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Topic: Episodic Cycle Avoidance (Read 448 times) |
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Giovanni
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Episodic Cycle Avoidance
« on: Apr 2nd, 2004, 7:49am » |
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I have had episodic cluster headaches for almost eleven years with the dominant cycle beginning in late February and ending in mid June to the middle of July. This cycle has been predictable and persistent with the exception of one year in which the cycle did not materialize for unknown reasons.
Last year the headache cycle ended on June 14th with the introduction of melatonin. After this bout of clusters, I decided to try the alternative treatment to try to avoid my next one scheduled to hit the following February.
After much reading on the subject my farm was started and successful (EU). The preventive doses were as follows:
12-23-03 1.7 grams 7:30 P.M. level 1.5+
01-11-04 2.0 grams 1:15 P.M. level 2.0
02-15-04 1.5 grams 2:00 P.M. level 1.5-
The following notes are from my diary:
Friday 20th February
Kip 1.5 around 4:00 taken some O2 quickly gone
Saturday 21, 04
Kip 2.5 from 2:00 P.M. – 4:00 P.M. two quick cups of coffee plus some 02 around 3:30 P.M. quickly dispatched
Sunday 22, 04
Kip 1 at 8:00-9:00 A.M. barely noticeable light shadow
At 4:00 P.M. dosed with .5 gram tea
Monday 23, 04
Kip 1 randomly throughout day….good day
Tuesday-Wednesday February 24, 25
Minor shadowing pf
Thursday February 26
Kip 2 (very light) some O2 about 7 P.M.
Friday 27, 04
Minor shadow early AM
Still pf
Friday 28-Monday March 15
PF Level 0
March 16 Tuesday – March 19 Friday
Level 1 no pain but minor shadows lingering
Dose (March 19) 11:15 A.M. .5grams EU
(more of a persistent head pressure)
March 20 – April 2, 2004
Pain level 0—Occasional head pressure—
At varying times of day
I am totally confident that if this therapy had not been initiated, I would be in full blown cycle by now. Last year I stopped counting imitrex injections after 125 stat doses. I am currently taking verapamil @360; B-complex 50s X 2 a day; melatonin a couple times a week (sleep patterns are still wacky).For the next several months I will do small maintenance doses of .5 each month; then go to every 3 months with 1.5.
In conclusion, this treatment has been a total success in my eyes and the first pain free spring in years.
Giovanni
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ave
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Re: Episodic Cycle Avoidance
« Reply #1 on: Apr 2nd, 2004, 10:18am » |
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Hoping right with you... Good show!
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There is a break in reality. Do not adjust your mind.
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JJA
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Re: Episodic Cycle Avoidance
« Reply #2 on: Apr 2nd, 2004, 10:41am » |
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Congrats
Do you have shadows on most days or are you usually completely pain free?
Thanks for the update.
JJA
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Is it illegal because it's dangerous or is it dangerous because it's illegal? Our drug laws are ruining lives.
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Giovanni
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Re: Episodic Cycle Avoidance
« Reply #3 on: Apr 2nd, 2004, 12:15pm » |
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The shadows now are almost non-existant. I do feel some head pressure from time-to-time during the day. My sleep patterns are not normal--as I become very tired early and wake up about 4:00 A.M.. I am totally pain free. I feel like I've gotten my life back!
Anybody thinking of this, do your homework and plan ahead. That's the best advice I can give you.
John
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Flounder
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sing sweet songs to rock my soul
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Re: Episodic Cycle Avoidance
« Reply #4 on: Apr 2nd, 2004, 3:22pm » |
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Fuckeneh!!!!!!!
Ain't it great when you get your life back.
Congratulations John!!!!!!!!!!!!!!!!!!!!!!!!!
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Thorns
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Re: Episodic Cycle Avoidance
« Reply #5 on: Apr 2nd, 2004, 4:30pm » |
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Still farmin'! Thanks for the post and update. I'll have to keep it for my records when the time is right. Oh yeah
Thorns
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miapet
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Re: Episodic Cycle Avoidance
« Reply #6 on: Apr 4th, 2004, 12:07pm » |
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*HAPPY DANCES* for Giovanni!!! You rock!!!
*positive light and energy*
miapet (giving you also an OMFG . .YOU TOTALLY ROCK) hehe
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Clusterbusters Rock
www.clusterbusters.com
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Pegase
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Re: Episodic Cycle Avoidance
« Reply #7 on: Apr 6th, 2004, 9:18am » |
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Fun so see the evolution... PF for ya... I'm planning to be a farmer soon...
Pegase
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| « Last Edit: Apr 6th, 2004, 9:19am by Pegase » |
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Giovanni
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Re: Episodic Cycle Avoidance
« Reply #8 on: Apr 6th, 2004, 10:04am » |
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Thanks for all the encouragement here. I'm still doing well with no signs of the beast.
John
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thomas
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Re: Episodic Cycle Avoidance
« Reply #9 on: Apr 6th, 2004, 10:53am » |
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Great news, John. Are you going to be mixing the screwdrivers in Nashville? 
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Giovanni
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Re: Episodic Cycle Avoidance
« Reply #10 on: Apr 6th, 2004, 10:59am » |
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Absolut ly 
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sandie99
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Re: Episodic Cycle Avoidance
« Reply #11 on: Apr 7th, 2004, 5:56am » |
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Congrats, Giovanni!
As they say, a patient always knows best! 
Many more PF springs to come,
Sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Virginia
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Re: Episodic Cycle Avoidance
« Reply #12 on: Apr 7th, 2004, 12:59pm » |
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WOOHOO John!!
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The Clusterhead formerly known as 9erfan.
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