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Topic: After Gamma-Knife / Neurontin (Read 441 times) |
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jeffhall
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After Gamma-Knife / Neurontin
« on: Sep 24th, 2004, 2:54pm » |
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I had the Gamma-Knife procedure in December of last year. Gamma-Knife has has mixed results for those that tried it but I was desperate at the time. Though it posed little risk, the Dr. said it had basically a 50/50 chance of success and the result may take up to 6 months to be fully realized.
My results were different. I noticed considerable improvement after about 3 weeks. Within 2 months I thought I was cured.
Slowly, however, my chronic symptons returned but the duration of attacks (previously 45-60min) decreased to about 20 minutes each.
I believe it helped me, but did not cure me.
I am now on Neurontin with an extremely high dose of 4800mb/day (2 800mb pills three times a day). It is expensive, and I suffer the memory loss side effects greatly.
BUT, I am relatively pain free. I am down to about 3 serious attacks a week (previously as many as 30). I also take Cafergot as needed and Excedrin Migrain.
I know the risks of such meds, but the combination has allowed me to actually do the unthinkable...I now have a job! Whoo-Hoo.
Just thought I'd share...
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nani
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Re: After Gamma-Knife / Neurontin
« Reply #1 on: Sep 24th, 2004, 6:23pm » |
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Wow that's a lot of Neurontin! I've just been increased to 600mg 3X/day. It's helping - but I noticed that I forgot 2 things that I normally would not have forgotten.  Is this a common side effect?
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stuflash
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Re: After Gamma-Knife / Neurontin
« Reply #2 on: Oct 3rd, 2004, 12:05am » |
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It's been a few years since my last cluster  , but I was on neurontin at, I think, about 3000 mg/day. It helped me a lot. Brought my headaches from about 4-6 day & night to 1/night, and I was able to get rid of that with a DHE injection at bedtime. The one side effect that I can recall from back then was a very noticeable hand tremor -- my handwriting became almost illegible. Luckily, I mostly type anyhow. I don't recall any significant loss of memory (no play on words intended).
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nani
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Re: After Gamma-Knife / Neurontin
« Reply #3 on: Oct 3rd, 2004, 1:31am » |
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Thanks stu - the increase has helped get to manageable pain levels. I'm still forgetting stuff though. At least I think I am...
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don
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Re: After Gamma-Knife / Neurontin
« Reply #4 on: Oct 3rd, 2004, 11:07am » |
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Quote:| Cafergot as needed and Excedrin Migrain |
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nani
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Re: After Gamma-Knife / Neurontin
« Reply #5 on: Oct 3rd, 2004, 11:29am » |
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Quote:| ????????????????????????????????????????????????? |
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actually Don - the Excedrin Migraine can work for me now also. I don't know if it's because of the Neurontin- but during the kip 6 and less - it can stop the pain most of the time. This has just happened since the doc upped my Neurontin.
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jeffhall
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Re: After Gamma-Knife / Neurontin
« Reply #6 on: Oct 27th, 2004, 12:11am » |
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Thanks for all of the kind comments on this thread. I am still in the same situation. The Beast visits me still,..but on a much less frequent occassion.
Jeff Hall
hodakitas.org
"Saving the world one dog at a time"
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