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Topic: Occipital Nerve Stimulator (Read 441 times) |
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UN_SOLVED
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Occipital Nerve Stimulator
« on: Mar 9th, 2004, 1:17pm » |
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Well, I did it. Got my trial stimulator today. Will have it for about a week. Hope it works to stop some of the pain. The operation was virtually painless. I have 2 wires in my neck. They ruined my fucking hair! Now, I guess I'll go shave the rest of it off to match the back 
I'll let ya know more in a couple of days. Anyone have any more questions about the procedure, PM me.
Wanna see a pic of the back of my head ? Check it out HERE
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Prense
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Re: Occipital Nerve Stimulator
« Reply #1 on: Mar 9th, 2004, 2:19pm » |
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Did I read that correctly? You are only going to have the stimulator for a week? What happens after that?
Hope it works for you!
Chris
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notseinfeld
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Re: Occipital Nerve Stimulator
« Reply #2 on: Mar 9th, 2004, 4:43pm » |
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Hey, the hair will grow back which is more than would happen if it were my head! Wishing you the best of luck and I'm also curious, what happens after this week?
nots
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Tiannia
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Re: Occipital Nerve Stimulator
« Reply #3 on: Mar 9th, 2004, 5:32pm » |
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Glad it was painless for you hun. Please keep us posted on how you are doing. All of my thoughts are with you as you definatly deserve some resite from the Beast.
Pain Free wishes to you,
Tia
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| « Last Edit: Mar 9th, 2004, 5:32pm by Tiannia » |
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Cathi04
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Re: Occipital Nerve Stimulator
« Reply #4 on: Mar 9th, 2004, 5:38pm » |
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Hey, Unsolved.....It doesn't make yer EARS stick out!!!!
I hope this works for you, and that you find PF times with it!!!
Yer a great "guinea pig".......wishing you success!!!
Cathi
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Lobster
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Re: Occipital Nerve Stimulator
« Reply #5 on: Mar 9th, 2004, 5:48pm » |
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I would bet 10-to-1 that cleaning that boreworm nest out from behind your ear would cure you. Ever hear of a Q-Tip? That is just nasty.
Good luck with the ONS... hope is works for you!
Rock
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Giovanni
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Re: Occipital Nerve Stimulator
« Reply #6 on: Mar 9th, 2004, 7:07pm » |
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Good luck and pf days ahead Un_Solved.
John
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UN_SOLVED
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Re: Occipital Nerve Stimulator
« Reply #7 on: Mar 9th, 2004, 9:31pm » |
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I'll only keep it for a week. It's a 'trial'. If it seems to work, then i'll have the implant in 2-3 weeks.
What a bad hair day !
Unsolved
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miapet
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Re: Occipital Nerve Stimulator
« Reply #8 on: Mar 10th, 2004, 12:30pm » |
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I'm keeping all the best thoughts and energy for you . . .and I'll be watching (multiple times per day) for any and all updates!
Oh . .and your hair will grow back . .. maybe you can start a new trend??
miapet
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sandie99
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Re: Occipital Nerve Stimulator
« Reply #10 on: Mar 11th, 2004, 5:24am » |
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Good luck Unsolved! I hope it works!
Loads of PFdays!!!!
Wishes,
sandie99
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UN_SOLVED
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Re: Occipital Nerve Stimulator
« Reply #11 on: Mar 13th, 2004, 8:12pm » |
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Even though I have this ONS, I've still had shadows everyday except for Friday (which was PF).
Never knew a 9 volt battery could give such a jolt !! 
BTW...I'm the first person to get a Bi-lateral ONS. I get it taken out this Monday.
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miapet
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Re: Occipital Nerve Stimulator
« Reply #12 on: Mar 15th, 2004, 3:41am » |
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*hugs* friday is my favorite day *positive energy and light*
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Re: Occipital Nerve Stimulator (Failure)
« Reply #13 on: Mar 17th, 2004, 6:34pm » |
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ONSI Failed. Starting new drug tomorrow. For those that respond well to steriods, this drug is also an autoimmune suppressant drug that is steriod free. It is called "Cell Cept", mainly given to transplant recipients to lower risk of organ rejection. Blood tests every week for a while. Hope I don't get sick.
Here we go again !
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pubgirl
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Re: Occipital Nerve Stimulator
« Reply #14 on: Mar 17th, 2004, 9:42pm » |
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Are you absolutely sure it has failed? If so I am so sorry.  
I am sure you know best but thought I would mention that Mike's headaches got much worse straight after his ONSI, then settled down when the scar tissue formed around the electrodes and held them in place.
Wendy
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| « Last Edit: Mar 17th, 2004, 9:43pm by pubgirl » |
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Re: Occipital Nerve Stimulator
« Reply #15 on: Mar 17th, 2004, 9:50pm » |
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My leads were 'positional'. If I moved my head in certain ways, it would cause an increase or decrease in electricity. I had a good 'placement' of the electrodes. In other words, the electricty was flowing from the back of my head (on both sides) almost all the way to the front. I was still having headaches. (daily) Cranking up the power did no good. Leaving the power on for days did no good. It just didn't help. It did kinna feel like an electric message though.  Too bad the headaches continued.
Doc says that patients who respond well to Occipital Nerve blocks have a descent success rate. I've had 5 bi-lateral blocks. The first was a (17 day) success while the last 4 were all failures.
The ONSI was at least worth a try.
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pubgirl
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Re: Occipital Nerve Stimulator
« Reply #16 on: Mar 17th, 2004, 9:54pm » |
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I am so, so sorry.
I only hope the new drug gives you some relief
Wendy
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hdbngr
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Re: Occipital Nerve Stimulator
« Reply #17 on: Mar 23rd, 2004, 5:17pm » |
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There are several brands of stimulators out there. Where one type doesn't work, maybe another would?
I do know that they take 2-3 months for the leads to anchor down. You get that electric feeling immediately, but it may not really help reduce the headaches until some healing time has elapsed and they are strapped down by the scar tissue. They can also reposition those leads...
There's an answer out there. Hang on.
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