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Topic: Hooray!!!!!! O2 (Read 313 times) |
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E-Double
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Hooray!!!!!! O2
« on: Jul 7th, 2004, 2:38pm » |
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Finally got my O2 !!! YEAH!!
Gave me 2 tanks @ up to15 (lpm) (that's good right?)
One for home and one for the road  only $150.
Sounds cheap to me and this is NY. Will try insurance as well but ya know the pains in the ass. This was quicker.
Could have used it last night and this morning.
Hopefully won't have to tonight ( I guess we all say this)but atleast now I know that I can if needed.
Thank you all for the support[/b] and the push to get on my doctors ass!!
Best,
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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broomhilda
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Ride it!
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Re: Hooray!!!!!! O2
« Reply #1 on: Jul 7th, 2004, 4:07pm » |
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Eric, I am so happy for you!!!! 
Doing a happy dance for you!!! Hope you do not need it but I am so glad you are now armed with o2 in case you do!
Best and hugs
Andrea
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Suck it up Princess...
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Superpain
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Re: Hooray!!!!!! O2
« Reply #2 on: Jul 7th, 2004, 4:07pm » |
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Awesome!
15lpm should do it....
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Chris
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Superpain
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Re: Hooray!!!!!! O2
« Reply #3 on: Jul 7th, 2004, 4:08pm » |
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Get back to us when you kick the beast's ass for the first time. It's a great feeling. 
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Chris
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E-Double
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Re: Hooray!!!!!! O2
« Reply #4 on: Jul 7th, 2004, 6:05pm » |
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on Jul 7th, 2004, 4:07pm, broomhilda wrote:Eric, I am so happy for you!!!!
Doing a happy dance for you!!! Hope you do not need it but I am so glad you are now armed with o2 in case you do!
Best and hugs
Andrea |
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I was like a little kid in a candy store or a pig in shit smiling just to be able to access this
Quote:| Get back to us when you kick the beast's ass for the first time. It's a great feeling. |
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You better believe it!! I hope it helps cause getting tired! We all are though! I've had a weird couple of days since off the pred. or for whatever reason last night I had the most intense monsters in easily a week.
Enuff's enuff......... I gost me sum OH TWO !!!!!! 
Happy Eric Thanks again and maybe meet someday
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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BlueMeanie
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Congrats Eric. I know what you mean about being excited getting 02. I was yaahoooing too when I finally got mine. Hope it works for you. Keep us posted.
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Kris_in_SJ
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Re: Hooray!!!!!! O2
« Reply #6 on: Jul 7th, 2004, 7:51pm » |
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I'm sending big hugs and smiles your way, Eric!
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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miapet
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Re: Hooray!!!!!! O2
« Reply #7 on: Jul 7th, 2004, 8:05pm » |
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*YAY*
*happy o2 dance*
*positive light and energy*
miapet
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Clusterbusters Rock
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Kevin_M
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Re: Hooray!!!!!! O2
« Reply #8 on: Jul 7th, 2004, 8:16pm » |
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Way to go E-Dub,
Getting the O2 will help a lot, just knowing you have it there when you need it is a great relief. Being prepared is much better, having relief within arm's length will keep down the worrisome feelings just before it's about to grab you. Real glad for you E.
Kevin M
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E-Double
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Re: Hooray!!!!!! O2
« Reply #9 on: Jul 7th, 2004, 8:22pm » |
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Just knocked the beast down from an 8 to easily a good old 2. Given I poked myself with some trex as well but it definitely seemed to work quicker!!?? I'll take it!!!!!!
Still not sure which attacks to abort with meds other than the real bad ones because Istill can't find patterns so never know if it is going to be the big kaboom!
Anyway I'm psyched and atleast I can use the O2 for all else.
Take that you deamon fuck!!!!!
and to top it off I figured out the whole picture thing!
Happy day!!
Thank you all for help support etc.
I want to hug everyone of ya!!!
Here's a seperate question/comment...
I've been dying for a beer and haven't had one in nearly 2 months. Still don't know what if any triggers I have. Do I dare try that?
Anyway be well all and will talk Later I'm sure
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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JDH
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Re: Hooray!!!!!! O2
« Reply #10 on: Jul 7th, 2004, 10:06pm » |
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on Jul 7th, 2004, 8:22pm, E-Double wrote:
Here's a seperate question/comment...
I've been dying for a beer and haven't had one in nearly 2 months. Still don't know what if any triggers I have. Do I dare try that?
Anyway be well all and will talk Later I'm sure
Eric |
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Eric, glad to hear of the success with the o2. It really is a great feeling to knock it down isn't it?
I'd be real careful drinking. It's one of the only triggers I have and I make damn sure the cycle's over before trying to drink...but it's up to you
good luck,
Jim
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Superpain
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Re: Hooray!!!!!! O2
« Reply #11 on: Jul 8th, 2004, 5:30am » |
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I drank during cycle when I knew I shouldn't just because i wanted a beer so bad...
That is a guaranteed ass kicking most likely...
But WTF...
Like a chronic friend of mine said, "Don't drink, get a headache, drink get a headache..."
Probably gonna get hit anyway, but it seems to make mine twice as painful and longer.
But it didn't stop me.
Just keep that o2 handy.
next time try it without the trex to see if you can kill it with O2 alone.
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Chris
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E-Double
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Re: Hooray!!!!!! O2
« Reply #12 on: Jul 8th, 2004, 6:49am » |
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on Jul 8th, 2004, 5:30am, Superpain wrote:I drank during cycle when I knew I shouldn't just because i wanted a beer so bad...
That is a guaranteed ass kicking most likely...
But WTF...
Like a chronic friend of mine said, "Don't drink, get a headache, drink get a headache..."
Probably gonna get hit anyway, but it seems to make mine twice as painful and longer.
But it didn't stop me.
Just keep that o2 handy.
next time try it without the trex to see if you can kill it with O2 alone. |
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That's why I've stayed away. Still am curious just because I would like toknow if it is a trigger. I want one!!!!! A trigger that is.
I feel left out. haha!
LAter,
E-
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Superpain
New Board Hall of Famer
GOT O2!?
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Posts: 1351
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Re: Hooray!!!!!! O2
« Reply #13 on: Jul 8th, 2004, 4:13pm » |
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Well... Get a 6 pack and see...
I'll bet you $5 you get your ass kicked.
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Chris
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E-Double
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Re: Hooray!!!!!! O2
« Reply #14 on: Jul 8th, 2004, 7:10pm » |
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on Jul 8th, 2004, 4:13pm, Superpain wrote:Well... Get a 6 pack and see...
I'll bet you $5 you get your ass kicked. |
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I'll wait!!!!!! Lost the beer gut anyway then gained the prednisone bloat! Finally losing that. Fiance noticed right away
BTW I'm loving the O2 just knocked another one back and didn't use the imitrex.
YEAH!!
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Peppermint
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Re: Hooray!!!!!! O2
« Reply #15 on: Jul 9th, 2004, 10:54am » |
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on Jul 7th, 2004, 6:05pm, E-Double wrote:
I've had a weird couple of days since off the pred. or for whatever reason last night I had the most intense monsters in easily a week.
Happy Eric Thanks again |
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Hey E man, glad you got your 02 - but a question. .. has your doc discussed preventatives with you?
From what I know, its best to be on a preventative in conjunction with a prednisone set (taper up/down) so that when you are coming off prednisone you don't get the Beast Monster Attack From Hell. The pred stops them (if it works for you), but without a preventative buildup working for you, you're likely to get slammed pretty bad once you taper off of it.
02 is good, you might want to ask the doctor about some preventative like Verapamil for instance. I know there are different types of Verap. too so maybe some of you guys can pipe in on the differences between Verapamil SR, IR....
Glad you're on your way to relief bro.
Pep
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don
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Quote:I've been dying for a beer and haven't had one in nearly 2 months. Still don't know what if any triggers I have. Do I dare try that?
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Kind of like wiating to see if the scheduled train is on time by lying on the track.
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E-Double
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Re: Hooray!!!!!! O2
« Reply #17 on: Jul 10th, 2004, 11:12am » |
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on Jul 9th, 2004, 11:21am, don wrote:
Kind of like wiating to see if the scheduled train is on time by lying on the track. |
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SO DECIDED TO WAIT!!!
I don't need to any surprises.
E
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IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
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E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
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Re: Hooray!!!!!! O2
« Reply #18 on: Jul 10th, 2004, 11:22am » |
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on Jul 9th, 2004, 10:54am, Peppermint wrote:
Hey E man, glad you got your 02 - but a question. .. has your doc discussed preventatives with you?
From what I know, its best to be on a preventative in conjunction with a prednisone set (taper up/down) so that when you are coming off prednisone you don't get the Beast Monster Attack From Hell. The pred stops them (if it works for you), but without a preventative buildup working for you, you're likely to get slammed pretty bad once you taper off of it.
02 is good, you might want to ask the doctor about some preventative like Verapamil for instance. I know there are different types of Verap. too so maybe some of you guys can pipe in on the differences between Verapamil SR, IR....
Glad you're on your way to relief bro.
Pep |
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Hey there Pep,
That is exactly what I feel like....
Getting slammed again hard as of the past couple of days!!!!!!! Since off the prednisone.
Went to a new doctor (can see my post other posts NYHeadache center or question for veterans) and the guy wants me on Verapamil yet did not perscribe prednisone. possibly because I just finished. Who knows!? To me I'm getting slammed again( feeling like I'm back in the peak) possibly because the original preventative Depakote has obviously not been effective.
Keep trying! I was (am) really to be positive. It's hard. I got hit so damn hard last night & throughout early morning & nothing helped. Bummer but gotta keep trying.
Thanks again & will keep ya updated.
Eric
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IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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