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ShaneWJordan
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Herbal Treatment
« on: Sep 6th, 2004, 11:46pm » |
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I am new to this board, but I found a great herbal aromatherapy off of ebay that worked for my headaches. Anyone else have any luck with herbal aromatherapy?
Shane Jordan
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pubgirl
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Shane
I'm sure it's lovely smelling stuff but personally, I'd put it in the bath, because I know for sure it won't stop cluster headaches for me or about 99.99% of the people here
So when were your cluster headaches diagnosed since you are only posting about this herbal remedy, not about yourself?
Wendy
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ShaneWJordan
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Re: Herbal Treatment
« Reply #2 on: Sep 7th, 2004, 2:22am » |
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Wendy,
I have had CH's for about 4 years. I can go months without having them. I have tried every treatment. Been to every doctor with no avail. Ive tried the shots, pills, acupuncture, etc. But, nevertheless this is a board for us to try and help each other. I was only posting with what helped me.  I guess I am in the .01%, but it helped me. I go the herbal route with most all of my ailments. Its not harsh on your body and in my experience works much better. I use herbal for everything, my candias, colitis, etc.
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pubgirl
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on Sep 7th, 2004, 2:22am, ShaneWJordan wrote:Wendy,
I have had CH's for about 4 years. I can go months without having them. I have tried every treatment. Been to every doctor with no avail. Ive tried the shots, pills, acupuncture, etc. But, nevertheless this is a board for us to try and help each other. I was only posting with what helped me. I guess I am in the .01%, but it helped me. I go the herbal route with most all of my ailments. Its not harsh on your body and in my experience works much better. I use herbal for everything, my candias, colitis, etc. |
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I'm very pleased for you Shane, but as I posted on the other thread you have started up as well to talk about this herbal remedy, you ARE in a minute minority if herbal remedies work for your clusters.
You are a lucky man
Also in case you weren't aware, the "going months without them" is nothing to do with remedies, it is called having cluster headaches
Wendy
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ShaneWJordan
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Re: Herbal Treatment
« Reply #4 on: Sep 7th, 2004, 2:39am » |
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Wendy,
I know that uummm thats why they call them clusters.
1. I never said the herbal route was the way to go for everyone. ONLY said it worked for me 
2. I never said "the herbal route made my headaches go away for month" I said "I can go months without having them. I have tried every treatment. Been to every doctor with no avail. Ive tried the shots, pills, acupuncture, etc. But, nevertheless this is a board for us to try and help each other. I was only posting with what helped me."
3. I didnt start the other thread. Someone was posting about their Ch's and I simply told them what helped me.
4. You would be suprised at how many people are turning to herbal v. traditional meds.
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clarence
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Re: Herbal Treatment
« Reply #5 on: Sep 7th, 2004, 3:00am » |
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on Sep 7th, 2004, 2:39am, ShaneWJordan wrote:Wendy,
I know that uummm thats why they call them clusters.
1. I never said the herbal route was the way to go for everyone. ONLY said it worked for me
2. I never said "the herbal route made my headaches go away for month" I said "I can go months without having them. I have tried every treatment. Been to every doctor with no avail. Ive tried the shots, pills, acupuncture, etc. But, nevertheless this is a board for us to try and help each other. I was only posting with what helped me."
3. I didnt start the other thread. Someone was posting about their Ch's and I simply told them what helped me.
4. You would be suprised at how many people are turning to herbal v. traditional meds. |
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This sounds highly suspect to me. Nanook, evilchopper, ddirlam....This post in particular sounds remarkably similar to stuff I have read in those posts. I don't want to be rude to a genuine CH'er, but I guess we'll see how this one plays out.
Casey
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synergy
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Re: Herbal Treatment
« Reply #6 on: Sep 7th, 2004, 3:56am » |
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 You just dont give up do ya!
Glad it worked for you hun - Just wondering:
what are your symptoms during a cluster headache?
how long does an attack last?
how would you describe the pain?
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ShaneWJordan
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Re: Herbal Treatment
« Reply #7 on: Sep 7th, 2004, 4:02am » |
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This treatment seems to work for me, before this treatment, I could feel them coming with a pain over my eye, my vision would get blurry, almost like a sinus headache starting. They just bang, like a tooth ache- with every other heart beat, sometimes thye last 3 hours or all night. I would try Tylenol, Vicodin, heat, ice, pulling my hair -It just felt horrible. This is really all I found that helps me, I dont seem to get as many rebounds. Thanks for being sweet.
Shane Jordan
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synergy
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Re: Herbal Treatment
« Reply #8 on: Sep 7th, 2004, 4:37am » |
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Im sorry to hear you are in pain and suffering - but my partner has tried many herbal treatments and they just do not work - im glad it worked for you though.
You have to try and understand that most of the people on this site have tried every single thing for CH to no avail - this is why they (and me) will seem to be quite offish when something like this comes up.
If people want to try it then fair enough - but we get a lot of people on here who try to sell stuff that will either cure or help CH and to be honest its bollucks and very unfair on us.
Perhaps if you came on the site and first told us all about you and your CH then we would of been more understanding - but coming straight on here and posting a message about something to help CH (which costs money) doesnt really give us much of an impression.
luv sarah xx
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Ueli
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Oh, let's see, what have we got here?
A newbie who writes 8 posts in 2.5 hours.
Does he have cluster headaches? I doubt it. He describes his headaches as: They just bang, like a tooth ache- with every other heart beat, sometimes thye last 3 hours or all night. You'll agree, not quite typical symptoms.
What has he tried to combat his "cluster" headaches? I've taken every drug on the market and all they have helped me is to give me rebound headaches. and I would try Tylenol, Vicodin, ...(that otherwise help most clusterheads, isn't it).
Shane, you should research a disease and its standard treatments a bit more carefully before you start to clutter up a message board with your wonder cure and your shameless plug.
Aroma therapy is at best something for the yuppies, out of the wellness scam business. I at least would like know how a sensory input to the nose can teach the hypothalamus to behave and stop clustering, before I would spend even a nickel on such unproven stuff. BTW, did you know that many clusterattacks are triggered by strong scents?
Read what Quackwatch has to say: Aromatherapy: Making Dollars out of Scents
Shane writes: But, nevertheless this is a board for us to try and help each other. True, but it also about warning people from useless, and potentially harmful stuff. So I feel free to post this picture:
PFNADs, Ueli 
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don
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Quote:| You would be suprised at how many people are turning to herbal v. traditional meds. |
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I wouldn't be surprised about that.
I would be surprised about positive results .
I'll say it out loud.
If herbal treatments stopped your clusters, then you dont have cluster headaches.
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| « Last Edit: Sep 7th, 2004, 7:52am by don » |
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pubgirl
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Cheers Ueli and Don, thought I was on my own on this one earlier on! There was even a new customer biting!
Shane
I suspect Sarah is not being sweet (  Sarah)
If I'm wrong Sarah, sorry! She is quite rightly questioning your symptoms as a true cluster sufferer will not be helped beyond some comforting by aromatherapy.
She did right to question because your symptoms don't match CH.
Have you been diagnosed by a neuro?
I'm not being cruel here, it's just that there are other headaches (which I believe you have) which are much more easily treated than pumping yourself full of painkillers and causing more headaches.
I think you should follow Ueli's advice and read up a bit more about clusters and the treatments before suggesting people spend their money and even showing them where to spend it
I wish you pain free times ahead Shane
Wendy
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| « Last Edit: Sep 7th, 2004, 7:57am by pubgirl » |
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ShaneWJordan
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Re: Herbal Treatment
« Reply #12 on: Sep 7th, 2004, 9:13am » |
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OK sorry if I came off as a peddler. I honestly was just putting up what had worked for me. I do understand ALOT of people post on boards just to sell their product. I am not in that category. I have been diagnosed with CH's not by a neuro though. I do try and stay away from any type of meds other than herbal treatment for ANYTHING. Meds are harsh on your body. I HONESTLY just posted what worked for me. Sorry if I came off as a "TROLL" LOL
Shane Jordan
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nani
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Re: Herbal Treatment
« Reply #13 on: Sep 7th, 2004, 9:38am » |
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Clusterheads... we are grumpy from pain, tired of people selling snake oils, ok... but no one is forcing anyone to buy anything. I checked out the product Shane was talking about. I didn't buy it - just looked at it online. I can try the blend right here in my home without buying- it can't hurt anymore than the HA.(I already have the aromatherapy oils here). Can't we all just get along? 
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BobG
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Re: Herbal Treatment
« Reply #14 on: Sep 7th, 2004, 9:43am » |
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Ok you're not a troll. But,
Quote:| Meds are harsh on your body. |
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And radiation is hard on a cancer victim but it'll work better than carrot juice.
Which is worse, the disease or the treatment?
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karma
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Re: Herbal Treatment
« Reply #15 on: Sep 7th, 2004, 10:06am » |
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If I didn't know better I would assume that only people in developed countries with advanced medical services have CH.
I know better! The methods used by people for dealing with CH pain from other countries are as varied and unusual as they are affective.
Burning rope, hot eggs on the forehead, bushteas, prayer, herbs, shrooms, and I'm sure many, many others I don't know about.
I choose not to use manufactured abortives because I'm convinced they make the CH cycle worse. That is my choice and in conflict with most others.
SO WHAT IT WORKS FOR ME!
I'm new here so I don't know the history of bogus cures and "skake oils" on this site. Becuase of that I have a little undertsanding of the skepticism shown by other sufferers. But If we didn't keep an open mind we wouldn't have the shroom or 02 or meditation, or melatonin therapies. These are all methods that by pass traditional medicine.
I for one don't mind trying off the wall techniques. That is my choice.
CH doesn't run my life I run it.
Just food for thought
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synergy
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Re: Herbal Treatment
« Reply #16 on: Sep 7th, 2004, 10:07am » |
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on Sep 7th, 2004, 7:53am, pubgirl wrote:
Shane
I suspect Sarah is not being sweet ( Sarah) |
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LOL Wendy 
I wasnt trying to be nasty or sweet!!! I suspect that you dont have CH - if it wasnt a neuro who diagnosed you then please - who was it?
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BobG
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Re: Herbal Treatment
« Reply #17 on: Sep 7th, 2004, 10:24am » |
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Hey Karma
Quote:| I choose not to use manufactured abortives because I'm convinced they make the CH cycle worse. |
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You may be right about this. There has been discussions here about taking meds. Some say the cycles last longer and some same the meds cause rebounds.
But, others say say they would rather have less painfull attacks even if they get more of them. Damned if you do, damned if you don't.
About those that come here with "cures" and "snake oil" messages. This site has been here for many years and there are many highly educated people here. They know a sales pitch when they see one. When someone comes here with a "cure" and gives a web address or email address that requires sending money then it is taken for granted the person is a troll. Clusterheads DO NOT prey on their own.
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pubgirl
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on Sep 7th, 2004, 10:06am, karma wrote:The methods used by people for dealing with CH pain from other countries are as varied and unusual as they are affective.
Burning rope, hot eggs on the forehead, bushteas, prayer, herbs, shrooms, and I'm sure many, many others I don't know about.
I choose not to use manufactured abortives because I'm convinced they make the CH cycle worse. That is my choice and in conflict with most others.
SO WHAT IT WORKS FOR ME!
I'm new here so I don't know the history of bogus cures and "skake oils" on this site. Becuase of that I have a little undertsanding of the skepticism shown by other sufferers. But If we didn't keep an open mind we wouldn't have the shroom or 02 or meditation, or melatonin therapies. These are all methods that by pass traditional medicine.
I for one don't mind trying off the wall techniques. That is my choice.
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karma
What you have been seeing here is not closed minds, nor people who only use "manufactured abortives".
We are desperate for something that works, and ready, like you, to try new ideas, there are also many like you who don't like taking the drugs (I don't either and almost always don't) You do not have a monopoly on this, and the people who have responded negatively to Shawn are not doing so because they think drugs are the answer. WE KNOW THEY AREN'T ALREADY! and we already know they make our condition worse in many cases.
You have missed the point. The point is that we ARE interested in hearing from people who actually have CH, from people who have ideas about treatment based on some knowledge of the symptoms and mechanisms of the condition. Aromatherapy has been tried by thousands of sufferers, it isn't new and it doesn't work for most. It just empties their pockets which are already pretty empty I expect.
This, coupled with Don's points about the "sell" is the reason for the negativity. It is not an indicator of closed minds.
Wendy
edited for spelling
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| « Last Edit: Sep 7th, 2004, 11:08am by pubgirl » |
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karma
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Re: Herbal Treatment
« Reply #19 on: Sep 7th, 2004, 1:08pm » |
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Bob G and Pub girl
Its cool, I understand.
I just hate to see people get their knickers in a twist whenever someone posts a dubious remedy. Lifes to short to bother with lowlifes.
I would have much rather have seen it left unanswered to fade away.
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pubgirl
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karma
Fair point, but asking people on here not to answer is like asking a mosquito to give up sucking blood
If I hadn't done it, someone else would 
I think one of the other things we share here as well as pain is being talkative
Wendy
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IndianaJohn
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Re: Herbal Treatment
« Reply #21 on: Sep 7th, 2004, 9:43pm » |
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This guy's a
Do you know how you kill a troll? You have to use fire or acid on it. If you shoot it or stab it, it just heals itself. If you blow it up or chop it up, you get a bunch of little trolls. 
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Did my brains fall out or is this headache over?
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don
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Quote:| it can't hurt anymore than the HA.( |
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No it can just induce one on someone who is new to CH and dont know any better.
I'll say it out loud again.
If your new to CH dont waste your time, energy or money. Its a sham.
Get legitimate medical treatment.
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BobG
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Re: Herbal Treatment
« Reply #23 on: Sep 8th, 2004, 5:27am » |
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on Sep 7th, 2004, 1:08pm, karma wrote:| I would have much rather have seen it left unanswered to fade away. |
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I would too. But this place wouldn't be near as much fun.
Clusterheads are an argumentative, cynical, sarcastic bunch (except me) and enjoy a good fight. Just check any of the political or religious strings.
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clarence
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Re: Herbal Treatment
« Reply #24 on: Sep 8th, 2004, 7:37am » |
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on Sep 7th, 2004, 9:43pm, IndianaJohn wrote:This guy's a
Do you know how you kill a troll? You have to use fire or acid on it. If you shoot it or stab it, it just heals itself. If you blow it up or chop it up, you get a bunch of little trolls. |
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John,
Wow, you're really enjoying that pain free time, aren't ya? A little internet research there?
Either that or the beers!
Casey
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