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Topic: Botox and CH (Read 251 times) |
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Connie2
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Botox and CH
« on: Mar 11th, 2004, 7:45pm » |
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Has anyone heard of or experienced Botox helping with CH? I am presently being treated for Chronic CH and Migraine and am taking preventative meds. I'm also giving Botox a try for both HA... Please respond. Thanks? Connie
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| « Last Edit: Mar 11th, 2004, 7:46pm by Connie2 » |
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UN_SOLVED
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I need a fully-automatic Imitrex injector !!
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Re: Botox and CH
« Reply #1 on: Mar 11th, 2004, 8:04pm » |
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I haven't tried Botox or heard of another clusterhead trying it either, but i'm interested in hearing if it works for you or not. Let us know what happens plz.
Best wishes & good luck
Unsolved
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I'm STILL alive ?
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snyder
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Nothing can hurt me as much as my head.
  
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Re: Botox and CH
« Reply #2 on: Mar 11th, 2004, 8:04pm » |
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I did the Botox injections during another CH cycle a few years ago. My insurance wouldn't pay so I did. It cost me $500+. It didn't do anything for me. It was another example of a CH patient trying anything in an attempt for relief.
Bill
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"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
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pubgirl
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Connie
I have read the results can be good for migraine, but for CH? Unlikely
Wendy
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Connie2
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Re: Botox and CH
« Reply #4 on: Mar 11th, 2004, 8:19pm » |
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Hi Bill,
I will let you know how things pan out for me. I am fortunate that my insurance co is covering the botox but believe me not without a fight. I'm paying for 100.00 out of the 500 plus. I am praying and will post the outcome here so check back from time to time and I will put the info here. I also placed the post about my experience at the Thomas Jefferson HA clinic which was and is a great place to go If you want to read that one. Bill for me and all of us it is one day and night at a time... There has got to be an answer and I refuse to stop trying and learning until I find one period!
Take care of you, Connie
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snyder
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Nothing can hurt me as much as my head.
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Re: Botox and CH
« Reply #5 on: Mar 11th, 2004, 8:42pm » |
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Connie,
For me now, it has been 44 years of hunting for the answers. I still have the energy. The trouble is, whenever I find an answer on a Tuesday it doesn't often work anymore on Thursday, or for the next bout, or three years later. O2 for me has been the only reliable constant.
Now that we know so much about the role of the hypothhalimus I am hoping that I we'll all get to see that definitive solution. Boy ... will we party!
Bill
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Virginia
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Re: Botox and CH
« Reply #6 on: Mar 12th, 2004, 4:11pm » |
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Tried botox a couple of years ago. Didn't do anything for the clusters but I looked 10 years younger.
You may get relief from your migraines though.
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The Clusterhead formerly known as 9erfan.
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Samantha_Smith
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Re: Botox and CH
« Reply #7 on: Mar 16th, 2004, 9:33pm » |
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I have considerable experience with Botox and it has helped me tremendously in terms of relieving not only my chronc cluster headaches but also those "other headaches" that we're not allowed to mention on this message board. Please PM me with specific questions if you want to. I'd be happy to share my experiences.
Samantha
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Karla
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One of Many and Never Alone - Join OUCH
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Re: Botox and CH
« Reply #8 on: Mar 16th, 2004, 11:40pm » |
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I do botox for my migraines but it does nothing for my clusters. Doesn't touch them at all.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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