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Topic: Narcotics (Read 900 times) |
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unsolved1
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I've had clusters for a LOOOONNNGG time. Nothing really helps except for Imitrex injections. I've never had any narcotics help (unless it was a mild attack) ... and I've had some pretty heavy duty stuff at the hospitals.
Tomorrow ... I'm going to pick up a prescription for Actiq Lollipops. I DO NOT think it will help with a full blown CH ... but I am going to try it for a 'less severe' headache. The goal is to use less Imitrex. Of course, if it doesn't help at all or makes things worse, I'll discontinue use immediately.
I'll post about my experience with this drug since I believe that there is not too many of us trying it.
I hope this doesn't make things worse ! 
Unsolved
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Jonny
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Good luck Bro!
..........................jonny
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IndianaJohn
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Re: Narcotics
« Reply #2 on: Sep 8th, 2004, 7:37pm » |
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Good Luck Bro'. But be very very careful. I'm sure you now the risks.
Best of Luck
John
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Did my brains fall out or is this headache over?
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E-Double
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Re: Narcotics
« Reply #3 on: Sep 8th, 2004, 7:42pm » |
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Anything you can do to catch a break go for it!!!
I hope you get a breather 
Hang in there bro...as you always do!
Best,
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
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alleyoop
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Re: Narcotics
« Reply #4 on: Sep 8th, 2004, 8:15pm » |
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on Sep 8th, 2004, 7:42pm, E-Double wrote:Anything you can do to catch a break go for it!!!
I hope you get a breather |
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Ditto!
If I'm not mistaken we had a string about this exact same topic a few months ago. I think I posted then that I had tried the Actiq lollypops(along with demerol, dilaudid, etc) with some success. I finally came to the conclusion that even though I was getting some relief, the rebounds were more than making up for it. They're probably not fillable now but I've still got scripts for narcs including Actiq.
Good luck Mike! I sincerely hope they give you some relief. Looking forward to hearing how it goes........
....................................alley
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vietvet2tours
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Re: Narcotics
« Reply #5 on: Sep 8th, 2004, 8:16pm » |
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I been ch since 1981,tried dilaudid,oxycontin,oxycodone,percodan.percocet,darvocet,darvon and shit off the street.Eight years ago I went in and had a intensive acupuncture treatment it took like five two hour sessions from a traditional chinese acupuncturist,she charged me nothing and i was pf until aug. 10 this year.I was full blown until ten thirty this morning when i went back to her,i walked in she put me on her table and spent two hours pokin me.I have had two small clusters less than ten minutes each, its now seven pm mt. pretty damn fine for something that everyone pooh poohs.Just give it a whack it cant hurt.Fuck the narcotics unless yer lookin to use them recreationally.
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| « Last Edit: Sep 8th, 2004, 8:17pm by vietvet2tours » |
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Kill em all let God sort em out
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unsolved1
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If you're suggesting that I try accupuncture ...
Been there and done that ... didn't help . 
Thanx anyways
Unsolved
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Kris_in_SJ
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Re: Narcotics
« Reply #7 on: Sep 8th, 2004, 8:48pm » |
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Best of luck Un_Solved!
In my way of thinking, even heavy narcotics are worth trying over deep brain surgery (wasn't it you that mentioned that?).
Though I'm sure you've thought about it, have you given any serious consideration to the shroom thing? After reading Dave and Miapet's posts, I've considered taking up some serious gardening.
Hugs and best wishes for at least 1 or 2 PFDAN!
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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don
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Quote:| Fuck the narcotics unless yer lookin to use them recreationally |
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Ping Pong and bowling are recreational.
Using narcotics for anything less that a diagnosed medical condition is called "plain fuckin stupid"
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| « Last Edit: Sep 8th, 2004, 9:21pm by don » |
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Kevin_M
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Re: Narcotics
« Reply #10 on: Sep 8th, 2004, 10:54pm » |
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on Sep 8th, 2004, 9:50pm, vietvet2tours wrote:| they only bring on a rebound headache. |
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I think the point is, this is not the only precarious part of narcotics. There are pain treatment centers which make decisions regarding narcotics, it's a tightrope.
Kevin M
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pubgirl
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Mike
Don't want to depress you but the latest (obviously not published results yet) from the Italian team came from Zazi who said that she knows two people who have had it done there, one succesful, one not succesful at all. This doesn't seem great odds for a highly dangerous operation which has already killed one person.
Wendy
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nancyc
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Re: Narcotics
« Reply #12 on: Sep 9th, 2004, 12:43am » |
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Seems like alot of docs are trying the Actiq with chs now..my neuro/pain management doc wanted me to try it last week..but , i didnt ....I heard the rebounds are hell..and I have had enough rebounds lately to last a lifetime...CHs you can get rid of with imitrex....Rebounds are like a damn cold, they wont go away until they are damn good and ready..and you are ready to jump off a bridge from them LOL...I guess the reason you get rebounds with the Actiq and not the patch is that the Actiq is so fast acting....and hits so fast...where the patch is slow released....but not recommended for acute pain but chronic only....I just went back on the lowest dose patch for chronic chs and bulging discs problems...  nancyc PS keep us posted on how it works please...good luck!....IM me for tips on how to fight the rebounds LOL.
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| « Last Edit: Sep 9th, 2004, 12:47am by nancyc » |
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unsolved1
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Some of you will understand this statement ... some of you won't:
Rebounds are NOT my main concern at this time.
(I'd rather have a rebound than a full blown CH attack)
My concerns are:
(1) Pain control (by whatever means)
&
(2) Less use of Imitrex
If these 2 concerns are NOT helped with the Actiq ... then I will consider it useless.
I'll post about this again in a few days
Unsolved
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FZfan
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Re: Narcotics
« Reply #14 on: Sep 9th, 2004, 7:58am » |
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I understand completely.
If narcotics, or anything, can get you at least some relief for at least some period of time, I have no problem with it.
As for rebounds? If you're chronic, how would you know you are getting rebounds?
Good luck unsolved.
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Giovanni
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Re: Narcotics
« Reply #15 on: Sep 9th, 2004, 9:56am » |
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I surely hope you get into the position one day to try the mushroom treatment--which in my opinion is your best chance of help/relief.
Sorry you're being hit so hard.
John
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nancyc
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Re: Narcotics
« Reply #16 on: Sep 9th, 2004, 10:40am » |
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FZ FAN....I am chronic, and i know I am getting rebounds..."cause rebounds are not CHS."..they are a totally different type of headache....that is what alot of people fail to realize.....That is what I was trying to explain to Unsolved....I was not trying to jinzed his treatment or anything..God knows as I have had to try everything myself....I know the pain of chs....but rebounds are a totally different headache ....You may say you are not concerned about rebounds at this point and I can understand that...but , believe me, when you start having rebounds, you will think totally different about them...They may not have the stabbing pain of chs but believe me, they hurt like hell, and they dont want to go away....Sorry if you misunderstood me in any way...Just wanted to share what has been happening to me lately...it has not been pleasant...Good luck and God speed to you....keep us posted...smiles, nancyc
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| « Last Edit: Sep 9th, 2004, 10:43am by nancyc » |
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don
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Rebounds are not pleasant but they are surely preferable to getting slammed by CH day in and day out.
Hope you get some relief with the lollipops.
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FZfan
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Re: Narcotics
« Reply #18 on: Sep 9th, 2004, 12:48pm » |
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Thanks for clearing that up for me nancyc. I always assumed rebounds were a repeat of the cluster attack, and if one was chronic I couldn't understand how you could tell a rebound attack from a normal attack.
So in that context, rebound really isn't the correct word. Would rebounds then more accurately be described as "narcotic generated headaches"?
BTW, I have used narcotics in the past for clusters before I finally got the proper treatment. I never experienced the rebound effect, although the narcotic trip and hangover certainly presented their own problems.
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| « Last Edit: Sep 9th, 2004, 12:52pm by FZfan » |
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There is no such thing as a dirty word. Nor is there a word so powerful, that it's going to send the listener to the lake of fire upon hearing it. - FZ
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don
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Quote:| although the narcotic trip and hangover certainly presented their own problems. |
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Thats the understatement of the year.
Where would you like me to start?
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catlind
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Re: Narcotics
« Reply #20 on: Sep 9th, 2004, 2:58pm » |
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Michael, I just finished a one week trial with Actiq. While it does help the attack within about 10-15 min. if you have to use 2 (which they say you can use a 2nd one in 30 min. if the 1st doesn't work) you may find yourself having one hell of a rebound.
I understand completely you wanting to lessen the CH, but when I got a strong hit (I can't use triptans of any kind) and I had to use 2 lollipops, I spent all evening, all night and half the next day with a headache that is equal to a migraine. The rebounds I experienced left me equally debilitated as a CH did.
That being said, keep in mind that right now my only option is O2. So I can't use a trex shot for the real bad ones if they hit. Using just one Actiq didn't cause too much trouble, so you might be ok with it. It works fast and puts a lot of the drug into your system quickly, which is why I think it may cause the rebound.
Just wanting to let you know what to expect, and certainly not trying to tell you not to try it. Let us know how it goes for you so we get some extra data on this one.
Cat
p.s. dosage was 200mcg
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Karla
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Re: Narcotics
« Reply #21 on: Sep 9th, 2004, 10:00pm » |
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If that doesn't work try (fentanol) duragesic patches. Several people here have found relief at various doses using this pain reliever. I would highly recomend it. I am praying for you to find some relief real soon.
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Karla
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unsolved1
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on Sep 9th, 2004, 10:00pm, Karla wrote:| If that doesn't work try (fentanol) duragesic patches. . |
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Actiq Lollipops are Fentanol fentanyl.
Same drug as the patch. Patch releases slowly, continuously ... where lollipops release medicine quickly, in a larger dose.
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ExPat_jac
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Re: Narcotics
« Reply #23 on: Sep 10th, 2004, 3:20am » |
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on Sep 8th, 2004, 9:13pm, unsolved1 wrote:I cannot get med free to give the shroom treatment a fair try. I've been trying and trying. I can't do it.  |
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Time to kick your butt here a bit (good heartedly of course....
Look dude...I have been FORCED to be med free because of where I am and my situation....
I have been chronic for over 20 years, and ep since age 7...
My routine has been 5 to 7 Kip 7-9 A FREAKIN DAY....
All while attempting to hold a job...in the TROPICS no less!!!!!
No Air Conditioning....Not even any freakin ICE for christ sake....
I have spent HOURS crying...begging....and nothing...
you CAN do it....you CAN go med free for as long as it takes to go the shroom route.....
Hell..if there were the SLIGHTEST chance that I could do this....I'd be shroom king 
But...they KILL people here in this country for that....it's a death sentence, thus not even a remote option....
I have been getting some releif now with neurontin at high doesage...but
Bottom line.....the body is a very strong thing...it's the wil dude....
If you REALLY REALLY want to go drug free...you're body WILL let you do it...trust me on this one....
It's your mind that you have to convence on how bad you wish to do it.....
Look..people were living with CH headachs long before doctors even knew what they were....without drugs...
It can be done....hell..I never thought I could do it as bad off as I am...but when forced and no option, I found I could.....I still die..hell..I had such a killer the night before last, even after building up such hope with the new medication that I came as close to doing the swan dive thing as I ever have..but....
And, if I can put my two cents worth in (looks like I've already put in well over that...lol)
Stay as far away from narcotics as possible...I have NEVER read where they do anything but make the CH condition worse...they are a tempory cover at best...and even in the short run just lead to MUCH greater pain...plus now you have a monkey on your back giving more of a hard time.....(I have gone this route also, and I know this is the case with um)
Hang in there dude.....
Look...do what you feel is best...and sorry for sounding like a know it all and sounding like I am be littling your situation...trust me, I'm not...I feel for your brother...
But..if you doubt that you can go drug free and you have the chance to do the shroom thing...(god..if I could do that, I'd almost give up my left....ummm....wait...never mind) I'd do it....
Buddy...it reads as if you *have* the chance to go the shroom route, but just don't think you can go med clean....
haha tell you what...come live with me here for a few months...hell, it's cheap, once you pay your flight out here...you can eat for a month for 10.00....and I promise you'll be med free ....and then return home and start the shrooms
Hang in there friend.....
Do what you have to do....
But..you can go med. free if you want..it just takes a hell of a will...and you know what? I 'm betting deep down inside...you have more than enough will to do it....you just don't think you do...me, my money is on that you do
Peace
Jac
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Samantha_Smith
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Re: Narcotics
« Reply #24 on: Sep 10th, 2004, 11:18am » |
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Unsolved--
Good luck with the lollipops. I had great success with the Fentanyl patches for over 3 years (yes, I know there's a delivery system difference between the lollipops and the patches.) Beware that if you use the lollipops often you may develop a physical dependence upon them. I wish you the best of luck and many pain free days and nights! You've suffered long enough and you deserve a break. Keep us updated on what's happening. Samantha
P.S. Just wondering....if you had great success with the lollipops would you ever consider using the patches if your doc offered you that option? Again, just wondering.
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