Author |
Topic: Gamma-Knife - Successful results (Read 366 times) |
|
jeffhall
New Board Newbie
 
Gender: 
Posts: 8
|
 |
Gamma-Knife - Successful results
« on: May 12th, 2004, 10:48am » |
 Quote  Modify
|
Hello,
My name is Jeff Hall. I have been a member of this site for a few years, though rarely posted.
My Bad.
I was diagnosed as a CHRONIC Cluster Headache sufferer 4 years ago. I went to over 5 neurologists before I was properly diagnosed.
On December 1, 2003 I underwent Gamma Knife radiosurgery (http://www.allsands.com/Misc1/gammakniferadi_uux_gn.htm).
I am absolutely thrilled with the outcome.
Before the procedure I experienced up to 3 attacks per day lasting up to 45 minutes each. I was honestly suicidal. My life was not good. Approx. 1 month after the procedure my attacks began to diminish gradually. It is now May, and I am almost completely “cured”. I have only had one single attack in the past couple of weeks.
I am currently (and was before) taking Neurontin 1600Mb 3x day. I am afraid to stop taking it. Perhaps it is a crutch. Perhaps it is helping. Perhaps I have just been lucky lately.
Anyway, I just wanted to share my experience. Perhaps someone can benefit from this knowledge.
I would love to hear from anyone personally. If I can answer any questions or offer support in anyway I would love to hear from you.
Very best regards,
Jeff Hall
Jhall30000@hotmail.com
770-433-9581
|
|
 IP Logged |
|
|
|
HypnoticFreddy
Guest
|
|
Re: Gamma-Knife - Successful results
« Reply #1 on: May 12th, 2004, 12:02pm » |
Quote Modify
 Remove
|
Jeff,
Gamma knife surgury has been mentioned here in the past. I don't know a lot about it, so I can't say.
Neurontin has been posted on this board 5,000 times. I took it for other reasons, but it did nothing to abort or prevent me from CHs.
Good luck.
-Scott
|
|
IP Logged |
|
|
|
jeffhall
New Board Newbie
Gender:
Posts: 8
|
|
Re: Gamma-Knife - Successful results
« Reply #2 on: May 12th, 2004, 12:11pm » |
Quote Modify
|
Scott,
It took a very high dosage of Neurontin to make a difference with me (I take 2 800mb pills 3 times a day).
Thanks for your support and wishes. After 4 years SOMETHING is definitely working.
Who am I to mess with fate?
Thanks,
Jeff
|
|
IP Logged |
|
|
|
notseinfeld
New Board Hall of Famer
Enough is Enough. Vote Libertarian
 
Gender:
Posts: 648
|
|
Re: Gamma-Knife - Successful results
« Reply #3 on: May 12th, 2004, 6:01pm » |
Quote Modify
|
Hey Jeff--I know you personally and I think the pecs have move southward from when that suit picture was taken 
|
|
IP Logged |
-----------Democracy is three wolves and a sheep voting on what's for dinner. ---------------------
|
|
|
jeffhall
New Board Newbie
Gender:
Posts: 8
|
|
Re: Gamma-Knife - Successful results
« Reply #4 on: May 16th, 2004, 5:51pm » |
Quote Modify
|
Notseinfeld,
I fully agree I know you personally. Perhaps too personally. I was a bit drunk the other night. I'm not saying that you took advantage of me.....
But what was with your constant chatter about the dwarfs in mini-skirts?
I will always value that night too....but quit sending me flowers, okay?
Very best regards.
|
|
IP Logged |
|
|
|
BobG
New Board Hall of Famer
Gender:
Posts: 5747
|
|
Re: Gamma-Knife - Successful results
« Reply #5 on: May 16th, 2004, 6:08pm » |
Quote Modify
|
on May 16th, 2004, 5:51pm, jeffhall wrote:Notseinfeld,
I fully agree I know you personally. Perhaps too personally. I was a bit drunk the other night. I'm not saying that you took advantage of me.....
But what was with your constant chatter about the dwarfs in mini-skirts?
I will always value that night too....but quit sending me flowers, okay?
Very best regards.
|
|
Hey notseinfeld, gotcha didn't he? LMAO
I like this guy already.
Jeff, glad to hear you've had sucess. Hope the clusters stay away forever.
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
mynm156
New Board Hall of Famer
hope life isn't a big joke, because I don't get it
Gender:
Posts: 1708
|
|
Re: Gamma-Knife - Successful results
« Reply #6 on: May 16th, 2004, 7:51pm » |
Quote Modify
|
Love is a beautiful thing isnt it?
|
|
IP Logged |
"Half of the modern drugs could well be thrown out of the window, except that the birds might eat them."
|
|
|
Karla
CH.com Alumnus
New Board Hall of Famer
One of Many and Never Alone - Join OUCH
Gender: 
Posts: 3090
|
|
Re: Gamma-Knife - Successful results
« Reply #7 on: May 17th, 2004, 4:11pm » |
Quote Modify
|
Call me sceptical but I have heard others report early success only to find out before the year was out that the ch had returned full throttle. I wish you much success and pray this is your cure but I am not holding my breath.
|
|
IP Logged |
Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
|
|
|
jeffhall
New Board Newbie
Gender:
Posts: 8
|
|
Re: Gamma-Knife - Successful results
« Reply #8 on: May 17th, 2004, 4:20pm » |
Quote Modify
|
Karla,
Thank you for your kind words. I value and respect healthy skeptism. I am the same way.
All I know is I am doing better after 4 years of daily torture.
Heck, even if it does only last a year I am happy.
Thanks!
|
|
IP Logged |
|
|
|
tbp38
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 12
|
|
Re: Gamma-Knife - Successful results
« Reply #9 on: May 18th, 2004, 11:11pm » |
Quote Modify
|
thanks jeff, i am at the end of my rope, have been chronic for 20 yrs., tired of the meds that don't work and their side effects. my doc has mentioned that surgery was a possibility, but keeps giving me drugs that don't help. can you give me more info about the procedure you had? thanks, tbp38 408 281 3217
|
|
IP Logged |
|
|
|
tommyD
New Board Hall of Famer
Anything not impossible is compulsory.
Gender:
Posts: 525
|
|
Re: Gamma-Knife - Successful results
« Reply #10 on: May 19th, 2004, 7:16am » |
Quote Modify
|
tbp38 -
Gamma knife worked well for Jeff, but results from this procedure have been mixed... The docs seem to be getting better at this, but some clusterheads have reported loss of nerve funtion and a return of the beast anyway. Cutting nerves is touchy stuff.
20 years chronic is a long tough haul, I can only imagine... If you're at the end of your rope, and the doc's meds don't work, maybe it's time to try Mother Nature's meds.
www.clusterbusters.com
There are short-term side effects  , and it doesnt work as well for chronics (est. success rate 65 percent) as it does for episodics (est. 90 percent). Research thoroughly, and remember it's not to be taken lightly, but neither is brain surgery...
good luck whatever you try
-tommyD
|
|
IP Logged |
www.clusterbusters.com
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss