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Topic: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER (Read 1667 times) |
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Debby
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MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« on: Feb 5th, 2004, 12:21pm » |
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Please, I need some urgent help on this one. As mentioned before pethedine injections/iv takes pain away. Have also had morphine injections to relieve pain. A friend of mine's mother has cancer and uses morphine in a liquid form. She drops 2ml in her mouth and that helps for the day. Had a bad attack last night and she gave me 8ml but it did not work. Maybe cause I woke up with the attack and was too far into it. Has anyone heard of this morphine for cancer patients in a liquid form to be taken orally? What dosage would one take to take the pain of a cluster away? I am desperate. If this would work it would save me a lot of pain and money. There must be somewhere I can find out about it. Tried to phone pharmacies but they know nothing about clusters and said morphine is just for the terminally ill.[img][/img]
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JDH
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #1 on: Feb 5th, 2004, 1:03pm » |
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There are much better preventatives for ch's than morphine/narcotics. All they ever did for me was dull the pain but never stopped it.
Ask your Dr about oxygen. It's safe,clean, fairly cheap and has helped many of us here.
Jim
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Debby
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #2 on: Feb 5th, 2004, 1:21pm » |
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thanks, but does not work for me. have tried most of the meds and am on verapamil but money is running out and i know the morphine injection works and was given the morphine liquid to try by my friend who's mother uses it for cancer and its here and it cost me nothing. I just want to be pain free without having to use all my families money.
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Roxy
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #3 on: Feb 5th, 2004, 1:29pm » |
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My best advice to you would be to stay away from any narcotics. They don't help, and will cause massive rebound headaches.
Have you tried lithium/verap together? This works for a lot of people, and both drugs are relatively inexpensive.
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Tiannia
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #4 on: Feb 5th, 2004, 2:37pm » |
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All narcotics do is numb the pain and like ROxy said you will end up with a hell of a rebound HA. The reason that the Liquid worked for your moms friend is that hers is a dull constant pain and not the sharp accute pain of a CH. Morpheine normally will not help unless it is taken before the attack startes and it has time to slow the nerve receptors to the brain, but who wants to taken something before you have the attack and then feel dopey all the time. I understand not wanting to be in pain and wanting to saive money, but there comes a question of (A) taking medication while you are not under the care of a doctor, some people will have reactions to morphine and you dont want to OD on the stuff (b) quality of life outside the HA. I know that for me I prefer to live my life as normally as possible between the clusters and I cant do that if I am doped up.
I am sorry that you are getting hit and I hope that you find somethign that works for you. Along with the Lith/vera combo have you tried the meletonin, it helps people and is very inexpencive. like $5 for 100 pills or so here.
Tiannia
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| « Last Edit: Feb 5th, 2004, 2:39pm by Tiannia » |
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cakelady
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #5 on: Feb 7th, 2004, 11:00am » |
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don't even go there. BTDT. Any class A narcotic is highly addictive. That path led me on a $30k roller coaster ride thru hell. DON'T GO THERE.
Christine
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kissmyglass
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #6 on: Feb 7th, 2004, 4:10pm » |
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So, you'll take your friends mothers liquid morphine, which is worthless for Clusters instead of getting the correct meds & spending your familys $$?????
Get a job & get your own meds.
What a maroon...
K
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5-string
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #7 on: Feb 7th, 2004, 4:43pm » |
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Debby,
Please,please stay away from morphine.
If you "go there" Spending your family's money will be the least of your problems.
We all know here how painful cluster headaches are and we understand your "very"strong desire to escape the pain.
Taking morphine does not address what causes cluster headaches.
Read, ask questions,like you're doing now. Find out what works without narcotics. If you don't, you'll risk being addicted to morphine(BIG TIME) and still be suffering from cluster headaches without proper medication/treatment. You don't want to go there.
Have you tried Imetrex? what is your Verapamil dosage???
Take it easy,
...Mark..
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Debby
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #8 on: Feb 8th, 2004, 5:52am » |
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Thanks to all of you for your advice/suggestions/help on the morphine. Will not go that route. I am on 160mg verapamil a day. Was breaking the dosage up into 3 times a day but found that it made me so drowzy at work I just wanted to sleep and could not focus. I now take at about 4.00pm and again before I go to bed. I have got imigran injections which i will use for if I get an attack at work or while away on business. Decided to also start drinking alot of water to see if that helps.
Then to you - kissmyglass.
You are a total not a very nice person and I honestly dont think you suffer from clusters, because if you did would not send a post like you just did. How dare you say things like that when you dont even know me, or what I am going through. For your information, I am a 34 year old married woman with a 13yr old step son, 5 year old daughter and a 3 year old daughter. I have got a job! I work from 7.30 till 4.00 and then run a small business from home in the evenings. I therefore have between 5.00 and 8.00 to spend with my family before handling my other business. My husband also works but is away from home quite a bit with his line of work. I am on a medical aid but because I told them I get cluster headaches when I joined they refused to pay for anything related to headaches for a year. That is till July this year. My friends mother who has got cancer gets her morphine free from a government hospital and they supply her far too much. She says she will never finish what she has and they keep giving her more. You cannot get meds for clusters at a government hospital here as they dont know anything about clusters. I have already in one month spent plus/minus R2000.00 on my meds and doctors bills. That R2000.00 could have gone towards paying monthly expenses, and security etc. The crime in South Africa is very bad and we had one break in and 3 nights of people in our yard. The average monthly salary is about R2000.00 here after deductions. So, kissmyglass, think next time you decide to answer a post. These clusters are interfering with my work, my family and generally everything in my life, I turned to this board for help, not to get responses from people like you. So do me a favour and KISSMYARSE.
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ave
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #9 on: Feb 8th, 2004, 11:08am » |
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Debby, first time of complaining about me ( Ave) you had no cause at all. Now I'll give you something to be angry.
You told everybody about all the hassle and problems at home and the work you have to do and the clusterpain you are going through.
You doubt Kissmyglass is a cluster sufferer.
You did the same thing in my case.
I got news for you.
Both of us are sufferers. Both of us, moreover, have our own hassle and problems and grief. We just don't put it out on the message board all the time.
You did not even think that others, in pain, might not always be so caring and kind to you as you would like.
I tried to be helpful to you and got slapped in public.
Kissmyglass does not cosset you but tells it like it is, and you clobber him.
I'll be charitable and presume the pain got into and made you unreasonable. Be reasonable now and apologize for what you said and implied about me and today about Kissmyglass.
Also, if you wish to be appreciated and helped on this board, you might think about giving something back.
We haven't seen you since your episode was ending (april/may) and now.
And no, not all people tend to disappear after their cycle ends... Think on that.
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Debby
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #10 on: Feb 8th, 2004, 11:54am » |
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You know Ave, after all your pain and problems, would you appreciate a message like the one I got from kissmyglass? Honelstly now, would you. And when in pain would you like someone to be sarcastic and make you feel unwelcome in the site ("if you intend sending more posts" . As explained it was not what you were trying to say its the say you said it. You could have just told me the facts and policy without the sarcasm. I have put what happend between us aside as I was hurt and in the wrong and so were you. But as for Kissmyglass - forget it. After reading my post - how can you tell me he is just telling it like it is? ("I must get a job and by my own meds" Am I not doing that? I would take morphine from someone with cancer. Is that so bad under the circumstances? I would not take medication from someone who needs it. As you will see by my post - she gets too much. In fact will OD if she takes all they give her. If you were given something out of love for free when you know it will help you and you are not making someone go without would you not take it. I was offered imigtrex injections from someone with a kind heart on the board via my IM and turned him down as even though it would work for me and could not take his meds that help him and he has to pay for. As for responding to anyone elses posts to be quite honest with you, I have been reading through all of them and am too scared to post anything to anyone anymore besides the messages I have been getting in my IM because of the people that just attack you for some unknown reason. As for only posting when I am in cycle, I admitted It was wrong didnt I, and also have not had access to internet without it costing me quite a bit. Yes, here in South Africa, money is a big issue. We all need to survive in many ways with very low salaries.
So as for the appologies, as I said you and I were both wrong but Kissmyglass needs to appologise to me.
Why is everyone so ready to attack and not help? What happend to the family that used to be on the board? And as you can see, nothing I am on is working yet so it is a bit difficult to give anyone else advice.
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Debby
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #11 on: Feb 8th, 2004, 12:14pm » |
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and to carry on, i would not tell EVERYBODY about my problems with clusters and trying to live a proper life if they did not attack me with shit comments like get a job. If I keep TELLING EVERYBODY ABOUT MY PROBLEMS WITH CLUSTERS he would know and I wouldnt have to repeat myself.
If you dont care to help then dont fucking respond to the topic. Go to another one where you can lift someone up not BRING THEM DOWN.
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ave
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #12 on: Feb 8th, 2004, 1:26pm » |
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Well, I certainly know whom not to help next time.
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Roxy
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #13 on: Feb 8th, 2004, 2:44pm » |
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Kev just said what most of us were thinking.....and I think he said it very well.
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Giovanni
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #14 on: Feb 8th, 2004, 2:47pm » |
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This thread is giving me a headache!
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Flounder
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #15 on: Feb 8th, 2004, 3:47pm » |
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I agree Giovanni. Is this the medications board or did I take a wrong turn in Albuquerque.
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kissmyglass
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #16 on: Feb 8th, 2004, 4:38pm » |
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I wasn't going to respond but what the hell...
Debby, you are right, I am a total not a very nice person, it's the nature of "the beast" i suppose.
What prompted me to respond to your morphine thread was, I read three of your threads. One you bashed Ave. Two you were asking about cocaine and then this thread.
You claim to have been here for 4 years, if thats true you would be well aware that Narcotics Don't Work for clusters & like Roxy said will in all likelyhood make them worse. Did you actually think anyone here was going to tell you Sure, go drink up someone elses morphine? I don't think so.
I'm sorry you are hurting. I'm also sorry if you live in a poor country and can't get meds. If I lived in the middle of a desert, I'd move.
Best of luck to you,
Kev
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pubgirl
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #17 on: Feb 8th, 2004, 5:35pm » |
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Coke and Morphine
Definitely the wrong support board!
W
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west17m
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #18 on: Feb 8th, 2004, 10:55pm » |
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In addition to the "addictive" qualities of both the narcotics listed above, I will add that in quantities that would theoretically overcome cluster pain, morphine (liquid or not) would probably reduce your respirations to the point where you would need a ventalator?
Have you ever been around someone with a doc is figuring out long-term morphine dosage? SOP is having two nurses presence to monitor vitals.
Don't get me wrong, I love the bantering back and forth, but since this was the medications board, I thought I'd add my $0.02USD about morphine as a medication.
-- Tag
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t_h_b
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Morphine, Cocaine, Alcohol, Marijuana, Psilocybin
« Reply #19 on: Feb 9th, 2004, 12:37am » |
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All of the drugs listed above are controlled by law to varying degrees, along with every other prescription drug in the U.S.
My personal belief is that just because a drug is presently illegal, addictive, or has side effects isn't a reason to dismiss its usefullness or to condemn those who use it or consider using it.
Morphine is one of the best pain-killers available and the dangers are real but over-exagerated. When used for pain control there is very little chance of addiction. (Heroine and nicotine, they're VERY addictive.) When properly administered and monitered, there is little chance of respiratory depression. If you ever have surgery and need pain relief, a morphine pump is the best method readily available. However, from all of the research I've seen, morphine doesn't do much for cluster headache pain.
Cocaine is a valid and effective intranasal treatment for CH, at least according to the CH book edited by Oleson/Goadsby, but lidocaine is much more readily available, works as well as cocaine, and isn't associated with addictive behavior. It's also legal.
Alcohol is very addictive and it is the only drug that ever had its own constitutional amendment forbidding its use. It is still illegal to sell it in many places in the U.S. It causes more human suffering than all of the "illegal" drugs put together. It actually can cause a CH attack.
On the other hand, pscilocybin is illegal but helps a lot of people with CH. It may have happened, but I never heard of anyone stealing to support their mushroom habit, dying from liver disease brought on by habitual fungus abuse, having a heart attack from snorting too many mushrooms, killing a rival mushroom dealer or being charged with running over a child while driving under the influence of pscilocybin.
Marijuana is still very much illegal in the US according to federal law but is legal or decriminalized in many countries including our neighbor to the north. It can be very helpful as a medication and synthesized components of it are given to nursing home patients every day in the US to increase appetite. If I ever have chemotherapy, I hope that marijuana will be readily available to me to help with the nausea.
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| « Last Edit: Feb 9th, 2004, 7:17am by t_h_b » |
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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Giovanni
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #20 on: Feb 9th, 2004, 7:22am » |
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Very well said T_H_B.
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Debby
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #21 on: Feb 9th, 2004, 2:48pm » |
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Had to log off while replying so if my message comes through twice - sorry.
Kev you are right about two things. The beast does makes us ugly at times. Its just too much to handle. Secondly I guess me posting about morphine and cocain did not look very good - made me look a bit like an addict looking for an excuse to use (cocain) that is.
t_h_b thanks for that. All I wanted was advice, not anyone to say, go ahead, it wont help but do it. Not going to go into why and how I posted those posts cause explanations are all there. Anyway I always saw nercotics as illegal drugs. (Not that I am right). Morphine, even though I now know will not work for clusters in the liquid form is legal in S.A for medical use. After all these posts I also read somewhere (not sure where now causes I have been doing research all over) that cocain can be used to abort an attack. But after the GOOD advice I have got I will not try it as it is addictive. Cocain is a nercotic as far as I know but is used in the medical field - thats what it was orignally designed for - medical use.
Most people on the board use magic mushrooms which is very illegal and hard to get here, but have not been knocked for it because it works - not because it is not a nercotic - it is.
I have never thought of going the cocain and liquid morphine route till now so have never done research on it before. I dont drink alcohol as it triggers off an attack immediately and I also feel it breaks families up even though it is legal here.
Marujana I have tried. I tried smoking it before going to bed for relief, making tea out of it etc but it did not work.
I have been a cluster head since I was 15 and always went to a chiropractor. Never helped, but kept going because my mom is very into her holistic medicines etc and insisted it was the only way to go. Then when I left school and got a job I finally saw a Neuro who diagnosed me with clusters. After trying various meds he admitted me for sleep treatment for a week. i came out of hospital looking 6 months pregnant the way I swelled up. He gave me meds to take home and I wish I could remember what it was. I just remember I had to take cortizone, triptanal and a few other plus imitrex to abort. Neadless to say, please be carefull if anyone has to go that route. Within a week of being at home taking his meds I landed up in ICU twice with my heart beating like a chickens. Had chest pains, difficulty breathing and was very close to a heart attack. Well, that put me off meds totally. Said I would never take anything again exept for imitrex. Then 4 years ago I found this site. Wow what a breakthrough. Posted my story and wanted to get my imitrex on chronic medicine on my medical aid and with good advice etc from I think it was dave I wrote a letter to medical aid and did not give up till they put it on chronic. Only problem was I was taking so many injections even though using the imitrex tip and having pethedene from my doc on the occational basis my cycle seemed to last forever. My doc was also not happy with all the injections and said it was bad for the heart. Thats when Linda - a sufferer from SA contacted me and told me about an excelend Neuro that aborted her cycle. Went to see him, was admitted for about 3 days on I think it was a DHE drip (something like that). Anyway after leaving I was hit with one or two attacks and it was over. Cycle broken - boy what a breakthrough. During this cycle before going to the neuro I also tried Zomic, doxypol, Inza, Acupuncture and naramic. They did not work.
A couple of months after that I fell pregnant and it must have been a hormonal thing but went back into cycle totally out of normal routine. Phoned my Neuro, he said besides the fact that I could not have the treatment (DHE) because I was pregnant, they stopped treating patients with it. I still dont know why. He put me on Verapamill and something else and ended my cycle.
Now once again I am on verapamill, which has not helped yet so doc injected me with cortizone yesterday (totally against what I believe in) to give the verapamill time to work. I am now on 6 40mg tablets at night. Makes me very sleepy though, I dont know if that is normal. During the day I battle to keep my eyes open.
Anyway I am sorry for pouring my heart out on the board and telling my life story of clusters and affending anyone in anyway. Maybe this bit of info on the meds I've taken can help somebody, somewhere.
Hope you are all pain free as I hope I will be soon.
DEBBY
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Pinkfloyd
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #22 on: Feb 9th, 2004, 5:08pm » |
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Debby,
1. Why don't you find out what the "something else" was from last time when you used it in conjunction with the verapamil to break the cycle? It often takes a combination of meds to control a cycle, if it will at all.
2. Your Neuro may have stopped using DHE drips to break cycles due to its low success rate. Others do still use it but again, it OFTEN just stops the cycle for a short time and it then returns.
3. I was the one that pointed out that I'd been prescribed cocaine for clusters. It was used as an anesthetic, applied to the nerves in the back of the sinus cavity. As pointed out by a couple people, lidocaine is as effective if not more so, and IS legal and VERY CHEAP. You may want to ask your doc about it. If you get it, it's administration is very important and if not done correctly, will not work. If you get it, ask here for instructions. Most doctors have no idea.
4. When narcotics are used to treat pain, under a doctors supervision, between 1% and 2% will become addicted. If they are used for an extended period of time, almost 100% will become dependant upon the narcotic. Although there is always a big fight about the difference (and if there actually IS a difference) between dependance & addiction, there is a difference. Both instances will require a tapering off to avoid as many withdrawl problems as possible.
An example of dependance vs. addiction, would be prednisone. When used over an extended period of time, your body becomes dependant (not addicted) upon this "un-natural" disruption in the bodies natural production of similar chemicals. When you try stopping prednisone, you must taper off to not only minimize withdrawl, but to stop from getting VERY sick. Your body must learn how to compensate for withdrawing these medications...whether they are narcotics or not.
5. Mushrooms are NOT a narcotic.
6. Many people that have discussed it's (psilocybin) use have been "knocked" for it's use. Some to a great extent. But, as I suggest for everyone, on any subject, if you believe in what you're doing, arm yourself with facts and stand your ground. If the FACTS prove you to be incorrect, thank the opposition for the education.
good luck,
PF
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Jimmy_B
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Re: MORPHINE SYRYP - LIQUID MORPHINE FOR CANCER
« Reply #23 on: Feb 9th, 2004, 5:30pm » |
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on Feb 9th, 2004, 5:08pm, Pinkfloyd wrote:Debby,
4. When narcotics are used to treat pain, under a doctors supervision, between 1% and 2% will become addicted. If they are used for an extended period of time, almost 100% will become dependant upon the narcotic. Although there is always a big fight about the difference (and if there actually IS a difference) between dependance & addiction, there is a difference. Both instances will require a tapering off to avoid as many withdrawl problems as possible.
An example of dependance vs. addiction, would be prednisone. When used over an extended period of time, your body becomes dependant (not addicted) upon this "un-natural" disruption in the bodies natural production of similar chemicals. When you try stopping prednisone, you must taper off to not only minimize withdrawl, but to stop from getting VERY sick. Your body must learn how to compensate for withdrawing these medications...whether they are narcotics or not.
5. Mushrooms are NOT a narcotic.
good luck,
PF |
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Thank the good lord...for someone has finally put into correct words...what I've been trying to say since this message board started.
You are a very wise man. Narcotics are not for everyone. But they do help the right patient population & just because someone uses them...they are not addicted or a druggie.
You are a wise man Floyd...
Jimmy
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test rss