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Topic: Has anybody tried this one? (Read 529 times) |
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mynm156
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Has anybody tried this one?
« on: Apr 19th, 2004, 11:08pm » |
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My NEW Neuro wants me to try "” cant read his writing. Something like that. Won’t know till tomorrow when I get to pick it up. Anybody know what it is?
Thanks all!!
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| « Last Edit: Apr 19th, 2004, 11:59pm by mynm156 » |
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Lobster
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Re: Has anybody tried this one?
« Reply #1 on: Apr 19th, 2004, 11:25pm » |
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ZONEGRAN
nope
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Superpain
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Re: Has anybody tried this one?
« Reply #3 on: Apr 20th, 2004, 7:51pm » |
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Did you try foothills neurology?
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Chris
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no-one
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Re: Has anybody tried this one?
« Reply #4 on: Apr 20th, 2004, 9:46pm » |
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Hi,
I tried zonegram, I was told it was on the same like as topamax without all the side effects. But it didn't work for me. I hope that you have good luck on it and are soon PF.
Becky
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Lizzie2
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Re: Has anybody tried this one?
« Reply #5 on: Apr 20th, 2004, 9:49pm » |
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on Apr 20th, 2004, 9:46pm, no-one wrote:Hi,
I tried zonegram, I was told it was on the same like as topamax without all the side effects. But it didn't work for me. I hope that you have good luck on it and are soon PF.
Becky |
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did you try it thru the study at jefferson? or did dr. young just prescribe it to try? just curious
lizzie
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no-one
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Re: Has anybody tried this one?
« Reply #6 on: Apr 21st, 2004, 2:07pm » |
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Hi Lizzie (Carrie)
Dr. Young just prescribed it, I was not part of the study.
Becky
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"Be who you are and say what you feel...Because those that matter....don't mind....And those that mind....don't matter."
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Renee
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Re: Has anybody tried this one?
« Reply #7 on: Apr 21st, 2004, 11:28pm » |
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I take 100mg zonegran and it is helping! Have been on it for about a month now. I could not take topamax because of the side effects.
Zonegran doesn't give me any side effects except a bit of drowsiness.
I know of another patient of the same neuro clinic that's on this board that is also on zonegran.
at this point, it is the first med that hasn't knocked my socks off with side effects and has provided relief.
good luck
renee
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snyder
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Re: Has anybody tried this one?
« Reply #8 on: Apr 22nd, 2004, 12:12am » |
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I've been taking zonegran both as a seizure med and to help with the clusters. I think it is OK. It sure beats the heck out of depakote. The only side effect for me is that I lost a ton of weight and I have to literally remember to eat ... it really supresses the hunger drive for me.
The cycle of cluster attacks that just recently ended for me was very severe. I cannot tell if zonegran had anything to do with the severity but do know that things got better when I increased my verapamil, which I also take. I was due for a more severe cluster cycle, I think, as the last couple were fairly mild comparatively, that is if mild is ever a word that can be used to refer to a cluster attack.
Bill
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sandie99
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Re: Has anybody tried this one?
« Reply #9 on: Apr 27th, 2004, 5:08am » |
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Nope, a new name for me.
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