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miapet
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o2 related? question?
« on: Mar 23rd, 2004, 3:14pm »
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I was wondering (just a thought) . . .but since o2 seems to work/help so many . . .what about those sleep apnea machines?  I have a couple of friends (darn they are out of state, or I would be there trying them *L*) who suffer from sleep apnea . . .and they use those machines . . my 'wonder' is if it would help clusterheads sleep . . any ideas? (Sorry if this has been covered before . . .it's this whole o2 thing in my head . . .)
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Re: o2 related? question?
« Reply #1 on: Mar 23rd, 2004, 3:17pm »
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From what I've learned from this board, the apnea machine does not deliver a high enough flow rate to abort ch.
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miapet
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Re: o2 related? question?
« Reply #2 on: Mar 23rd, 2004, 3:28pm »
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what about as a preventative? . . .like . . just use it automatically when you go to bed (like the apnea people do)?
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Re: o2 related? question?
« Reply #3 on: Mar 23rd, 2004, 3:47pm »
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Because O2 is an abortive, not a preventive, you need that massive infussion of O2 to abort the ch, breathing a greater concentration of O2 does nothing to prevent ch.  Besides too much straight O2 is also harmfull to the lungs.
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miapet
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Re: o2 related? question?
« Reply #4 on: Mar 23rd, 2004, 3:55pm »
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darn . . okay, thanks .. .
now, another question . . .how much o2 is harmful .. .if we are in cycle . . and using 8mls for 7 to 12 minutes sometimes every hour . . .sometimes not.  .. . are we hitting it too often??
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Re: o2 related? question?
« Reply #5 on: Mar 23rd, 2004, 4:17pm »
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No that much is safe, except you need to be doing 11-15 mls.
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Re: o2 related? question?
« Reply #6 on: Mar 23rd, 2004, 4:22pm »
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Ditto
 
We were told, whack it up high 12-15l/min. If it doesn't abort in about 20 minutes it isn't going to so knock it off and use something else.
 
When you feel brave, you then identify what your abort 02 level is, some people can at 9l/min but I need minimum 12 to work.
 
W
 
P.S. If you haven't tried it and you can take triptans, try popping the cheaper triptan pills when you start the 02, it mops up leftovers and rebounds later.
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Re: o2 related? question?
« Reply #7 on: Mar 23rd, 2004, 5:32pm »
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This may not help. I know it didn't do any good for me when I tried it, but Luke63 wears a canola at low rate all night and swears it stops night attacks. I keep trying to talk him into a mask and a high flow rate, but he won't consider it.
 
I believe that's pretty rare, in fact, he may be the only one it works for, but it might not hurt to try that one or two nights. At worst, it won't help and you just waste a little extra o2.  
 
If it works for one, maybe it'll work for two. At a low flow rate, the risk of damage to the lungs is minimal. I was hospitalized with pneumonia once and wore a canola for nearly a week.
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Re: o2 related? question?
« Reply #8 on: Mar 24th, 2004, 10:52am »
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Hey mia..and FZ....thats what I've been doing...wearing that bitchin canula all night...I guess feel safe..not sorry. PF last night too. Anyhow..this concentrator I have really only registers to 6lpm....but I have a feeling its goes upwards of 8 to 10...beecause..if I really crank it...it pops the pressure valve on the water tank. But all I can say is that I really feel its working for me...not constant..but I feel the HA's are less severe now if they happen..not that stabbing pain....more like a highly dull pain now...which I can deal with better...Luke
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Re: o2 related? question?
« Reply #9 on: Mar 24th, 2004, 11:18am »
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I use 02....24-7.....at a rate of 2 lpm.  Now, the 02 dosen't help me at all, at any rate, as far as Ch goes, because my 02 sat is so low as it is.  I also have sleep apnea, and when i don't wear my CPAP machine at night, i do notice a little difference, but it's a VERY little difference.  
 
Maybe if people could try doing this, that don't have the problems i have, and it may help....Never know!!
 
Use a CPAP machine for a higher flow rate of air to keep the air passages open even better than they are already, then add maybe 1 to 1.5 lpm of 02 (You don't need as much when you're sleeping) for the all night treatment, never know it may make a difference, and if anyone tries it, please let us know how it works out, i would but like i said it don't help me because of my Hypoxemia.   A 02 flow at that low of rate, shouldn't cause any problems, especially using it only at night.....My Doc said that i would develope extra lung problems after a while, but that's bcause i use it constantly.
 
You can hook up an 02 concentrator (or tank) set at 1 to 1.5 lpm up to your CPAP machine through a little nipple that can be purchased just for that reason.
 
Hope this helps some one!!  Please let us know!!!
 
Mikey,  Grin
 
PS: you do have to have a prescription for the CPAP Machine, and 02 as well, but most of us know how to get the 02, don't we  Grin Grin
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Re: o2 related? question?
« Reply #10 on: Mar 24th, 2004, 11:34pm »
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Wow . .thanks for sharing all the ideas and information . . .Luke wearing his o2 at night  . . .and my friends who have the apnea machines . .anyway . . .I appreiatate you all so much!
Luke . . I'm glad you had a good night!!
And, FZ . . .I read (somewhere in here) that your cycle appears to be on the downhill side!!! WOO HOO
Thomas, and Pubgirl . . .11 to 15?? Wow, I thought we were hitting it hard at 8 . . . Do you think that 11 to 15 mls would kick it faster??? Right now it takes about 7 to 12 minutes, and it cranks it to the top before it backs off . . . would faster be better??
*positive energy and light*  miapet
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Re: o2 related? question?
« Reply #11 on: Mar 25th, 2004, 5:15pm »
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Faster is always better when getting rid of ch. Grin
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Re: o2 related? question?
« Reply #12 on: Mar 25th, 2004, 5:36pm »
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more + faster = better. In my case, I was sucking it a 8ml because my reg maxed out at 8. Then I got a better regulator. I only had to bump it up to 10 to dramatically increase my results.
 
I think a combination of lung capacity, how you breath, how well the mask is sealed around your face, and how well the one-way valves work govern how much ml a person needs to be at. I found that the simple act of pressing the mask against my face allowed me to drop from 12 down to 10.
 
A respiration therapist advised me to start at a lower flow, then gradually increase it until you reach a point where the bag is full every time you're ready to inhale. She also said to check the "seal" of the mask, have someone watch you to make sure when you inhale, the bag is deflating alot. If the bag is only deflating a little during inhaling, you're sucking in outside air somewhere.
 
Obviously, all this screwing around needs to be done when you are NOT under attack!
 
If sealing the mask around your face is uncomfortable, then a higher flow rate would be needed to compensate for the leaks.
 
Even with everything working perfectly for me, the fastest I've ever aborted one has been 8 minutes. The longest I've ever took to abort has been 12 minutes. Of course, there is the occassional curve ball from the monster that even o2 doesn't abort. If you've been breathing o2 for 20 minutes with no relief, give up. It's time to dance.
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Re: o2 related? question?
« Reply #13 on: Mar 25th, 2004, 6:02pm »
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So far, sucking off the tube it only takes me 2-3 mins with big deep hits.
I just got a mask, so I guess I'll figure out how to rig it to my welding reg... But my first impression is that that little bag is not going to satisfy my sense of urgency I experience when hitting the O2... We'll see I guess.
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Chris
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