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Topic: Depakote.....? (Read 339 times) |
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Luke63
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Depakote.....?
« on: Mar 19th, 2004, 9:16am » |
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Went to a Neuro yesterday. He pretty much felt it was CH as well. I sound like Huey Lewis now.."I got a new drug!". Depakote is the name..1 a day extended release 150mg....then in 5 days...2 a day.....few hours before bed. Last nite was the first dose.Between O2 and that no head last nite. Anyone have any experience or some quick knowledge right off the bat for me? Gonna start some researching on it tho. Thanks.. Luke
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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Melissa
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I was on Depakote my last cycle, only I had to have the neuro halve the dosage from 500mg ER to 250mg ER because I was feeling like my brain was crackling and popping. Anyhow, it did reduce the amount of attacks I had, but not the severity. Hopefully you'll have good luck on it!
Here is some info. about Depakote aka Divalproex sodium: http://www.rxlist.com/cgi/generic/dival.htm
 mel
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Luke63
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Re: Depakote.....?
« Reply #2 on: Mar 19th, 2004, 5:11pm » |
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Thanks for the input..I also went to depakote.com....as well as a few other sites...thanks sweetie.....Luke
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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UN_SOLVED
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I need a fully-automatic Imitrex injector !!
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Re: Depakote.....?
« Reply #3 on: Mar 19th, 2004, 11:25pm » |
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I took Depakote for a good little while. Worked my way up to 1750mg / day . It didn't stop my attacks. I used it in combination w/ Topomax. All I got was tremors, memory loss, and kidney stones (probably all from the Topo) ! Hope you have better luck !
Unsolved
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I'm STILL alive ?
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Luke63
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Re: Depakote.....?
« Reply #4 on: Mar 20th, 2004, 9:34am » |
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Hey Un_Solved...just checked out your website....pretty cool man.....good work! Maybe Ill be lookin your way to get mine goin as well for my store. Seeya bud...Luke
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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Jeepgun
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My neuro put me on Depakote yesterday and I had my first dosage last night at dinnertime. I ended up getting a very very mild CH around 8:30, but it was greatly reduced in duration and intensity. The rest of the night and today have been pain-free, and I couldn't be happier. I'm on 500mg/day. I hope I continue experiencing good results with this stuff...
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Superpain
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GOT O2!?
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Re: Depakote.....?
« Reply #6 on: Mar 31st, 2004, 4:48pm » |
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Sorry, I just have to stick my head in and say something so my name is on ALL the "latest post" blocks...
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Chris
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PittsburghJoe
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Go away pain!
 
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Re: Depakote.....?
« Reply #7 on: Mar 31st, 2004, 4:53pm » |
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Depakote worked like a charm on my last cycle, but doesn't seem to be doing a lot for this one... though I'm hoping the Beast is fading now, or at least taking a break. The last couple days haven't been as bad.
Joe
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Nothing worth having comes without some kind of fight. Gotta kick at the darkness till it bleeds daylight. - Bruce Cockburn, "Lovers in a Dangerous Time"
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Luke63
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Re: Depakote.....?
« Reply #8 on: Mar 31st, 2004, 5:15pm » |
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I've been on this for 13 days now...and I really don't think its done anything except give me shadows in the day....Im really not sure...a little confused....
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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Melissa
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Oh, and by the way, my neuro couldn't stress enough to take it at the exact same time everyday. It wouldn't work for me unless I did that!
toodles!
mel
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Jeepgun
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I take it roughly at the same time each day. Now that I'm back in the gym and training, my meals are also on a very regular schedule. I'm eating every three hours, so 6:00 p.m. is when I take it. Still pain-free and still keeping my fingers crossed... (If I'm pain-free though, how will I know when this cycle has ended?)
-Frank
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toader
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Re: Depakote.....?
« Reply #11 on: Apr 1st, 2004, 9:46am » |
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it is working (sorta) for me - less pain, but man this drug makes me sick 
tapered down and now trying to taper up more slowly
still a battle ala barf-o-rama 
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Luke63
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Re: Depakote.....?
« Reply #12 on: Apr 1st, 2004, 10:01am » |
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I have a call to my neuro. I really dont think its working at all.Since sunday...i have had like 4 a night and getting more severe as they come. this has never happened in all these years...the 3 and 4 a night shit...and they are wearin me down. Last night i basically didnt sleep since about12:30am...ran out of O2...finally took an Imitrex. I dont know what to do...it's like im goin downhill again. Hope the neuro can help.
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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Jeepgun
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Damn, Luke.... *hugs and pf-vibes* That sucks. After reading everyone else's accounts, I guess I should consider myself very lucky. It is now Day 2 of being pain-free. Two nights of uninterrupted sleep, and two days of freedom from the Demon. I feel nothing but a very humble gratitude at the moment....
Luke, I dearly hope you gain some relief soon. Please hang in there.
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Luke63
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Re: Depakote.....?
« Reply #14 on: Apr 1st, 2004, 2:46pm » |
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Got off the phone with my Neuro Jeep...he up'd me for 2 more weeks instead of tapering down...we'll see what happens.
Hugs back man....Luke
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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PittsburghJoe
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Go away pain!
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Re: Depakote.....?
« Reply #15 on: Apr 1st, 2004, 2:52pm » |
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Luke buddy, BIG PF hugs to ya man. I've been getting hit more again the last 2 days too, finally got thru to my doc. I ran out of O2 last night too, but this morning they delivered THREE tanks! Plus I finally got my hands on a nonrebreather mask. Also my doc sent in a scipt for Verapamil and Frova. Gotta see what the insurance will cover though... I think the Frova won't be covered.
Anyhoo, hope you have a better day today and get some PF sleep tonight.
Joe
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Nothing worth having comes without some kind of fight. Gotta kick at the darkness till it bleeds daylight. - Bruce Cockburn, "Lovers in a Dangerous Time"
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Luke63
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Re: Depakote.....?
« Reply #16 on: Apr 1st, 2004, 5:21pm » |
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Hey Joe...my guy dropped me 2 tanks before he went to your place...told him to tell ya "hi' from me did he tell ya? Luke
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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PittsburghJoe
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Go away pain!
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Re: Depakote.....?
« Reply #17 on: Apr 1st, 2004, 5:56pm » |
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LOL Luke, how funny! Actually I wasn't home when he made the delivery. My former employer called me in to help them with some computer problems, so being a nice guy, I went. It was wonderful to come home to all that O2 on my porch though!
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Nothing worth having comes without some kind of fight. Gotta kick at the darkness till it bleeds daylight. - Bruce Cockburn, "Lovers in a Dangerous Time"
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Jeepgun
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I'm seeing my neurologist tomorrow if I can get in to be seen, and demanding Imitrex injectable or nasal spray, and a high-flow regulator and an O2 tank. Depakote has been a dismal failure. The past two nights have been truly the rock concert from Hell happening behind my right eye... (With several encores!)  
Luke, thank you for being there for me, buddy. I can't tell you how much I appreciate it. If ever you need anything, please don't hesitate to pick up the phone and call. *hugs*
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