact me. I am in particular looking for someone that may have had a VNS implanted. If you have, or know of someone that has, please send me an email or IM.
Don't worry, I'm not trying to sell anything. It has to do with a cluster treatment and possible research. 
Thanks
BobW
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"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
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nani
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Re: Clusters and Epilepsy
« Reply #1 on: Nov 14th, 2004, 9:18pm » |
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Yoo hoo.... Charlie.....
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Charlie
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Re: Clusters and Epilepsy
« Reply #2 on: Nov 14th, 2004, 11:20pm » |
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Thanks Nani.
I've already been through this however. The VNS thing is pretty new. My CH and epilepsy are not related.
Good luck Pinky
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Pinkfloyd
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Re: Clusters and Epilepsy
« Reply #3 on: Nov 15th, 2004, 12:31am » |
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Yes, I've already run Charlie's data through the computer (a modified wayback machine) and he seems to fall into the high end of the "enigma" classification.
I'm searching for someone that is closer to a "medical marvel"
but thanks anyway 
bobW
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"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
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radioflyer72
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Re: Clusters and Epilepsy
« Reply #4 on: Nov 15th, 2004, 7:23pm » |
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Hi Floyd
A newbie here....CH episodic also dealing with General Tonic Clonic seizures (controlled with Tegritol)......No VNS implant, but I'm willing to share whatever might help our fellow man.
My only advice. Lose the head...it's WAY overrated :-P
David
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Pinkfloyd
New Board Hall of Famer
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Re: Clusters and Epilepsy
« Reply #5 on: Nov 16th, 2004, 1:38am » |
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on Nov 15th, 2004, 7:23pm, radioflyer72 wrote:Hi Floyd
A newbie here....CH episodic also dealing with General Tonic Clonic seizures (controlled with Tegritol)......No VNS implant, but I'm willing to share whatever might help our fellow man.
My only advice. Lose the head...it's WAY overrated :-P
David |
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Thanks David very much. i do need to speak with someone that has both clusters and a VNS. If you happen to even run into such an unlucky (or lucky I guess if it works) person, please let me know.
BTW, welcome. Hope the folks here can be of some assistance.
PF
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"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
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