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Topic: new med (Read 452 times) |
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drap
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i just came from the doc she put me back on a second dose of prednisone an tegretol for a replacement for topamax which stopped working after a year. has anybody heard of tegretol or the generic carbamazepine i am so very new at this. thanks drap steve GO RED WINGS
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AlienSpaceGuy
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Re: new med
« Reply #1 on: Feb 13th, 2004, 10:55pm » |
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Carbamazepine is an anticonvulsant and a specific analgesic for trigeminal neuralgia.
An off-label use is to make Zombies.
It is utterly useless against CH (except maybe a Zombie can't feel cluster pain, but I'm not willing to investigate that).
Either your doc is mixing up CH and TN or he got his treatments of CH from books inherited from gand dad.
Have you tried Verapamil as preventative and oxygen or Imitrex as abortives?
ASG
PS, Why are you telling the RED WINGS to GO and not to fly? That would be more natural.
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AlienSpaceGuy believes only in scientifically sound methods and hates snake oil vendors.
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Prense
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Re: new med
« Reply #2 on: Feb 13th, 2004, 11:20pm » |
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on Feb 13th, 2004, 10:55pm, AlienSpaceGuy wrote:Either your doc is mixing up CH and TN
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Doc could be just making sure it isn't TN...
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AlienSpaceGuy
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Re: new med
« Reply #3 on: Feb 14th, 2004, 12:51am » |
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on Feb 13th, 2004, 11:20pm, Prense wrote:| Doc could be just making sure it isn't TN... |
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If a doc needs to make a zombie experiment to distinguish between CH and TN then he didn't do his home work.
As every clusterhead knows, cluster attacks ramp up very fast, from first sign to peak in minutes. Butt for TN the raise time is much faster, often compared to sudden electric shock.
As every clusterhead knows, cluster attacks last typically a half to a full hour. If you're lucky an untreated attack can be as short as 15 minutes, but for others they can last for several hours. Butt TN attacks usually last only seconds and only occasionally up to 2 minutes.
As every clusterhead knows, most cluster attacks occur spontaneously, without rhyme nor reason. All known triggers (beside REM sleep) are of chemical nature (booze, MSG, odours,..) or strong environmental influences (like heat, but that too messes up the chemicals, ask floridian). Butt TN attacks can be triggered by the slightest mechanical irritation, like a slight breeze, a tickling hair, brushing the teeth, shaving, a kiss on the cheek.
I stay with my opinion, a doctor not knowing the difference between CH and TN is not worth a second visit.
ASG
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AlienSpaceGuy believes only in scientifically sound methods and hates snake oil vendors.
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ave
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Re: new med
« Reply #4 on: Feb 14th, 2004, 5:38am » |
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I can testify here that the zombie does feel cluster pain.
I was put on tegretol by mistake and lost 9 months out of my life. Feeling, creativity, sense of humor - out of the window.!
I thought the med worked because I had no pain. Silly! Episode had just finished.
But then the next episode rolled around and Tegretol did zilch. Ouchies!
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There is a break in reality. Do not adjust your mind.
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drap
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Re: new med
« Reply #5 on: Feb 14th, 2004, 8:13am » |
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what is tn my mind is not working?
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Prense
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Re: new med
« Reply #6 on: Feb 14th, 2004, 10:04am » |
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on Feb 14th, 2004, 12:51am, AlienSpaceGuy wrote:
I stay with my opinion, a doctor not knowing the difference between CH and TN is not worth a second visit.
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You are absolutely correct!
I know of at least one person who was misdiagnosed with CH and it ended up being TN.
Chris
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ave
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Re: new med
« Reply #7 on: Feb 14th, 2004, 1:27pm » |
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drap, it is Trigemenal Neuralgia.
You could argue cluster is also apain in the trigemenal nerve, but this neuralgia is something else entirely. Tegretol is a med that does work against TN, unfortunetaly for the users.
TN gets set off by next to nothing, a feather falling on your skin, f'r instance.
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fred33
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Should try Trileptal if too zombified
« Reply #8 on: Feb 27th, 2004, 5:02am » |
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Hello,
I've been on Tegretol for years 10 years ago, but it was for bipolar...  and at that time I had neither cluster nor migraine. So I don't know the effect on CH; all I can say is that the side-effects were not so bad for me (felt a bit drunk the first months).
Recently I tried Trileptal (oxcarbazepine) against a manic switch, although more expensive, it cleared my headaches (CH+migraine) almost completely at a small dosage (900mg). Unfortunately it did nothing for the mania, so I stopped the whole cocktail (I do this regularly...  ). In fact, it's a new version of Tegretol with less (if any) blood and cognitive side-effects (at least for me).
I take now Sanomigran for 2 months (pizotifen) and it slowly begins to work, I additionally benefit the anxiolytic, orectic and mood flattening effect of it for my bipolar disease.
Every person reacts to psychotropic meds differently, so try differents things until you're satisfied with it (I've learned it from BPD).
Good luck.
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J.ten_Dam
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Re: new med
« Reply #9 on: Feb 27th, 2004, 5:56am » |
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on Feb 14th, 2004, 5:38am, ave wrote:I can testify here that the zombie does feel cluster pain.
I was put on tegretol by mistake and lost 9 months out of my life. Feeling, creativity, sense of humor - out of the window.!
I thought the med worked because I had no pain. Silly! Episode had just finished.
But then the next episode rolled around and Tegretol did zilch. Ouchies! |
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and very soon after I became a cronic.
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