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   Hey Floridian (re: CGRP)
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Lizzie2
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Hey Floridian (re: CGRP)
« on: Sep 16th, 2004, 9:51am »
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I asked my neuro about this in my appointment this morning.  He said it is 2-3 years out before we will see it for use.  What do ya think?????
 
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floridian
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Re: Hey Floridian (CGRP)
« Reply #1 on: Sep 16th, 2004, 10:24am »
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Hard to say - I don't know exactly which papers have been filed and which government hurdles have been cleared.  2-3 years is plausible.  I think I'll be trying some non-regulated CGRP inhibitors in less than 2-3 years.   Wink
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Lizzie2
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Re: Hey Floridian (CGRP)
« Reply #2 on: Sep 16th, 2004, 11:03am »
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on Sep 16th, 2004, 10:24am, floridian wrote:
Hard to say - I don't know exactly which papers have been filed and which government hurdles have been cleared.  2-3 years is plausible.  I think I'll be trying some non-regulated CGRP inhibitors in less than 2-3 years.   Wink

 
 
LOL if you do..let me know!  He started me on Cymbalta (duloxetine) today to try to aid with migraine, but he said it wouldn't effect the clusters...which I agree it probably won't.  Then he wants me to use capsacian (yeah...I know..bad stuff), and I told him what I thought about that idea.  He said the theory behind it is that you have to use it a few times a day until it stops burning.  Then the nerve will officially be deadened and you can just use it every day or every other day after that because if the nerve grows back, it'll burn again.  I'm still a little reluctant to try it, but I will.  Good thing that my clusters are on the right because the tumor I had when I was younger has damaged the left side of my nose with a host of scar tissue.  
 
He said there is a new drug coming out in 1-2 months that doesn't even have a name yet and may be effective for both migraine and cluster.  It is a new type of seizure med.  He said thet seizure meds kind of have a 50/50 chance of helping.
 
Guess that'll be next if still no relief!
 
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